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Does Glutening Intensity And Recovery Time Decrease W/ Healing?

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My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.


Erica

Inconclusive blood test results

Positive Enterolab results

Positive dietary results

gluten-free since 2/10/06

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I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

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My acupuncturist and other medical practicioners have all suggested that my glutenings will decrease in intensity and such once my body has fully healed. I'm not working with anyone with a great deal of knowledge and experience with celiacs, so I was wondering whether this is something people have found to be true in their own experience.

I've been diagnosed at 36 and my last two glutenings were in June and then about a month ago -- as best as I can tell from the most recent experience, it's taking me three weeks to feel like my health is back up to par. I've undergone a pretty intense acupuncture treatment which I can tell has speeded up the healing process and that last glutening was noticeably less severe -- but still pretty bad. I know that it's technically supposed to actually take 6-8 weeks for the body to fully recover.

What about those of you who've been gluten free for several or many years? How old were you when you were diagnosed? Do you find that the recovery time improves? Has something about the nature of your glutenings changed.

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I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.


If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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I glutened myself four weeks ago and I am finally back to normal. I experienced fatigue and brain fog but I was still able to function. The brain fog was not nearly as crippling as it used to be. It is probably safe to say that if you keep yourself healthy that any accidental glutenings will decrease in severity. However this could vary from person to person.

I have had similar reactions. And I also will agree that it varies widely.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I've been gluten-free for 14 months and I think my glutenings are less severe now. I still get all my old symptoms back but I'm still able to function and live my life. The symptoms can drag on for two weeks, though.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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I don't think that it's changed wildly. It changed a bit in nature, actually getting 'worse', though that was mostly an issue of not always feeling icky, so I recognized not feeling well. It really varies person to person.

Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Yes, a poor choice of word on my part..I meant widely. Sorry Tiff, bad spelling on my part.

:huh: *scrolls down* :lol: hehehe... I just hit reply after reading the OP, and didn't see your post until now. (I was multitasking the last time I replied... who knows how many boo-boos I made... :rolleyes: ) I can totally see describing it either way. :)


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I've been following a gluten-free diet for about 10 years now. Gluten accidents are very rare. However, when they occur, they are very consistent in terms of severity and duration of symptoms. None of this has improved over time. My body has probably healed as much of the previous celiac-related damage as is ever going to be healed.

I'm going way off-topic, but how much did that change your life? being gluten-free for 10 years? do you feel perfectly normal now? how long did it take? etc? I realize everyone is different, just trying to get an idea. Any info would be great! :)


"I have failed and that is why I succeed."

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I think it is very hard to judge how severe an attack is only because most of us were so consistently ill before going gluten free that we never really had a time when we felt normal in comparison to other people. I think that once you go gluten-free and are gluten-free for years, then the reaction seems much more violent, only because we aren't used to having the reaction anymore. For now, my other intolerances keep me feeling so worn out and ackey, that I may not feel a gluten attack as violent. It is very, very rare now that I get diarrhea and when I do, it is usually from an accidental glutening. It's weird, as much as my intolerances are bothering me and as run down as I feel, I rarely ever pick up any bugs from other people. Knock on wood!!!!!!!

And Koty--I have been gluten free for 5 years. I remember that within a very short time after going gluten-free, I noticed a big difference in how I felt. Yet I was very ill then, so any improvement would have been heavenly. I was up almost every night with diarrhea, falling asleep on the toilet at times. After a few weeks gluten-free and being able to sleep through the night for days on end, was heaven. For me, going gluten free was a Godsend for 2 yrs or so. Then my soy intolerance cropped up, then in a few months, the corn jumped in the mix, a yr later rice joined them and then the nightshades. Somedays I feel like I am back at step 1 again, yet I know with these intolerances, I am not near as ill as I was with gluten. I do often wonder why I must go to the extreme with everything. My sister was so ill with celiacs and she has been gluten-free for 5 yrs also and has no other intolerances.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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