Jump to content
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

floridanative

Cbs News Story

Rate this topic

Recommended Posts

THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

OH MY GOD - - it just ran here - - I totally agree! Much more than I expected - - really, really on the mark. and national news - - and toward the beginning of the broadcast - NOT something thrown in at the end - -

LOVED IT!!!!

Share this post


Link to post
Share on other sites
THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

Chels:

Good to see you again. I agree. To get and article on National News coverage in prime time, is about as good as it gets.

This is major, no complaints from me!!! :)

Share this post


Link to post
Share on other sites

My mother and I watched it together and we both cracked up when they showed the family eating those sad, flat little cupcakes! I remember baking things that looked like that. :lol: Someone send that woman some gluten-free baking mix, stat!

Good show. Lots of coverage. . .get ready for the onslaught of newbies. ;)

Share this post


Link to post
Share on other sites

The CBS News Story was AWESOME!!!!!!!! My prayers were answered!!! Finally, my friends and family don't think I'm nuts!! I had chills up my spine and tears rolling down my cheeks. It was serile. My sons results haven't come back from Enterolab yet, but he has responded to the gluten free diet. He had terrible stomach aches, vomitting, acid reflux, horrible mouth sores, and it was starting to affect him mentally. He couldn't go to sleep at night and nightly woke up with terrible stomach pains and sometimes vomitting. We have been doctoring for 6 months with us, which I know is short in comparison to some people's stories. Thank God I had access to a person who has family members who are gluten intolerant and access to tons of great info on the internet including this site!! Going gluten free was our last resort. The medical community has laughed in my face, basically telling me I'm crazy. I am concvinced I know more about it than any doctor in this area. The first dr. ordered the wrong test and the second ordered the right one when my son had already been gluten free for a month. No one understands the terrible alone, abandoned feeling unless you've gone through it. Thank God for the news story. Now people can see it's not just kids who are withering away that suffer from this. The mother basically diagnosed the daughter and she was CLASSIC Celiac. All I can say is I hope the right people were watching!! The doctors!!! I am so thrilled and have been in a depression over this for the last week. I am so happy!!! Let's try for Oprah now!!!! I have emailed her on this topic and I think there is power in numbers!! :)

Share this post


Link to post
Share on other sites
Everyone make sure you email CBS thanking htem... they need postive reinforcement as much, if notmore then, the bad feedback!

Yes!!! Email lots of thanks and don't forget to email Oprah!!! Let's get this out to the public!!!!!

Share this post


Link to post
Share on other sites

I sat here with my hubby watching it. I thought it was great. I only hope that people I know were also watching. I forgot about the newbie aspect of the broadcast LOL. Almost 4 minutes in prime time is awesome.

Share this post


Link to post
Share on other sites

I watched it with my mom and her hubby....I thought it would be longer but I thought it was very good regardless. I was hoping my moms hubby was paying attention because I think he might have Celiac. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

Share this post


Link to post
Share on other sites

I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

Share this post


Link to post
Share on other sites
. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

I agree. The fact that the medical correspondent specifically stated that it's no longer looked at as a disease specifically related to horrific gi symptoms was clutch! I loved the fact that they listed associated symptoms that weren't specific to gi problems. I thought it was great that they mentioned neurological symptoms and reccurent miscarriages.

Share this post


Link to post
Share on other sites
I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

Glad I got on this thread tonight and read about the CBS celiac story, that was great to have on National TV!!

I did not see it because I was so tired after dental work today that I went to sleep during that time. Do not want to say I nap because of being older, I blame it onto being Celiac. HA-HA Such 'Good' publicity for "Celiac disease". Am I a newbie on here? Evening all!! evie

Share this post


Link to post
Share on other sites

Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

Share this post


Link to post
Share on other sites
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

Hi Laura, Where are the stores located? I think there is a health food store close to Cbn - is that it?

