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kristend

Feeling "hungover" Everyday!

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Hello...I have been gluten-free since May after being diagnosed on endoscopy for reflux/lump in throat feeling. Otherwise I felt physically OK, with hardly any stomach issues. since I began this diet I have been getting progressively worse. My stomach is still OK, but I feel dizzy, and out of it all the time. All I want to do is lay down. This week I have started getting nauseous and don't want to eat anything. In the beginning this diet wasn't so bad because I felt fine, but now I feel horrible and don't know what is going on. Has anyone else experienced this? Am I super-sensitive now that I'm gluten free? I feel like I've made myself worse on this diet. Will this go away?

Thanks,

Kristen

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Are you getting appropriate nutrition? Eating other grains? Taking vitamins?

Have you considered other food sensitivities? Milk? Soy? Corn?

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Guest Norah022

I have been gluten free since June and I still feel this way every day. It has been contributed to my ears (inner ear infections) and my acid reflux. Just started new meds for the reflux yesterday which are suppossed to get rid of the hungover feeling!

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Couple things that I would address:

1. Have you had the bloodwork re-done to see how well your antibody levels have gone down? If they are still high, that could be part of your problem. Make sure you have the full blood panel run---you should call your doctor and request this.

2. I'm sorry to ask this, and don't mean to be rude, but how truly gluten free are you? How often are you "glutened." Do you address cross contamination? How often are you eating out?

3. Have you looked at keeping a thorough, detailed food journal?

4. Other food intolerances.

I hope this helps some. No matter what the problem is, I hope you feel better.

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Guest cassidy

I used to feel hungover all the time before I found out about celiac. I don't know how many steps you have taken to ensure that your life is entirely gluten-free - new pots/pans, reduce risk of cc, eating basic foods so your body can heal etc. I would guess you are still getting some gluten. If you have celiac then you should feel better off gluten even if you have all sorts of other issues.

Don't want to freak you out but you mentioned reflux. I had reflux and it is a symptom when I'm glutened. Because I was on so many antacids for so long I got an amoeba and a bad bacteria. They were able to get through the acid barrier since my antacids were making my stomach less acidic. I had to take some nasty antibiotics to get rid of those things and my bathroom issues didn't clear up and I didn't feel great until I took care of all that. Something to keep in mind for the future.

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Thank you everyone for your advice. I actually had the blood work done 3 months after being gluten free and they were normal. I have a great Dr. so I have a good plan of care. I do eat out a lot though (well not as much as I used to but maybe once a week now). I still live at home with parents and try to cook my own meals and when they cook I hover to make sure things aren't being contaminated. You are right, I should keep a journal. I just don't understand because this was not a symptom I had before and since this diet I feel horrible everyday. I notice that when I drink (and I only drink wine or "good" vodka that is triple distilled) and I will wake up feeling like crap! I am now trying to avoid the alcohol for a while. I noticed that I can eat gluten and not feel sick (not on purpose), but when I add some alcohol i'm a wreck! Now I know the obvious thing to do is avoid the alcohol, but I don't understand why all of a sudden I feel like this when I never did before. And my reflux dissapeared in a few days after being gluen free so I know thats not the issue. I guess this is a common symptom of this disease and i'm hoping it will eventually go away. I also am taking a multivitamin (when I think of it).

Oh and how would I find out if I have any other intolerances/allergies?

Thanks again!

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A long time ago, an allergy Dr. told me that alcohol enhances the allergic reaction. For ex.-when I ate corn chips(allergic to corn) and a margarita, I would get asthma.

I would also like to know the very best way to get tested for food allergies. I know just by my own "testing" what I am allergic to, but I need an "official diagnosis", I guess.

I hope you feel better, soon!

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I used to feel hungover all the time before I found out about celiac. I don't know how many steps you have taken to ensure that your life is entirely gluten-free - new pots/pans, reduce risk of cc, eating basic foods so your body can heal etc. I would guess you are still getting some gluten. If you have celiac then you should feel better off gluten even if you have all sorts of other issues.

