Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Went To The Opthalmologist


Guest AutumnE

Recommended Posts

Guest AutumnE

I found out I have ocular rosacea. He gave me drops to take for a week, I took in the prescription and the pharmacy had to order it so I should have my first dose tonight.

I have four very large floaters in my left eye. They had been blocking my vision. He is keeping an eye on them luckily my cornea is still looking intact.

He also did a pressure test on me and it looks like I have the starting of glaucoma :( I go back on October 15th to have another test done and another appt on Oct 31st. We do have a slight history of it in my family but he felt like my hypertension and the medication I am on is not the best medication for me so I need to call my family dr.

The floaters and the glaucoma problem are both in the same eye. Im not sure if they are related or not. Our car is having problems (thankfully under warranty still), I having problems with dairy and corn, I had a fire in our oven and now am in the market for a new oven. Hopefully life will slow down soon. Its never ending drama lately.

Prayers and well wishes are appreciated right now from me :) Im really nervous!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Hang in there, Autumn!

They say bad things come in threes. You've had your three--you're done now, and ready to pick up the pieces and go forward.

Prayers winging their way toward you (and upwards, too)!

Guest AutumnE

Thanks :)

Guest Robbin

:( I am so sorry you are having these problems. I know what a nightmare eye problems are-I have been having a lot of them too and I sympathize. It sounds like you have a good doctor, though. My mother has had borderline glaucoma for years and regular checks keep her stable, as well as the importance of keeping blood pressure in good control. You need a nice relaxing bubble bath and lots of soothing words!!

I am sending prayers to you (and Fiddle Faddle is right--you have your three under the belt!!)

Other things that help--a good cry, a manicure/pedicure, a long walk, a hug, picking flowers, reading a good book, prayer/meditation, a nap, or my neighbor's cure-all-a margarita.

mouse Enthusiast

I am sending prayers and hugs to you. I agree with Robbin about the things to do, like a book, walk, etc. to de-stress. It might help keep your blood pressure down a little. I would suggest that you talk it over with hubby and children (if they are old enough), that you get one hour (or half hour) to yourself. Go in the bedroom, shut the door and read or whatever. You should probably do this every day. You might consider taking yoga classes as I hear they are very relaxing. Things will get better. And there is nothing more scary then problems with our vision. but it sounds like you have a good doctor who is keeping a watchful eye on this.

debmidge Rising Star

I understand your situation, I am sure that my husband joined the "Ailment of the Month club" this year. I so want to cancel his membership ASAP.

Hope all goes smoother for you and health issues get resolved.

Deb

tiffjake Enthusiast
I am sending prayers and hugs to you. I agree with Robbin about the things to do, like a book, walk, etc. to de-stress. It might help keep your blood pressure down a little. I would suggest that you talk it over with hubby and children (if they are old enough), that you get one hour (or half hour) to yourself. Go in the bedroom, shut the door and read or whatever. You should probably do this every day. You might consider taking yoga classes as I hear they are very relaxing. Things will get better. And there is nothing more scary then problems with our vision. but it sounds like you have a good doctor who is keeping a watchful eye on this.

(I LOVE your pic Mouse, it always cracks me up!)

Ditto! I have floaters too, and they seem thinner/fewer when my BP stays low and I am "chilled out". I hope you are done with your three bad things in a row, and you can relax now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

AutumnE, Sorry to hear of your eye trouble. I am having vision problems and borderline Galucoma readings myself. I notice you are HypoThyroid. So am I. I thought you may be interested to know that since I started Thyroid meds( Armour) my eyes have improved, Glaucoma reading is normal. Same story for hubbie. His BP and blood sugar and cholesterol has also normalised. Are you on Armour ? Synthetic Thyroid meds don't do all that - only Armour.

www.stopthethyroidmadness.com

I have had to change my glasses 3x this year since starting Armour ( was on synthetics before) and each time they have IMPROVED ! The eye Dr can't believe it.

Guest AutumnE

Thanks :) stress free is hard right now but I'm trying and keeping it low key as possible. My bp is supposedly normal with meds he told me that the kind I'm on will increase chances of glaucoma progressing instead of decreasing it. Basically switching from an ace inhibitor to a beta blocker. Hopefully my dr will do it. It isnt usually given to people with insulin resistance but I would rather take my chances with diabetes than glaucoma.

Im on levoxyl and I mentioned switching to armour a few years ago and he wouldnt do it. The only endo in the area and he wont listen to me. Maybe its time to branch out into another county.

georgie Enthusiast

Endo are usually the worst to dx and treat Thyroid. They love to keep people on synthetics even when their symptoms still are shouting Hypo. Can you see another Dr in your area? The armour web site www.armourthyroid.com has a list of Drs that prescribe Armour. I am up to 3 1/4 grains and love it. Wish I had it before. My eyes are still improving. Have to change my glasses once again soon.

Guest AutumnE

Thanks for the info I will look and see if there is any in my area :)

lindalee Enthusiast

Autumn, Fish Oil is suppose to be good for the eyes and prevent eye problems, you might try to increase the fish oil.. Zinc is also good for the eyes. (Dr. Marc Rose wrote the book "Save your Sight" ) www.dr.marc@diabetes.net.

I'll keep you in my prayers.

Guest AutumnE

Thanks I am taking zinc, just started a couple of months ago. I have been thinking of going on my old prenatals when I was pg before. It had synthetic fish oil in it (without mercury), I'll have to check and see if its gluten free.

I have been reading up on glaucoma and its linked to diabetes/prediabetes also. I had a diagnosis of prediabetes in 2002 so far my hba1c have been coming back good but I wonder if it still does damage. Geez everything is related to celiac disease. It is a good thing my 2 year old is gluten free, hopefully she wont have all this lovely crap to deal with.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.