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Could I Have Gluten Issues? Thought I Might Have Ms!

Wonder 1

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Wonder 1 Newbie
Wonder 1
Posted

Hello –

I’m so glad that I found this website. You seem like a great group of people!

Over the last four years, I’ve convinced myself that I might have multiple sclerosis (MS), but now I think it’s possible I might have some sort of gluten-intolerance. I am 32year old healthy woman.

I have had the cluster of symptoms listed below, which have come and gone for periods of time over the last four years. I haven’t been able to make any associations between the GI symptoms and certain foods, but I haven't been on the lookout for them. After reading many of the posts, I think I’m going to do the Enterolab tests. Does it sound like I might have a gluten issue?

General feeling of "cloudiness" in my head, often accompanied by headaches behind my eyes

Mild feeling of dizziness

Random tinglings in my hands and feet, sometimes hands and feet are very cold

Frequent diarrhea, after very intense abdominal pains (that make me double over in bed)

Frequent bad gas (sometimes painful)

I am normal weight - not over or under.

Dx with polycystic ovarian syndrome (PCOS) 2 years ago - pregnancy through IVF treatment.

The GI symptoms do not necessarily occur during the times that I have cloudiness, dizziness, and limb tingling.

Thanks so much for your thoughts! In a wierd way, I hope I found out that I have this, so at least I can do something to help my symptoms!

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oceangirl Collaborator
oceangirl
Posted
Hello –

I’m so glad that I found this website. You seem like a great group of people!

Over the last four years, I’ve convinced myself that I might have multiple sclerosis (MS), but now I think it’s possible I might have some sort of gluten-intolerance. I am 32year old healthy woman.

I have had the cluster of symptoms listed below, which have come and gone for periods of time over the last four years. I haven’t been able to make any associations between the GI symptoms and certain foods, but I haven't been on the lookout for them. After reading many of the posts, I think I’m going to do the Enterolab tests. Does it sound like I might have a gluten issue?

General feeling of "cloudiness" in my head, often accompanied by headaches behind my eyes

Mild feeling of dizziness

Random tinglings in my hands and feet, sometimes hands and feet are very cold

Frequent diarrhea, after very intense abdominal pains (that make me double over in bed)

Frequent bad gas (sometimes painful)

I am normal weight - not over or under.

Dx with polycystic ovarian syndrome (PCOS) 2 years ago - pregnancy through IVF treatment.

The GI symptoms do not necessarily occur during the times that I have cloudiness, dizziness, and limb tingling.

Thanks so much for your thoughts! In a wierd way, I hope I found out that I have this, so at least I can do something to help my symptoms!

Hi and welcome.

I wouldn't want to attempt to diagnose you, but you certainly sound like you have symptoms that many others have on here. And I believe Celiac has been referred to as "the big mimic" as the symptoms can be so varied. Have you tried taking gluten out for a bit to see if you have a positive response? I assume if you are considering Enterolab you are not going to have a biopsy. In that case, it doesn't matter if you are eating gluten or not for the test results to be accurate. (for Enterolab) Keep reading here as well as there are so many knowledgable people here. I wish you best of luck in finding the problem and beginning to heal.

lisa

georgie Enthusiast
georgie
Posted

Not sure if I can help you or not but I had tingling legs and fatigue and it turned out to be low B12 and further testing revealed Pernicious Anaemia which is also an Autoimmune condition like Celiac. Have you been tested for low B12 ? You should have B12 around 800 or higher.

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    • trents
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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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