Don't want to freak you out but you mentioned reflux. I had reflux and it is a symptom when I'm glutened. Because I was on so many antacids for so long I got an amoeba and a bad bacteria. They were able to get through the acid barrier since my antacids were making my stomach less acidic. I had to take some nasty antibiotics to get rid of those things and my bathroom issues didn't clear up and I didn't feel great until I took care of all that. Something to keep in mind for the future.

I'll google this and research it as well, but it doesn't hurt to ask. What's reflux? :P

arrr sorry to hijack the thread. I definitely have GERD, don't even need to look it up. Is it possible to have it without so much heart burns? I'm an athlete, prolly why I don't get too much heartburns, but I can 24/7 taste acids in my throat into my mouth. Sounds like it has to be GERD. What do you guys do to treat/avoid it?

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Guest cassidy
Thank you everyone for your advice. I actually had the blood work done 3 months after being gluten free and they were normal. I have a great Dr. so I have a good plan of care. I do eat out a lot though (well not as much as I used to but maybe once a week now). I still live at home with parents and try to cook my own meals and when they cook I hover to make sure things aren't being contaminated. You are right, I should keep a journal. I just don't understand because this was not a symptom I had before and since this diet I feel horrible everyday. I notice that when I drink (and I only drink wine or "good" vodka that is triple distilled) and I will wake up feeling like crap! I am now trying to avoid the alcohol for a while. I noticed that I can eat gluten and not feel sick (not on purpose), but when I add some alcohol i'm a wreck! Now I know the obvious thing to do is avoid the alcohol, but I don't understand why all of a sudden I feel like this when I never did before. And my reflux dissapeared in a few days after being gluen free so I know thats not the issue. I guess this is a common symptom of this disease and i'm hoping it will eventually go away. I also am taking a multivitamin (when I think of it).

Oh and how would I find out if I have any other intolerances/allergies?

Thanks again!

I can't drink wine now at all. If I have one glass I feel like I drank 3 bottles. I can drink vodka and actually can drink more of it than before without feeling hungover. I don't know how old you are or your lifestyle, but you might try drinking vodka and not wine and see if the alcohol still makes you feel really bad. Obviously, not drinking any alcohol right now would be best, but you still have to have a social life. I've read that as your body starts to heal that you can become sensitive to things that didn't bother you before because now you are actually absorbing your food.

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I can't drink wine now at all. If I have one glass I feel like I drank 3 bottles. I can drink vodka and actually can drink more of it than before without feeling hungover. I don't know how old you are or your lifestyle, but you might try drinking vodka and not wine and see if the alcohol still makes you feel really bad. Obviously, not drinking any alcohol right now would be best, but you still have to have a social life. I've read that as your body starts to heal that you can become sensitive to things that didn't bother you before because now you are actually absorbing your food.

I think you are right! I'm 25 and I'm miserable because I feel like I don't have a social life anymore. And it always involves food either before or after I go out and I always feel left out or something. And I look like the annoying girl whose always complaining or is miserable. And that was not me before all of this. I am trying to lay off the alcohol for a while at least until the holidays and see how that goes.

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I tested negative for Celiac disease, but my sister has it, I have all of the symptoms though.

I also have a new symptom, I wake up feeling hungover everyday, which is how i found this post.

But from reading this, I guess feeling hungover would be from following a gluten free diet, not from eating gluten?

Geez, no I have no idea why I am so hungover every day, I have to get rid of this feeling...............I'm not drinking, but I feel hungover bad every morning.........

Bharrod

Couple things that I would address:

1. Have you had the bloodwork re-done to see how well your antibody levels have gone down? If they are still high, that could be part of your problem. Make sure you have the full blood panel run---you should call your doctor and request this.

2. I'm sorry to ask this, and don't mean to be rude, but how truly gluten free are you? How often are you "glutened." Do you address cross contamination? How often are you eating out?

3. Have you looked at keeping a thorough, detailed food journal?

4. Other food intolerances.

I hope this helps some. No matter what the problem is, I hope you feel better.

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"But from reading this, I guess feeling hungover would be from following a gluten free diet, not from eating gluten?"

