Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs With Hypoglycemia!


Guest adamssa

Recommended Posts

Guest adamssa

hi!

i was hoping to hear from others with celiac or g-intolerance who also have hypoglycemia. i am finally starting to understand what is going on now that i 've realized i have both. i was wondering what works for everyone? i have to say, i was pretty reluctant to go on another restrictive diet, and i've always thought i've been pretty good about dealing with that. but, once i saw how the chocolate seriously messed me up for three days i am leaving the sugar alone again.

what kinds of foods do you guys find helpful? can hypoglycemia --perhaps caused by celica, ever sort of subside or is this another lifelong conditon? now, paying attention to how my blood sugar directly affects my mood and brain, i realize that i've had it my whole life, just not as severely.

i find that tuna and nuts are the best thing to eat, but it is all so boring! i am reading the krimmel book and tryng to follow that and they say to limit seriously your intake of grains. and i can do that but it gets dull. i find that any sugar at all, and too many grains just make me feel so brain fogged i am basically incapicitated. does this mean that hypoglycemiacs with celiac have to commit to a life of vegetables and meat?

thanks!

sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I don't find dealing with hypoglycemia very limiting any more, but I'm fairly anal retentive about making sure all my meal are balanced. I don't avoid sugar (I enjoy dark chocolate often ;) ) but I make sure that every instance of eating that has carbs has a balance of at least fat or protein to go with it, preferably both. Exactly what works for you will likely be different than for someone else. (For me, for instance, protein isn't *the* key, but a balance of protein and fat. Just eating carbs and protein doesn't deal with my blood sugar levels as well for as long as getting some (moderate) amounts of fat in there.)

I find that if I keep things stabilized, and am cognizant of what I'm eating, then I can easily go three, four, or five hours without needing food, even if I'm not eating much. But I have to keep it BALANCED and not rely on carbs. I don't eat bread as it is (not a fan of gluten-free bread anyway :P), I make my muffins to be very protein/fat balanced, and love my stirfries with plenty of veggies.

The best advice I can give is to learn your body, and realize that what you read in a book or online is a guide. It's a good place to start, but it's all based on average, and you're not eating for the average of hundreds of people, you're just eating for yourself. :)

Sweetfudge Community Regular

I don't think mine are related...I was diagnosed w/ hypoglycemia 15 years ago, and only developed celiac about 2 years ago. I found it difficult to maintain my blood sugar levels without my wheat bread staples :P But like tarnalberry said, the key is to balance your proteins, carbs and fats.

I eat a lot of rice and potatoes, some gluten-free pasta, but not much in the way of bread, unless I make muffins, or if I'm having soup. I do eat a lot of corn tortillas, and I keep pizza crusts in the freezer as well. But I don't do sandwiches really anymore.

I also eat a lot of nuts. Before going gluten-free, I loved to make fruit and nut bread...haven't had much success making since, but I know there's good recipes here. I really have tried to incorporate more fruits and veggies in my meals.

Make sure you are eating often enough. If I go too long without eating, I get head-fogged for a day or two.

My favorite things to eat are potatoes, soups, pizza, and mexican food. Browse this site, you can find a lot of good recipes :)

Messagae me if you want more advice. And good luck!

georgie Enthusiast

Tiffany has good advise and that is what worked for me too. A balance of protein, carbs and fat at every small mini meal and eat before you get hungry . 'The Insulin Resistance Diet' by Drs Hart & Grossman was my bible.

However, should also add that since having Thyroid dx and receiving Armour - my hypoglycemia is much better. My blood tests for Thyroid were always 'normal' but I eventually found a good Dr. Seems all my other Drs had only ever been doing the TSH test. And not testing for Antibodies. Once you have one autoimmune disease you can get others. Chicken and egg story what came first for me...but ..something to think of as well.

