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shai76

Rice Allergy?

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I've been on an elimination diet for my allergies, since it seems I've developed more judging by my chronic hives, eczema and asthma. Anyway, I went down to just eating rice and some meats. Any time I eat, even just rice, I wheeze and break out in hives. My eczema is worse than ever. I've been eating rice for breakfast lunch and dinner, and I am always sick, so I'm farily certain that is what is causing it. My allergist doesn't want to do more tests on me since it always turns up I'm allergic to everything, and she is sort of mad (at me, I guess) because her "wonderful" immunotherapy plan isn't working any more. They act like it is my fault, like it is something I am doing wrong. I'm ready to quit immunotherapy, quit allergists, and hide under my blankets in bed for awhile. :(


allergy to wheat/oats, milk, eggs, corn, yeast, tree nuts, turkey, seeds, mold, dust, dander, pollens, soy and other legumes

Son: allergy to milk, avoiding nuts, eggs, fish

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Shai,

I'm sorry. :( I don't have any words of wisdom to add. Just want to offer my support and give you a cyber HUG.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Shai,

I'm sorry. :( I don't have any words of wisdom to add. Just want to offer my support and give you a cyber HUG.

Thanks. I'm just wondering why a lot of us just keep developing new allergies all the time.


allergy to wheat/oats, milk, eggs, corn, yeast, tree nuts, turkey, seeds, mold, dust, dander, pollens, soy and other legumes

Son: allergy to milk, avoiding nuts, eggs, fish

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I am so tired of doctors acting like this is my fault. I too keep eliminating one thing after another. Even when I shared with a smile I suspected corn, my doctor said, no way, get real, you have to eat something.

Well yeah but I would like to know that what I am eating is not making me sick.

I called the hospital that diagnosed me. I was soo nice. I said I was calling for information for dealing with the complications of untreated celiac. That I did not get them when I was diagnosed because I was fine then, but now I have been sick for 5 years and was hoping they could give me any info they had. She grilled me about exposure to gluten, and said the only reason people who are diagnosed continue to be ill is because they aren't following the diet. She as so mad she hung up on me. I am stunned.

I got a similar reaction from the local celiac group. She had never heard anyone who was gluten free that didn't get better. Or anyone taking enzymes to assist the healing process.

I don't understand why there is so much denial.

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I'm so sorry you are going through this. :(

I'm really no help, I don't have any experience with reactions like yours, the wheezing and hives. Are you able to have teff, quinoa, or millet? Or do they bother you because they are seeds?

The only thing I can think of is to rotate the things you can eat. I think I read someplace on the board that eating the same things every day can make us sensitive to them.

I hope you can find some relief!


~Li

Celiac, dx Sep 2006

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I'm allergic to rice, and have been from the get-go. It's not really that hard - I've never tried a pre-made gluten-free product though! THAT was frustrating at the beginning. However, if everything is causing you a problem, it might be something else - not every single food. I'm not that much help in that case, but wanted to assure you a rice allergy is not bad at all.


Gluten-free, Vegan

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For those having a lot of problems, I have a couple suggestions,

one check out the specific carbohydrate diet, you can google it, there is a site called pecan bread or something like that.

two: do not eat any grains of any kind - gluten-free or otherwise

three; do not eat beef or farm raised shrimp and fish because the grains in the feed, antibiotics, pollutions, chemicals, etc could be causing you problems

four: check out all the allergy information you can find. look into a rotation diet

five: cut out all artificial sugar - unless a diabetic, no colas either

six: eat plainly prepared whole foods & see item 4

seven: this is not forever - the mystery of allergies is that they come & they go...

eight: oh yeah, you should probably give up dairy

nine: get at least 8 hours sleep a night & drink bottled water

ten: exercise to boost your immune system

11. check into iodine that is in your salt - maybe switch to sea salt

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while western docs seem to think rice is hypo-allergenic, if you look at the rates of rice allergy in countries that use it more often - asian and mid-eastern countries in particular - you'll find find that it's *far* more common that docs here think. it's not really that uncommon.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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while western docs seem to think rice is hypo-allergenic, if you look at the rates of rice allergy in countries that use it more often - asian and mid-eastern countries in particular - you'll find find that it's *far* more common that docs here think. it's not really that uncommon.