No you have read it wrong. You have to be 100% gluten free to get rid of the hangover feeling. Removing most of the gluten, but still getting CC will make you feel worse. You become "more" sensitive to exposure to small amounts of gluten.

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Hello...I have been gluten-free since May after being diagnosed on endoscopy for reflux/lump in throat feeling. Otherwise I felt physically OK, with hardly any stomach issues. since I began this diet I have been getting progressively worse. My stomach is still OK, but I feel dizzy, and out of it all the time. All I want to do is lay down. This week I have started getting nauseous and don't want to eat anything. In the beginning this diet wasn't so bad because I felt fine, but now I feel horrible and don't know what is going on. Has anyone else experienced this? Am I super-sensitive now that I'm gluten free? I feel like I've made myself worse on this diet. Will this go away?

Thanks,

Kristen

The exact same thing happened to me!

it gets better. your body is just adjusting- its a major change! It takes time

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Okay now that makes sense, but what does CC mean?

So now I need to get rid of all gluten to get rid of this hangover feeling, it's worth a shot, this is misrable.

How can I get Celiac disease at age 36? Full blown, when I never had anything other then IBS in my 20's and 30's?

This hangover stuff just started recently.

"But from reading this, I guess feeling hungover would be from following a gluten free diet, not from eating gluten?"

No you have read it wrong. You have to be 100% gluten free to get rid of the hangover feeling. Removing most of the gluten, but still getting CC will make you feel worse. You become "more" sensitive to exposure to small amounts of gluten.

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Well, you are definitely not alone with the hungover feeling. I am getting over that now, and the total length from onset to full recovery is about 3-5 days. I have always been susceptible to migraines, but they increased in frequency this year, right around the time when I found out about my dairy and wheat intolerance. I now see a direct link to what I eat and the onset of migraines, or the "hangovers".

"How can I get Celiac disease at age 36?"

In terms of my own undiagnosed celiac disease or associated autoimmune disease, I had a series of health incidents and stressful episodes which I believe set it off. You will have to do your own detective work on that one and hone your instinct, because most medical doctors are fairly clueless on that one.

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Hey, is that photo on your profile a picture of BJORK? I am from Iceland.

Well, you are definitely not alone with the hungover feeling. I am getting over that now, and the total length from onset to full recovery is about 3-5 days. I have always been susceptible to migraines, but they increased in frequency this year, right around the time when I found out about my dairy and wheat intolerance. I now see a direct link to what I eat and the onset of migraines, or the "hangovers".

"How can I get Celiac disease at age 36?"

In terms of my own undiagnosed celiac disease or associated autoimmune disease, I had a series of health incidents and stressful episodes which I believe set it off. You will have to do your own detective work on that one and hone your instinct, because most medical doctors are fairly clueless on that one.

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Gluten sensitivity is partially genetic, and partially triggered by environmental factors. You can have the right genes, but not develop gluten sensitivity until something happens - like stress, surgery, illness, pregnancy, or a change in diet where you increase your exposure to gluten. You can also develop new types of symptoms as time goes on.

I had some symptoms of gluten sensitivity as a young kid - stomach aches and a rash on both elbows (called dermatitis herpetiformis - it only occurs in gluten sensitive people) - but then I went for many years with no obvious symptoms of Celiac Disease. Throughout my young adulthood I had some additional symptoms like mouth sores, feeling crappy for lack of a better term, multiple miscarriages and fatigue, but nothing that pointed specifically to Celiac Disease. Then, last year, after my thrid son was born, I went on a health kick and changed my diet. I was trying to eliminate all trans fat from my diet, and I inadvertently started eating more food with whole grains. All of a sudden, all of my childhood symptoms were back (elbow rash, mouth sores and all) - PLUS I started losing weight (10 lbs a month for 3 months). The fatigue was out of control (involuntary naps after any meal - all containing gluten of course) - and I was having a terrible time concentrating - I had a persistent feeling like someone was gripping my head. The only time it would let up was late at night, when I felt "clear" (duh - I hadn't made the connection that late at night was also when i hadn't eaten for several hours).