Also I will be going to Pa. later this month. Where is that one located? Thanks :)

Share this post


Link to post
Share on other sites
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

I sit corrected. I've never seen a whole store, but certainly sections. In fact the health food store kindly labels celiac friendly stuff with a red dot sticker and the words "celiac ok". I wonder where the story originated.

For everyone who couldn't get the video to play I had to click a litte circle next to the file type I wanted to play. There was a commercial first. <_<

Share this post


Link to post
Share on other sites
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

Linda,

There was a store in my area that was all gluten free. It was amazing!! Unfortunately it recently closed down. :(

Share this post


Link to post
Share on other sites

OK, I finally got to watch it. Maybe shutting down my computer last night helped. I thought it was a good piece. I emailed my mom the video link. She's on vacation and I doubt she would have seen it.

We have a gluten free store in Vancouver WA called Lingonberries.

Share this post


Link to post
Share on other sites

I agree that this was a good piece! And I cried too. Thank goodness that people will get this message. I am excited to send it to my parents, who so far have been to stuborn to get tested. Taylor

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • June 19, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • July 07, 2019 Until August 03, 2019
      0  
      For more information, visit www.kefss.com or call (407) 255-6550. info@kefss.com 

      KEF USA Summer Camps Announces the New KEF Gluten-Free Camp in Orlando, Florida for Youths with Celiac Disease.

      [Orlando, FL February 6, 2019]-KEF USA is excited to announce that we will offer a new 100% gluten-free camp program to give kids and teens with Celiac Disease a safe, exciting and healthy summer. KEF USA programs offer fun and unique experiences that can only be found in Orlando, Florida. Campers explore the theme parks and local attractions, make new friends, discover new interests and create memories that last a lifetime.


    • July 08, 2019 Until July 09, 2019
      0  
      14th Euro-Global Gastroenterology Conference happening in Zürich, Switzerland during July 08-09, 2019. We are expecting more than 300 attendees representing from more than 40 countries who would be sharing their experiences and expertise around the world Theme: “Future Perspectives and shaping trends in Gastroenterology”
      You may learn more about our congress by visiting our website: https://europegastroenterology.gastroconferences.com/
      Tracks
      Microbiota and diseases|Acid Related Diseases|Helicobacter Pylori Treatment|Therapeutics targeting Microbioma|Advanced Nutrition and Dietetics in Gastroenterology|Inflammatory Bowel Diseases|Clinical Advances in Liver Diseases|Gastrointestinal Disorders and Drug Delivery|Obesity and Treatments|Gastrointestinal Pathology|Neuro Gastroenterology and Motility disorders|Pediatric Gastroenterology, Hepatology and Nutrition|Gallbladder and biliary tract Diseases|Latest advances in Gastroenterology treatments|Endoscopic Innovations in Gastroenterology and surgery|Clinical and Radiographic Gastrointestinal Abnormalities|Functional GI Disorders|Changing Trends in Etiology of Liver diseases|Epigenetics of gastrointestinal diseases|Bariatric Surgery|Gastrointestinal Radiology and Imaging|Developing treatment for Viral Hepatitis and Fibrosis of Liver|Emerging Trends in Clinical Research of Liver diseases|Hepatitis B treatment Patterns|Therapies in Pancreatic cancer|Diabetes and hepatocellular carcinoma|Intestinal Metaproteomics and Type 1 Diabetes
      Conference Benefits
      ·         CME Credits  
      ·         CPD Credits
      ·         Research publication in proceeding book
      ·         Abstract publication in associated online journal
      ·         DOI by Cross-Ref
      ·         Online speaker webpage
      ·         Workshops and Symposium
      ·         Certificate for participation and attendance
      ·         Young Researchers Forum and Posters Award for Students
      ·         B2b and Networking meetings
       
      Program Director
      Sophia Williams
      Gastroenterology 2019 | Zürich | Switzerland
      conferenceseries.com https://europegastroenterology.gastroconferences.com/
      E-mail: williams.sophiaa@yandex.com
      Whatsapp us : +442382146717
×
×
  • Create New...