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Budew

Pain, Daily Sweats

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5 years gluten free and still sick. I have eliminated all animal products, gluten, nightshade fruits and vegetables.

I basically exist on coffee, water, apple juice, vitamin water, rice, apple, pear, watermelon, carrot, celery, lettuce, brussels, asparagus, mushroon, onion, and raw cashew.

I have chronic generalized pain, sores on the skin that don't heal(form thick skin over the sores that peel), chronic cough & congestion with sweats 1-2 times a day, occassional nausea, and now migranes.

I've recently eliminated foods with high to moderate salicylate.

My heart sunk yesterday when I read about Sarcoidosis.

I'm lost, any suggestions?

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5 years gluten free and still sick. I have eliminated all animal products, gluten, nightshade fruits and vegetables.

I basically exist on coffee, water, apple juice, vitamin water, rice, apple, pear, watermelon, carrot, celery, lettuce, brussels, asparagus, mushroon, onion, and raw cashew.

I have chronic generalized pain, sores on the skin that don't heal(form thick skin over the sores that peel), chronic cough & congestion with sweats 1-2 times a day, occassional nausea, and now migranes.

I've recently eliminated foods with high to moderate salicylate.

My heart sunk yesterday when I read about Sarcoidosis.

I'm lost, any suggestions?

You sound like me, only you can eat more foods than I can! I am finding, however, that taking VERY GOOD PROFESSIONAL, not over the counter, Digestive Enzymes makes all the difference in the world. I really think every celiac person should be taking them. No, I don't sell them and this is not a sales pitch. I just know how they have helped me and are helping me. I really think that one day soon, my list of foods that I can eat will increase due to the healing action of the enzymes. The ones I use comes from Transformation Enzymes Inc in Houston, Tx. I get them mailed out to me. Anyway, don't get discouraged! Keep trying new things, I know its hard...I have to do it all the time...we just can't give up! But, you sound like a classic person that needs enzymes. I know if you called the company I get mine from they could help you figure out what you need. There are probably other companies that can do that too! Plug along, one step at a time! Hope this helps..

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You sound like me, only you can eat more foods than I can! I am finding, however, that taking VERY GOOD PROFESSIONAL, not over the counter, Digestive Enzymes makes all the difference in the world. I really think every celiac person should be taking them. No, I don't sell them and this is not a sales pitch. I just know how they have helped me and are helping me. I really think that one day soon, my list of foods that I can eat will increase due to the healing action of the enzymes. The ones I use comes from Transformation Enzymes Inc in Houston, Tx. I get them mailed out to me. Anyway, don't get discouraged! Keep trying new things, I know its hard...I have to do it all the time...we just can't give up! But, you sound like a classic person that needs enzymes. I know if you called the company I get mine from they could help you figure out what you need. There are probably other companies that can do that too! Plug along, one step at a time! Hope this helps..

I was gives enzymes but I seem to be unable to keep them down. Did you reject them at first?

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Not sure how to help. You obviously have problems other than gluten. Could the skin thing be psoriasis?

richard

Thanks for responding! psoriasis is what I've been told. What do you do to heal?

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How did you figure out where to start?

Hi, Well, I just posted an answer to your question above, but it isn't here. If it appears twice, please forgive me. I will try to type it again :) When I was desperate, I called Transformation Enzymes in Houston (after trying so many other enzymes it made my head spin). They were so kind to me and as I began pouring out all my health issues they began making suggestions. They know what they are doing. Different deficiencies sprout different health problems. Skin disorders (I am very convinced) come from the guts inability to break down foods we eat. I used to have eczema something terrible. Anyway, the owner of the companies daughter (many years ago) was told she was dying. She began researching and is a brilliant woman. She became a scientist to help others after helping her daughter. Their products have saved my life and I hope you don't think I am trying to sell them. I am not, I do not have any affiliation with the company except taking their products. I just have a heart to help others like I have been helped. You are welcome to e-mail me directly, I hope its alright to put my e-mail address in here and its not against the rules. I put it on my signature and I hope it shows up. I hope this helps and that you just keep taking the next step forward and don't give up! I know its frustrating, I have great days and then terrible days. All I have to do is eat one thing that I shouldn't! Keep looking up! Hope this helps in some small way! Pilgrim

Hi, Well, I just posted an answer to your question above, but it isn't here. If it appears twice, please forgive me. I will try to type it again :) When I was desperate, I called Transformation Enzymes in Houston (after trying so many other enzymes it made my head spin). They were so kind to me and as I began pouring out all my health issues they began making suggestions. They know what they are doing. Different deficiencies sprout different health problems. Skin disorders (I am very convinced) come from the guts inability to break down foods we eat. I used to have eczema something terrible. Anyway, the owner of the companies daughter (many years ago) was told she was dying. She began researching and is a brilliant woman. She became a scientist to help others after helping her daughter. Their products have saved my life and I hope you don't think I am trying to sell them. I am not, I do not have any affiliation with the company except taking their products. I just have a heart to help others like I have been helped. You are welcome to e-mail me directly, I hope its alright to put my e-mail address in here and its not against the rules. I put it on my signature and I hope it shows up. I hope this helps and that you just keep taking the next step forward and don't give up! I know its frustrating, I have great days and then terrible days. All I have to do is eat one thing that I shouldn't! Keep looking up! Hope this helps in some small way! Pilgrim

I realized I forgot something in posting this over after loosing it. I have discovered there are several steps in feeling well after finding out one has celiac. One is eating gluten free. Another is enzymes. Another is probiotic. Another is allergy testing. Another is hormone testing. etc. and etc. Eating gluten for a long time means poisons being in the body for a long time. It messes many things up and we just need to keep looking for those things that will help us feel better and more productive every day.