I was also having trouble with balance, room spinning feelings, getting my words to come out right, stubbing toes and running into doorways, etc. If I woke up in middle of the night it was very noticeable - but also first thing in the morning.

Finally figured out gluten was the problem - at age 34.

For the first several months gluten free, I felt generally great but had REALLY bad reactions at least once a week - where I would eat something, get a headache, brain fog, feel drunk, and fall asleep hard (in middle of the day). When these reactions would happen, I would lose coordination - couldn't type well or speak well - stumbled a bit when walking (basically like being drunk). A reaction in the daytime would mean that in middle of the night, I would feel that room spinning sensation. In the morning, I would get GI symptoms like bloating and the big "d".

A year later, I don't have nearly as many bad reactions. I don't know whether this is because I am better at avoiding gluten (I no longer trust labels - instead, I trust my reactions to thing - i.e. haven't found a potato chip yet that I trust). I still have some reactions - but i realized today that it has been at least 6 months since anything made me fall asleep.

SOOOO....maybe as you figure out what's really gluten free - and maybe as your antibody levels fall - you will have fewer of the bad reactions. I hope so!

Oh, and sometimes I had different reactions that involved shortness of breath and dizziness - possibly a hypoglycemia thing because I was still struggling with what to eat. NOTE to self: A bag of chocolate chips is not a good meal and can induce a rebound type of hypoglycemia!!! :) LOL.

Good luck.

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That vertigo crap is the pits!! I am soooo hoping mine goes away along with the neuropathy...back to the dark cave of hell where they came from. I also can have a "hung over" feeling in the morning. Certain foods do this to me and not just wheat. If I eat beef for dinner I get this. But not if I eat it for lunch. It is a heavy food. And my theory is that some foods that require a lot of energy to digest can leave you "hung over" in the a.m. because our energy naturally declines with nightfall. Should eat easy to digest foods at night.

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Hey, is that photo on your profile a picture of BJORK? I am from Iceland.

Yes! I love Bjork. On to our symptoms, over the last week I noticed a bald patch in on of my eyebrows. I also cheated last week with gluten. It turned red and itchy, and then some time after I noticed the bald spot. I initially thought it was because of a product I used to clean the bathroom, but I have used it before and have never had a reaction like this.

Anyone familiar with bald spots in the front part of the eyebrow? It sucks!

