Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Being Gluten Free Did Your Sleep Improve

Guest marshlakemom

By Guest marshlakemom
in Related Issues & Disorders

Recommended Posts

Guest marshlakemom
Guest marshlakemom
Posted

I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Deb:

I am sorry that you have been had a long line of sleep problems. This has not been one of mine, but quite the opposite.

Therefore, I am not the one to answer you questions, but perhaps others will post with similar experiences.

Be patient, there are others out there. :)

Kaycee Collaborator
Kaycee
Posted

Deb, sorry you are not sleeping well. That was me too prior to being gluten free.

I think it took me about a month or two to see any improvement in my sleeping. To start with I was quite on edge when I first found out I had coeliac, so sleep was more of a problem at the start. But now I sleep like a log. Unless of course I have eaten something that does not agree with me, and that is usually gluten by mistake.

So Deb, it might take a while, it can be a bit like withdrawals as well, which does not help with sleep. But hang in there and I am sure you will notice an improvement in you sleep soon, and not only that but other things you probably never realised were gluten related.

Catherine

IrishKelly Contributor
IrishKelly
Posted
I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb

It took me 4-5 months (and a Super B Complex vitamin everyday...i take nature made because they are gluten free ;) ).

jerseyangel Proficient
jerseyangel
Posted

Sleep was something that improved for me right away after going gluten-free. I was having problems sleeping prior to that--both falling asleep and staying asleep.

Guest marshlakemom
Guest marshlakemom
Posted

Hi All

You guys are great, thanks for the responses, I appreciate each one. I know I'm being a "bit" optimistic by thinking my sleep should improve within a week, and I agree that our body probably does go through a bit of withdrawal once becoming completely gluten free.

I will keep you posted.

Deborah

TestyTommy Rookie
TestyTommy
Posted

I had lots of sleep problems before going gluten-free. It took a few months til it got significantly better. I'm 8 months gluten-free and still having problems sleeping. I haven't slept through the night in over nine years, but it's getting better.

So be patient. Especially if you've been damaged for many years like a lot of us, it will take many months of being strictly gluten-free to get better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


marciab Enthusiast
marciab
Posted

Mine got a little better after 6 months, but it has only been in the last month that I can sleep all nite and wake up rested. So, one year for me ... marcia

elonwy Enthusiast
elonwy
Posted

I used to have really bad insomnia, the "not able to fall asleep no matter how tired you actually are" kind. This started to get better after about 2-3 months on the diet. I now only get that way if I've been glutened or am really stressed out. Its really nice to know that when I'm going to bed, I'll probably be asleep soon. I fall asleep so easily now that sometimes I wake up and I've fallen asleep with the light on.

I have Sonata as a backup for emergencies, and that helps me supplement when I'm having falling asleep issues.

Elonwy

georgie Enthusiast
georgie
Posted

The day I was Glutened last week - I ended up having a nightmare that night. Is that a normal reaction ??

sspitzer5 Apprentice
sspitzer5
Posted

I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

S

  • 3 weeks later...
munchkinette Collaborator
munchkinette
Posted

My sleep issues are connected to other things. I sleep a lot better when I can exercise, but I never had the energy to exercise because of the anemia. I've started getting enough energy to exercise in the last 2-3 months, so that's about six months since I've gone gluten free.

par18 Apprentice
par18
Posted

For me in the beginning there were two issues keeping me from sleeping much at all. One was I was so malnourished I could not get enough exercise to get tired. I was eating a lot of food each day with no appetite. The other more important issue was just plain "anxiety". I could not convince myself in the beginning I would recover. I would lay awake in the bed for hours and stare at the clock. It was as if I was afraid I would fall asleep and never wake up. I had to take some medication for about 6 weeks to help calm me down. Finally I started to notice some positive physical changes (gained a few pounds). When I realized I was not going to die anytime soon I relaxed and was able to give up all meds. Today everything is fine.

Tom

suzannabanana Newbie
suzannabanana
Posted

I have had chronic sleep problems for ages. Gluten-free since March with slow improvement in various areas. My NP gave me amatryptaline recently instead of Ambien CR (have tried several meds and naturals). She says it slows down the gut and that is what I'm finding. I have averaged probably 6 out of 7 full nights of sleep since starting, where I was getting 1/7 for years and years and years.

Ellen Newbie
Ellen
Posted
I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

My daughter has the same problem...but she's 5.5 years old and part of that is a kid just plain fighting going to sleep! Her doctor told us the melatonin was good for getting you to sleep, but it doesn't keep you asleep. Magnesium is what keeps you asleep once you get there. He reccomended epsom salt baths twice a week to help boost her magnesium levels. That seems to have helped alot...she's sleeping through the night after 2 weeks of baths. Since she's only 5 they only do it twice a week, but I imagine an adult could take the baths more often, or even take a magnesium supplement. Hope this helps!

emi-220 Rookie
emi-220
Posted

I've had sleep problems my whole life. I could never fall asleep and I was always so fatigued (though I'm not sure if the always being tired part was related to the celiac or just because I didn't get much sleep to begin with). I've only been on the gluten free diet for about a week and my sleep hasn't improved much. It sounds like it will get better though according to what everyone else has said so that's good.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    2. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    4. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.