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Hi, Well, I just posted an answer to your question above, but it isn't here. If it appears twice, please forgive me. I will try to type it again :) When I was desperate, I called Transformation Enzymes in Houston (after trying so many other enzymes it made my head spin). They were so kind to me and as I began pouring out all my health issues they began making suggestions. They know what they are doing. Different deficiencies sprout different health problems. Skin disorders (I am very convinced) come from the guts inability to break down foods we eat. I used to have eczema something terrible. Anyway, the owner of the companies daughter (many years ago) was told she was dying. She began researching and is a brilliant woman. She became a scientist to help others after helping her daughter. Their products have saved my life and I hope you don't think I am trying to sell them. I am not, I do not have any affiliation with the company except taking their products. I just have a heart to help others like I have been helped. You are welcome to e-mail me directly, I hope its alright to put my e-mail address in here and its not against the rules. I put it on my signature and I hope it shows up. I hope this helps and that you just keep taking the next step forward and don't give up! I know its frustrating, I have great days and then terrible days. All I have to do is eat one thing that I shouldn't! Keep looking up! Hope this helps in some small way! Pilgrim

I realized I forgot something in posting this over after loosing it. I have discovered there are several steps in feeling well after finding out one has celiac. One is eating gluten free. Another is enzymes. Another is probiotic. Another is allergy testing. Another is hormone testing. etc. and etc. Eating gluten for a long time means poisons being in the body for a long time. It messes many things up and we just need to keep looking for those things that will help us feel better and more productive every day.

Thanks so much. You are a big help. Hope is huge.

I am headed for Texas in March. My nephew is in Houston I will see if I can talk with them.

In the meantime I will try again starting with the probiotic.

I also you make a great point about the hormone testing. My body has been re-adjusting since I stopped depo-privera after 10 years, besides being ravaged by this disease.

Thanks again. BuDEW

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Thanks so much. You are a big help. Hope is huge.

I am headed for Texas in March. My nephew is in Houston I will see if I can talk with them.

In the meantime I will try again starting with the probiotic.

I also you make a great point about the hormone testing. My body has been re-adjusting since I stopped depo-privera after 10 years, besides being ravaged by this disease.

Thanks again. BuDEW

You can always call them, I don't have the number right here or I would give it to you. You can also make an apt and they can look at your blood under a dark field and really see a lot of what is happening, plus test some other things. They really can help! We actually go back and forth every few months, as my husband has business there and we still have family there. Hang in there! Pilgrim

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Hi Budew, and welcome to this board. Have you seen a naturopath? Have you had allergy testing done? Eliminating all animal products doesn't sound like a great idea to me, as you aren't eating anything that contains any protein at all. Your body needs protein, or you'll never get better.

One excellent enzyme is wobenzyme. I'm not sure if you can just go and buy it in the health food store, or if you have to get it through a naturopathic doctor or a homeopath.

My naturopath is treating me for adrenal fatigue. And he says, as I heal, he thinks I will overcome some of my food intolerances (not gluten, of course, he made that clear).

How did you figure out which foods to eliminate? Did you do a true elimination diet?


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Help! I am down to 97lbs. Docs do nothing. I have diarrhea all the time. Been gluten, egg, soy,dairy,rice, corn free for three weeks but continue to get worse. I eat boiled chicken, boiled beef, baked butternut squash, steamed green beans, baked pear, and baked plum (was eatting steamed chard, think I'll stop). According to the web site the Transform products are olny available to health care professionals. Thanks for your help. Anne

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Do you know if you sleep well?

I have been diagnosed with fibromyalgia, which is belived to some extent be caused by little or no stage 4 sleep. (I think it was also brought on by eating foods I am allergic too, as well) One of the treatments is sleep medication.

Lack of good quality sleep can for sure be contributing to generalized pain, and what's known as trigger points can contribute to congestion.

Just for fun, check out this article on trigger points and see if it helps at all:

http://www.amtamassage.org/journal/fall02_...l/scalenes.html


Toni

Casein free since June 2006.

Gluten free since August 2006

Egg and Soy free since October 2006.

Diagnosis of IBS May 2006.

Diagnosis of Fibromyalgia September 2006.

Negative biopsy and blood tests.

EnterLab results:

Gluten intolerance

Egg intolerance

Soy intolerance

HLA-DQ 2,1 (Subtype 2,5) which means I have one celiac gene and one sensitivity gene.

Mother of three special boys. (and not just because of their dx's)

Married 13 years to a guy who wishes we weren't all so "special!"

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