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    • Oh, wow, thanks, I was told by my doctor that I had the "full" panel but I guess not. Unfortunately I have the type of insurance that means I have to see her again before I can do anything else and she is out on vacation until July 10 so there is almost no point in trying to make another appointment before the specialist one. I doubt urgent care would do it?
    • Thank you all for your help!!! It’s a bit clearer now.  I had problems with gases and bloating and reflux a year ago and doc prescribed Lansoprazol. He said my lower esophageal sphiincter doesn’ t work properly.  I was taking lansoprazol 30mg for half a year with huge problems with nausea and even more bloating. Than I lowered the dose to 15 for next half a year and felt better and than stopped taking them. I’ve been off for a months when I started noticing numb tongue and reflux again. So I started taking ppi again. And it’s worse again. I know I have to stop using ppi, but I think I have underlying condition that is making my bloating and reflux and I have to solve it first so that reflux, which is my biggest concern, will go away. I have been anemic long years before taking ppi, now I have low vitamin d, and quite high result IGA 16 (celiac is >20). Can be reason for low vitamin d in ppi too or is more likely because of celiac? Doctors don’t want to make any additional test because they say celiac disease can’t be the reason since this test is negative. And so I am still searching what could be my primary problem. They just want to operate my LES and that’s it for them. But I know this won’t solve my problem since the reason has to be somewhere else. The problem is that the highest dose of lansoprazole is helping me for 12 hours and not 24 like it should. It’s just making my nausea worse and doesn’t help like it should I get bloated with reflux gases, burping 1 hour after eating. My last meal of the day is at 8 p.m. And the worst reflux attac is usually around midnight and 1 a.m. Aya
    • The full celiac panel includes: TTG IGA
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      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
    • Hi everyone, I'm currently in the process of getting tested for celiac and have been so stressed about it, it would be amazing to hear from other people who have gone through a similar process to mine. Does this sound like Celiac? Sorry in advance for the following novel! Basic backstory: I went from ages 10-22 without seeing a medical doctor except in emergencies due to being poor. I'm 23 now, and just recently (in February) got health insurance for the first time in my life ever. I always thought I had IBS (frequent diarrhea) which made sense because I was pretty severely abused as a child and would often have to have diarrhea after experiencing those "episodes." My girlfriend's parents paid for me to see a therapist and psychiatrist beginning at age 20 when I was severely depressed and anxious, and they thought it was IBS too. I'm no longer seeing the therapist but wish I was now that this is a problem. The diarrhea details (lmao sorry): I almost never get diarrhea anymore because I was convinced it was IBS and started eating more slowly, taking care to not eat heavy meals when anxious, moving around less after eating, and cutting out dairy and red meat. I will occasionally get diarrhea for no known reason but who knows? It goes like this when I do have it: somewhat sudden pain in my lower abdomen, same area as period cramps. In fact I often mistake the two. I have diarrhea (a lot...), then the pain vanishes. No other stomach or abdominal pains. I never get abdominal pain without diarrhea, and I never continue to feel ill after having diarrhea. I also had a scary incident last August (2017) where I noticed a um...clear stringy substance in my stool. I thought it was a tapeworm, went running panicking to urgent care and gave them a stool sample. They ran a full culture on it (took two weeks) and it was negative. I insisted on doing a second test and it was negative again. So the urgent care doctor said it was probably mucus in my stool. I got the full celiac blood work panel a few weeks ago and all my vitamins, minerals, nutrients etc. were perfect. So I am absorbing my nutrients well enough. BUT the metabolic Celiac test was iffy. I got one "weak positive." I will copy in my test results, excluding the vitamins/nutrients bits. It definitely seems to me that it indicates Celiac but my primary care doctor said she would "interpret it as negative." However she gave me a referral to a gastro specialist who I have an appointment with on July 13. It will be an initial consultation; I can't get an endoscopy unless that specialist agrees to it. So the actual endoscopy may not happen until late July or even August, September... Full list of symptoms: Diarrhea, persistent rash on my chest (little red bumps, always flares up when taking a hot shower or getting extremely anxious--went to a dermatologist for this when I was 9 and he just said it would go away but it never did), occasional small mouth ulcer (haven't had one in about a year and a half), and often feeling fatigued and irritable. I also feel very cold easily, much more easily than the average person. I've also ruled out the following with previous tests: anemia, diabetes, and thyroid issues. Basically every blood test I've ever done has come out perfect until this one weak positive! I should also note here that I have a second cousin with Celiac (my mother's first cousin). I can accept it if it's Celiac. In fact I hope it is because I would love to do away with diarrhea and the rash!!! My BIG fear is that it's Chrohns instead. But I have never had any bleeding in that region. Overall Celiac Disease Panel results (all results just said "normal"): WBC, RBC, Hemoglobin, Hematocrit, MCV, MCH, MCHC, Neutrophils, Immature Granulocytes, Lymphs, Monocytes, Eos, Basos, Platelets, Neutrophils (Absolute), Immature Grans (Abs), Lymphs (Absolute), Monocytes (Absolute), Eos (Absolute), Baso (Absolute), RDW. Metabolic Celiac Test results attached as an image... Thanks all. x Edit: Forgot to mention that I am currently still eating plenty of gluten, and even have been known to eat an entire baguette by myself in one sitting haha. I do not get diarrhea after this. If my diarrhea is connected to gluten, it's certainly very delayed.  
