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What Were Your Symptoms At Diagnosis?

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It seems most of my reading about celiac disease indicates a major weight loss. My son has no problem with weight gain, but he has asthma, fatigue, crankiness, extreme tummy pains and gas with whole wheat. I haven't decided if I am going to proceed with testing/biopsy or just the elimination diet, yet.

My symptoms are more neurologic. When I was at my worst, I lost a significant amount of weight, but now that they have me all hopped up on anxiety meds and beta blockers, I have put the weight back on.

I'm thinking because of the not losing weight we are probably gluten intolerant. Actually, leaky gut makes me intolerant of lots of things.

Elaine 40


Possible leaky gut

Wheat/gluten intolerance

Milk intolerance

Sugar intolerance

POTS (postural orthostatic tachycardia syndrome)


rectal spasm/proctalgia fugax?

Polycystic ovarian syndrome



multiple chemical sensitivity


two second trimester miscarriages

Family history

Mother with B12 deficiency, neurologic symptoms, tachycardia and early-onset dementia (has a terrible doctor who told her all these things are from anxiety)

Sister with multiple sclerosis and polycystic ovarian syndrome

Son with asthma, allergies, hyperactivity

Niece in remission from leukemia/asthma

Niece with polycystic ovarian syndrome

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Celiac.com Sponsor (A8):

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You know, much of the literature on celiac disease still claims that in order to be considered for celiac disease you have to have diarrhea and be losing a lot of weight. But those are only two of the possible symptoms of celiac disease. Two other possible symptoms are constipation and weight gain, the exact opposite of the first two. The majority of doctors are still ignorant on most of the possible celiac disease symptoms.

The things you mention, asthma, fatigue, crankiness, extreme tummy pains and gas with whole wheat, are also all possible celiac disease symptoms. Some people have diarrhea and weight loss, and many don't. If your son is still eating gluten foods, you may want to consider testing as soon as possible.

Of course, the easiest and fastest way of finding out if he will improve on a gluten-free diet, is to just try it. Unfortunately, that will make the testing through blood and biopsy impossible, but would still leave the Enterolab route.

I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma


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My daughter could not gain weight. At a month before her 5th birthday, she was hovering around 29 lbs. I could not lose weight. I had a baby on 8.24.05 and just kept holding right on to that baby weight.

Immediately after going gluten-free, my daughter started gaining, and growing. She's gained 5 lbs and grown 3 inches since June.

I'm starting to *finally* lose weight!!

Both myself and my daughter had questionable blood test results. Extremely high IgG levels, high "normal" levels of everything else. She had damage to her intestines, ulcerations, mucous, redness, and irritation. But, no noted villi damage. So, she's considered gluten intolerant. Though, he GI said we probably "caught it."

I was dx with GERD, I have a hiatal hernia, and scarring in my esophagus from long term, untreated, reflux. I also had redness and irritation in the duodenum but no obvious villi damage. So, I too am considered "gluten intolerant."

Jayhawkmom -

Mom of three....

Jay - 11

Bean - 8

Ian - 3

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Ty had VERY low iron levels. And irritability, but I'm not sure if that's personality or gluten. He's been gluten-free for a year and can still be pretty darn crabby.

Oops. Edited to say: he was diagnosed via biopsy. "Severe villous atrophy consistent with Celiac Disease."

Linda, Mom to Ty (11 years old)

Ty was diagnosed by blood test June 7/05

biopsy Aug 11/05, diagnosis confirmed Aug 18/05

Mom, Dad and big brother Celiac-free.

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My son had a positive biopsy for celiac disease a couple of weeks ago.

He was in the norm for height and weight. He didn't have diarrhoea - more loose stools , but no more than once or twice a day.Very rarely complained of tummy aches.

His biggest symptom was bone pain and achey joints.

My hubby (also biopsy dx'd coeliac) did lose some weight but he was a low weight all his life.

He too didn't have diarrhoea.

His biggest symptoms were crippling fatigue,joint pain, constant dull burning in his stomach.

Just to confuse matters my hubby had negative bloods but positive biopsy! :huh:

It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill


Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)


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