one doctor told me that... i said, 'then how come i have trouble breathing and get hives when i eat it, followed by diarrhea and stomach pain? there must be some sort of issue with it.'

he sort of just stared at me. and so, i did many 'personal' test, including rice of all sorts, with no other foods, and same thing. i do it every few months, as i often test my other sensitivities (other than casein and, obviously, gluten).

silly doctors. :)


Gluten-free, Vegan

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I'm allergic to rice, and have been from the get-go. It's not really that hard - I've never tried a pre-made gluten-free product though! THAT was frustrating at the beginning. However, if everything is causing you a problem, it might be something else - not every single food. I'm not that much help in that case, but wanted to assure you a rice allergy is not bad at all.

I thought it might be something else too, but I was RAST tested for a bunch of stuff and it came out high positives. The doctor had me do an elimination diet based on the results and whenever I included those things back in my diet I got eczema, hives, asthma, and stomach problems. So once I eliminated them for good I got better. But now I am developing symptoms again whenever I eat rice. I just started eating a ton of rice because it was one of the only grains I can eat, and I ended up becoming sensitive to it.


allergy to wheat/oats, milk, eggs, corn, yeast, tree nuts, turkey, seeds, mold, dust, dander, pollens, soy and other legumes

Son: allergy to milk, avoiding nuts, eggs, fish

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For those having a lot of problems, I have a couple suggestions,

one check out the specific carbohydrate diet, you can google it, there is a site called pecan bread or something like that.

two: do not eat any grains of any kind - gluten-free or otherwise

three; do not eat beef or farm raised shrimp and fish because the grains in the feed, antibiotics, pollutions, chemicals, etc could be causing you problems

four: check out all the allergy information you can find. look into a rotation diet

five: cut out all artificial sugar - unless a diabetic, no colas either

six: eat plainly prepared whole foods & see item 4

seven: this is not forever - the mystery of allergies is that they come & they go...

eight: oh yeah, you should probably give up dairy

nine: get at least 8 hours sleep a night & drink bottled water

ten: exercise to boost your immune system

11. check into iodine that is in your salt - maybe switch to sea salt

1-10 sound okay but I ? sea salt if iodine is a problem, sea anything is loaded with iodine

I buy uniodonized salt in the supermarket

Budew

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I thought it might be something else too, but I was RAST tested for a bunch of stuff and it came out high positives. The doctor had me do an elimination diet based on the results and whenever I included those things back in my diet I got eczema, hives, asthma, and stomach problems. So once I eliminated them for good I got better. But now I am developing symptoms again whenever I eat rice. I just started eating a ton of rice because it was one of the only grains I can eat, and I ended up becoming sensitive to it.

shai - that didn't happen to me (eating too much), but because i am a vegetarian, and casein free, and won't eat eggs, and have limited grains (also allergic to buckwheat), i LOVE soy. tofu has always been one of my favourite foods, and i have feared becoming sensitive to it. same with nuts and peanuts... i eat hearty amounts of all three daily. luckily, it hasn't happened. i hope you feel better.


Gluten-free, Vegan

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shai - that didn't happen to me (eating too much), but because i am a vegetarian, and casein free, and won't eat eggs, and have limited grains (also allergic to buckwheat), i LOVE soy. tofu has always been one of my favourite foods, and i have feared becoming sensitive to it. same with nuts and peanuts... i eat hearty amounts of all three daily. luckily, it hasn't happened. i hope you feel better.

I used to be a vegan before developing all these allergies. Back then I was just allergic to eggs and milk. I loived soy too. Soy cheese, soy milk, the toffuti sour cream....now I am VERY allergic to it. I'm considered a class 3, which means it can kill me.

I got used to eating meat again. Now I just eat what I can. I felt kind of bad about it, but now I just try not to think about where it comes from because I don't have much of a choice. :/


allergy to wheat/oats, milk, eggs, corn, yeast, tree nuts, turkey, seeds, mold, dust, dander, pollens, soy and other legumes

Son: allergy to milk, avoiding nuts, eggs, fish

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