    • Aya, GFinDC has given you good advice.  Watch your CARBS they ferment and can cause bloating. This can be more pronounced after starting PPIs in some people because you have temporarily lowered your stomach acid which can make things worse for some people.  It is called Acid Rebound when people try to stop PPIs and why (at least) for short period of a couple weeks to a month your body begins to produce it's own stomach acid again.. ..things seem to get much worse. Here is a research link about it entitled "Gastric hypochlorhydria (low stomach acid) is associated with an exacerbation of dyspeptic symptoms in female patients" Dyspectic (dyspepsia) is the medical term for indigestion commonly known as acid reflux/bloating etc. https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 In fact if stomach acid was not the cause your heartburn  and instead say from stress then taking PPIs can make it worse. See this fox news article from 5+ years ago that explains it well. http://www.foxnews.com/health/2012/11/13/gerd-or-nerd-new-type-acid-reflux-doesnt-respond-to-drugs.html quoting from the article "It used to be thought that all GERD was the same—you give patients PPIs and they'll all respond," says Prateek Sharma, a gastroenterologist at the University of Kansas School of Medicine. "But we're finding that a subset of these patients don't have acid as a cause of their symptoms." and they note this in their article on NERD not GERD. quoting again. "Another guess is psychological stress. A 2004 study of 60 patients conducted at the University of California, Los Angeles, found that those with severe, sustained stress in the previous six months were more likely to have heartburn symptoms during the next four months." the standard treatment for acid reflux is to take PPIs and that is troubling for many who start them and cant' get off of them. they actually note this fact. quoting again. "The ones we worry about are the ones who don't respond to standard therapy," he says. "Then we have to figure out why they don't respond." and might actually be making thing worse for many people. quoting again. Aya read the whole article and links provided in this thread when you get  chance. "One 2004 study cited a 46 percent increase in GERD-related visits to primary-care physicians over a three-year period alone." sadly if they had just tested your stomach acid levels before putting you on PPIs many of your acid reflux symptom's might of have been avoided. they are now beginning to realize PPI's don't work for everybody and can make it (heartburn) worse in many patients. quoting again. "Gastrointestinal experts now estimate that 50 percent to 70 percent of GERD patients actually have NERD, and studies show they are more likely to be female—and younger and thinner—than typical acid-reflux sufferers. They are also about 20 percent to 30 percent less likely to get relief from acid-blocking drugs. But their episodes of heartburn are just as frequent, just as severe and just as disruptive of their quality of life, studies show." Ground braking research really but we have a long memory when it comes to treatment regimens.  And it will take a while for the medical field to catch up to this new research. even though this new research recognizes this is real phenomena doctor's are stumped about how to treat it. quoting again. "New research suggests that in many people, heartburn may be caused by something other than acid reflux. But gastroenterologists are often stumped as to what it is and how to treat it." Because they think it is too high to  begin with it doesn't fit their paradigm to think stress or low stomach acid could really be the trigger and never test your stomach acid before beginning you on PPIs. If you were tested you would of remembered because it traditionally involved swallowing a pill retrieved with  string know as Heidelberg Gastric acid test or similar test like the EpH test where a thin tube is inserted through your nose for 24 hours. here is a medline article about the esophageal pH test. https://medlineplus.gov/ency/article/003401.htm because it makes or effects our gag reflex most people feel uncomfortable doing it. so this step (test) is typically bypassed. . . .and the real pH of your stomach is never tested/measured. But we know it is low stomach acid (being misdiagnosed I think) really because we have studied this phenom before see early link posted  here again for convenience sake entitled "Gastric hypochlorhydria (Low Stomach Acid) is associated with an exacerbation of dyspeptic symptoms in . . . patients" https://link.springer.com/article/10.1007%2Fs00535-012-0634-8 the article focuses on the results for women (I am/was not sure (can't remember) if you are women or not but men were also studied in this research. I hope this is helpful. ***this is not medical advice but I have found often when your stomach acid is truly NOT high enough is when we have most of our/your GI problems. I just try and encourage others to get tested. . . because if you don't test you'll never know. We have the endoscopy test for many of our other GI problems we also need to test our pH as well to rule out if is contributing to our other GI problems. ***this is not medical advice but I hope it is helpful. ******Maybe someone else can answer this??? Can you do pH testing with an Endoscopy and if so why is not typically done?? when an Endoscopy is performed thus killing two birds (proverbially with one stone (test). 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
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