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debmidge

New Development-nothing To Do With celiac disease

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I am opening up this topic as these are our two choices as to

what Mike may have (yes, he belongs to the "Ailment of the Month" club - each month a new and exciting disease! Only $29.99 to join!, Each new month you get a new condition to deal with! The fun part is you never know what it could be and you find such enjoyment discovering the medical specialists in your area. Who needs vacations when you can be a member of "Ailment of the Month club"! Exciting medical procedures, vists to hospitals and delicious new prescriptions to take! You'll be the envy of all your friends..so be the first in your group to join "Ailment of the Month" club!)....

Ok, sarcasm over....but what I want to talk about is:

1) anyone have these conditions? (I realize it's a "man's disease" but please wives, if you know somethingp please chime in. As a wife, I usually am the one who ends up listening to the doctor and I then filter the info to my husband at home while he's muttering and swearing under his breath over the new dilema).

2) how did you handle the diagnosis?

3) what meds did you get? which ones are gluten free? Does Proscar really take 6 mos to start working?

4) did you have any surgergies or procedures to alieviate the Benign enlarged prost.?

5) how are you doing now?

I apologize for opening up a serious thread here, but I am really scared to the point I can't eat. I am going to make appointment for urologist for Mike (he went to GP and GP just did a urine test and brushed us off - told him to see urologist, which is for the best, but had I known we would have went to urologist first. GP didn't even do a PSA nor a physical exam, if you know what I mean :huh::ph34r::o


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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I don't really know much about it but my dad keeps his under control by taking the herb, saw palmetto. He's done this for about 10 years now.

Hope things work out and he improves soon.

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I don't have any answers for you, but I'm sure somebody on here has some insight. Here's a little "bump" to keep this where people will see it.

I hope you find the answers you're seeking.


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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You're definately going to want to get a PSA. My dad had prostate cancer last year and had his prostate removed. Fortunately, it was all in the prostate and no further treatment was necessary. They can tell so much from the PSA, I definately think he should have it done, it will also settle your own mind a bit. Dad did tell me waaayyyy TMI!!! He says he's starting to feel like, um, activity is returning.

Edit -- don't worry, he'll be fine!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)

My dad was 69 for his, too. It was a tough couple weeks for him afterward, but he did fine after that.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Debbie,

I dont know anything about this so I cant tell you anything useful but just wanted to say how sorry I am for all that you and Mike have had to deal with. Stay strong and I'll be keeping both of you in my prayers.


Rachel

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Debbie ---

And yet, ANOTHER condition to deal with. You are in my thoughts and prayers. I don't see how you do it, my friend . . . . .

Benign Prostate Hypertrophy is pretty common in men -- moreso if they've had a vasectomy, for some reason. As far as treatment, don't know much about that. I agree a PSA is an absolute -- regardless of his age.

My father was diagnosed with prostate cancer 13 years ago. They told him he had little more than 6 months to live . . . . he's 72 and will working. He did the radiation treatment (direct radiation, not the implants), takes Lupron shots once a month and I believe takes Eulexa (?) every day.

Oddly, he told my cousin, who was 39 at the time, to make sure that beginning at age 50, make sure he got a PSA done every year. My cousin got freaked out, insisted that his doctor do a PSA -- ended up with Prostate Cancer. He had his prostate removed, don't know if he had any other treatment (really didn't feel comfortable asking -- he's my cousin), but he's fine, as well.


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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Mike's last PSA was done during Jan 05 and it was a low normal number....he skipped getting one in 2006; so he's due.

I don't know - if this turns serious prostrate probem - if he is strong enough for the harsh chemo/laser or radioactive treatments. He's very frail (he's only 56 years old).

My current quest it to find out if meds like Proscar are gluten free and what brand of saw palmetto is gluten-free; info like that.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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