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- glucel replied to Sarah Grace's topic in Related Issues & Disorders10Headaches / Migraines and Hypoglycaemia
hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but... -
- knitty kitty replied to Bebygirl01's topic in Related Issues & Disorders14How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Since lectins occur in almost everything, it's pretty unrealistic to avoid them all. I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers. Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too. Histamine... -
- knitty kitty replied to LookingForAnswers101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
Abscesses on legs
The AIP diet restricts carbohydrates for the first few weeks. Excluding carbohydrates changes your microbiome. The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs. Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease. SIBO can cause gas, bloating, and diarrhea, symptoms similar... -
- knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders10
Headaches / Migraines and Hypoglycaemia
Hello there! Just wondering how things are going for you. Did you try the Benfotiamine? I'm always curious how others fare after taking thiamine. Hope you can post an update. Hope you're doing well!
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hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but at my age and as a recovering heart patient can not take risk. Anyway, been strictly gluten-free since we last talked. I did add 200 mg of vit b1 in addition to the b complex. Not as much b1 as you suggested because of my conservative nature but at least an attempt. I still have substantial bloating which unfortunately is probably not caused by gluten, as I was hoping that gluten-free would clear it up a bit. I wish that I could report a major benefit from going gluten-free but I can't. But I never got desperately ill as many have reported here and my poor brother who was completely overcome til diagnosed. Take care -
By knitty kitty · Posted
Since lectins occur in almost everything, it's pretty unrealistic to avoid them all. I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers. Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too. Histamine is a neurotransmitter, that results in alertness. That cup of coffee in the morning? Releases histamine, so we wake up more. But histamine is released as part of the immune response in Celiac and other illnesses, causing inflammation. Our body can clear histamine, but if the body can't keep up with the histamine we are making ourselves as well as the histamine we're eating, we can have serious problems, digestive problems, insomnia, depression. Some fruits can have high levels of fructose, one kind of sugar in fruits. Some intestinal bacteria can ferment fructose, resulting in gas, bloating, diarrhea. So, yes, Fructose Malabsorption can occur in Celiac. Your dont list...Honey, maple syrup, lectins (and their attached carbohydrates), sugar... ....bedridden...These are all carbohydrates, sugars. We need Thiamine to turn carbohydrates into energy. Without sufficient thiamine, we can develop Gastrointestinal BeriBeri which has the classic digestive symptoms, nausea, diarrhea, abdominal pain. Tannins in tea and coffee cleave thiamine in two, making it nonfunctional. Your do list...hazelnuts, pistachios, pressure cooked potatoes, and yogurt, butter, cheese.... These are foods that contain thiamine. Pressure cooked mashed potatoes have more thiamine than boiled potatoes. Those nuts are high in thiamine. Dairy products are a good source of thiamine. I can't diagnose, I'm not a doctor. You read these articles and let me know if anything rings a bell with you. Yes, I see thiamine deficiency everywhere because it is unrecognized by doctors. I recognize it because I had it. Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ Refeeding Syndrome (a different article...) https://pubmed.ncbi.nlm.nih.gov/33232094/ -
By knitty kitty · Posted
The AIP diet restricts carbohydrates for the first few weeks. Excluding carbohydrates changes your microbiome. The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs. Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease. SIBO can cause gas, bloating, and diarrhea, symptoms similar to Celiac symptoms. When the digestive system is feeling better, then additional foods are added back slowly to look for reactions. I did not consume carbs for a several months because I felt better without them. Currently, a "Modified AIP diet" has allowed rice, but doing this won't starve out the SIBO that occurs in celiac disease. I took vitamins and minerals throughout the day and felt great improvement because those essential nutrients were finally being absorbed. Thanks for letting me share what made my celiac journey better. -
By knitty kitty · Posted
Hello there! Just wondering how things are going for you. Did you try the Benfotiamine? I'm always curious how others fare after taking thiamine. Hope you can post an update. Hope you're doing well! -
By Liquid lunch · Posted
@knitty kitty maybe I’m a little out of touch with fashion having been pretty much bed ridden for so long but this seems ridiculous to me.. ‘As a result of their potential for toxicity and their “anti-nutritional effects” it is almost inevitable that lectin exclusion could well become a big food fad‘ I just can’t imagine anyone avoiding lectins if they didn’t have to. When I first looked at the gundry avoid list I couldn’t understand why so many things were on it that are not high lectin (fruit ect.) and assumed high sugar items must’ve been added because people use the diet for weight loss so I tried eating them and got sick. He’s recently added honey and maple syrup to the approved list by popular demand but I can’t eat them. For me it seems to be almost all lectins, sugar, and possibly tannins because I can’t have tea and not sure what else could be causing the nausea. I’ve had some luck with pressure cooked mashed potato but pressure cooking white rice as gundry recommends didn’t help. The aip diet doesn’t match the foods I can tolerate as well as the gundry list and it seems to be mostly the high sugar things, also some of the aip avoid foods I’m fine with, hazelnut, pistachio. Yogurt and butter is on the aip avoid and again my guts agree with gundry on this, cheese yogurt and butter fine, milk not so much. Now it’s possible to get an igg test it seems an unnecessarily painful and slow process to attempt aip or total lectin avoidance and reintroduction, I wish I’d known about these tests before, it’d have saved me a lot of bother.
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