Guest adamssa

thanks guys! :) i had been trying to add carbs back in without eating protein at the same time, so your advice has been very helpful i am trying now to do that gradually. i've been wondering if the brain can really get enough gluclose if you don't eat carbs? ---and if the head fog comes from a blood sugar drop or a lack of adequate supply of sugar---i suppose it is both.

thanks again. w/out the people on here to help me figure this out i would still be absolutely miserable. my body is still very whacked out, but now i at least feel like i may be able to begin to feel my way back to something else. and, best of all sometimes my brain fogged feeling is diminishing!

sara

jnclelland Contributor
thanks guys! :) i had been trying to add carbs back in without eating protein at the same time, so your advice has been very helpful i am trying now to do that gradually. i've been wondering if the brain can really get enough gluclose if you don't eat carbs? ---and if the head fog comes from a blood sugar drop or a lack of adequate supply of sugar---i suppose it is both.

sara

You *do* need carbs, just not necessarily from grains - and maybe not as many as you're accustomed to. Veggies have lots of good carbs, especially things like beans and legumes (as long as you don't have an intolerance to those as well). Don't worry; your blood sugar will let you know if you're not eating enough of them! :)

Jeanne

Mamato2boys Contributor

I've been hypoglycemic since about the age of 15, and haven't "officially" been diagnosed as gluten intolerant. I learned through having my son tested that I at least carry one gene for gluten sensitivity. I've found that since cutting out glutens my hypoglycemia has settled down quite a bit. I'm one of those people that the key *is* protein to keep my glucose stable. I'm even finding that I can get away with "junk" food (like dark chocolate) if I balance it out with a serving of protein. My brain fog is better and I can't remember the last time I had a low blood sugar episode - a couple weeks I would guess (since starting the gluten-free diet). Before then, I'd have as many as 3 or 4 episodes a day - NOT comfy at all ! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Clark Bent as Stupor-Man Contributor

I've had hypoglycemia since I was in middle school and was diagnosed with a GTT when I was in college a few years ago... ultimately, it lead me to learning about food intolerances since I was pretty strictly adhering to a hypoglycemic diet and still not feeling well..

a hypoglycemic diet doesn't have to be all that restrictive... it's pretty much just a balanced ratio of proteins, carbs, and fats as has been said... generally speaking, you just want to keep an even blood sugar level, which means avoiding spikes in blood sugar (from high carb/sugary foods especially ones that are digested quickly) and subsequent crashes..

the less frequently you crash, the easier it becomes to recognize the warning signs beforehand... you may find it beneficial, at least at first, to keep something like nuts with you because they are an easy source of balanced protein-carbs-fats..

if your only food intolerance is gluten, you have a lot of options for what to eat on a hypoglycemic diet... eggs are a quick, easy food to cook that should work well.. you may also find it helpful to drink orange juice in the morning and then follow it up relatively quickly with a breakfast with protein... it may depend on if you also have fasting hypoglycemia but the best advice, as tiffany said, is to learn how your body reacts and adjust accordingly

and I can empathize with you about dealing with brain fog as a writer... fun times, right? I'm just over halfway through my first novel though my main character's got enough issues without having to deal with celiac disease as well...

Guest adamssa

hi charlie!

it is exciting to hear from another writer who has to deal with brain fog! (not that i am happy that you have to deal with it too, of course.) That is seriously probably the most difficult thing for me. i write for a local magazine, and am a journalism major. and it seems to me that whenver i start getting excited about articles i've committed to or just developing my own stuff....i get fog again. or if i don't have it, it's like i've got to do as much as i can before i get it again. it's pretty scary! and emotionally messes with me. i mean, that's what i want to do w/my life, and it's also what i've promised people i'll do, and suddenly i feel so removed from everything that's happening. or wondering what is going on.

do you have any advice for dealing with hypoglycemiac brain fog? ---is it just a matter of not crashing? i am really sure that's what i'm getting now, fog from an unsteady supply of glucose. i can literally tell sometimes that my brain is manufacturing fewer thoughts because it has less to go off of. often times it seems to be improving, the better i am about eating regularly, but i still seem to be at about 50%. it may be because i keep to the two hours thing as much as i can, but then i go to work some days and can't.

thanks! good luck with your novel. i am very interested in writing about the experience of chronic illness, which is where my interest in a celiac character comes in. guess it's because i have so much personal experience, so it won't be grasping. :rolleyes:

Sara

Lauren M Explorer

I have HYPERglycemia, but from what you all share about your diets, it sounds very similar to what I'm supposed to follow: protein and fat with my carbs so my blood sugar doesn't spike. My fasting blood sugar is naturally high.

That's odd to me, that two words that technically should mean the opposites (HYPER- and HYPOglycemias) actually have a similar diet. I always thought if you were hypoglycemic your blood sugar ran low and you would have to pop candies all the time or drink soda...

- Lauren

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.