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Canadian Karen

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Jill, Mr. McGreevey is the current Governor of New Jersey. He is leaving office in November. He was originally the Mayor of Woodbridge.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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a sign that they really don't care

I'd have to agree with you there, celiac3270.

Religious-stance aside, I sit here think about what's most important to God and that's love... I don't think I'd have any argument there. It would be my greatest hope to see the church display that to this little girl and to all celiacs alike. It breaks my heart when I see this... I mean, what kind of opinion are people getting of a loving God from this? .. that church docturine (however strong) is greater than an outstretched arm of love?

I'm sure they will come to some sort of solution, it's just sad to see this.

Gretchen

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celiac3270,

Think of it this way... church aside, I'm sure we'd be just as upset if a company were acting like this!

Being that it's a church, you'd expect better.... it's unfortunate.

I'd better get off this topic before I get more upset! :angry:

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The question concerning the communion is nothing new for the Church.. At present, the Church says that the wafer must come from wheat. The rule could be changed, but it is doubtful that the present Pope will make the change. Other changes that many Catholics would like are: married priests, and women priests. Currently, being celiac is an impediment to the priesthood. A celiac would not be ordained a priest since the Priest must consume the host at the Mass. But the Church moves slowly. Hopefully, the changes will occur soon.

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I was just curious if anyone else gets Gluten Free Living Magazine. In the new issue (I just got mine yesterday) there is an article about this issue. The title of the article is First Communion Story Sad, but Untrue. The article is on page 6.

The article is about the little girl and the mother and it goes on to pretty much condemn the mother for making a fuss about this issue. It says they are spouting off mis-information and putting out bad facts. They say that there are other alternatives, such as the low gluten host. The mother shouldn't have made such a big deal, blah blah blah!!!

I'm not really happy about the article in Gluten Free Living magazine, instead of applauding someone for trying to make a difference, they are stomping on her!!! I can't believe this!!

I hope others get this magazine and have the opportunity to read the poor article. Please let me know what you think.

-Jessica :rolleyes:


Jessica

Gluten Free since 12-31-2002!!

Kansas

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Wow!

I think the magazine really missed the boat on this one!!!!

First of all, any person who successfully brings awareness to the plight of celiacs is, in my books anyway, doing a great job! Secondly, how can a gluten free magazine possibly give approval to a "low gluten" host? Maybe their magazine should be a "low gluten magazine", and not "gluten free". There is a huge difference between the two!!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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As I recall, that magazine accepts the CODEX standard, and as the low-gluten hosts meet the CODEX standard, they are going to be willing to accept that as a solution.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I for one am glad to read something besides hysterial statements on the issue. I will gladly accept the low-gluten host. It's a reasonable alternative to the regular host. If I have a problem with it, I'll accept that I cannot tolerate it. I trust that the sisters who created the low-gluten host were inspired and directed by the Holy Spirit. I also trust that God has led our church to have this rule - even if it is for a reason I cannot understand. I accept God's Will and not my own pridefull will. He made me gluten sensitive for a reason - perhaps to appreciate Him all the more.

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I'm more upset about the article, not the use of the low-gluten host. That is each person's personal decision. I'm just upset that the magazine has decided to chastize this lady for creating an awareness of the disease.

-Jessica :D


Jessica

Gluten Free since 12-31-2002!!

Kansas

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I'm going through all of this right now. My son is making his communion this year, however, I have removed myself from Catholiscm and he's making it to keep my husband and his family happy. I have no idea what will happen in April when he is supposed to make it.

I am a former Catholic myself.

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I accept God's Will and not my own pridefull will.

It is a Catholic doctrine, and NOT the Bible, that is dictating the course of action for gluten in the wafer. The Catholic religion does interpret scripture, but from it they changed, added, and subtracted, and created their own doctrines (The Catechism) in which they operate from. It is not God's will, but the will of mere men, that have you eating gluten every Sunday. Do a research on the Vatican's history before you place them in equality to God.

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Sharon C.

Part and parcel to Catholicism is obedience and acceptance of church authority. To be Catholic is to accept and abide it. To deny it is beyond matters of conscience and simply a rejection of the faith. To say church tradition is not biblically based is correct, but tradition is an equal part of our faith, therefore necessary to be Catholic. Ask your priest.

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Part and parcel to Catholicism is obedience and acceptance of church authority.

Yes, exactly. CHURCH authority. What about the authority of Jesus, or of God? Would they appreciate the Catholic church taking on some kind of authority over the bread? Catholic Church demands you to choose between their tradtions and the Bible. Only, you don't need the church or their doctrines to be saved. So you're eating that gluten wafer in vain. THAT is not what will save you.

Examine this closely:

The Catholic Doctrine states: "The Second Vatican Council's Decree on Ecumenism explains: 'For it is through Christ's Catholic Church alone, which is the universal help toward salvation, that the fullness of the means of salvation can be obtained.'" Pg. 215, #816

But the BIBLE states:

"For whosoever shall call upon the name of the Lord shall be saved." Romans 10:13

"He that believeth on the Son hath everlasting life: and he that believeth not the Son shall not see life; but the wrath of God abideth on him." John 3:36

Jesus said:

"He that heareth my word, and believeth on him that sent me, hath everlasting life

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kvogt, please don't take my post the wrong way. It's only meant to show another perspective. It is wrong for a church to force a wheat wafer on gluten intolerant people when they don't have to do that. The Bible does not force them to offer wheat only.

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Sharon C.,

There is more to Catholic dogma than the bible. We have something called Tradition, which we believe is also inspired by the Holy Spirit. Both comprise Catholic faith. I can't pick and choose what I want to; I accept the whole faith as it is. To do otherwise is not Catholic.

No one is forcing me to accept a wheat wafer. I have the choice to take it or abstain and/or I can accept from the cup. I have also been offered a reasonable alternative. If God could raise Christ from the dead, I can have faith that the low-gluten host, offered by God, through my church, is safe for me.

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Kvoqt:

It is admirable that you are adhering to all of the Catholic Church's teachings, as oppposed to the "cafeteria-style" of most Catholics, such as some who agree with birth control and abortion, etc. If only all Catholics adhered this way...

I hope that the Vatican will relent and allow the 100% gluten-free host as Canon Law. This will take years I suppose.

I have this hope because it is selfish of Catholic celiacs, who can tolerate the CODEX (gluten) hosts, not to challenge the church on behalf of their celiac brothers and sisters in Christ.

The teaching of the sacramental nature of the Eucharist compels the faithful to take the host in order to remain in a state of grace. Each celiac differs in tolerance of gluten -- that's a given. Those who MUST be 100% gluten-free and do not have the same option as you, are being shut-out involuntarily from the Catholic church. They are not leaving as they do not want to be practicing Catholics, they are leaving because they are not allowed to be practicing Catholics. There is a big difference here.

The Catholic church teaches that although the Eucharist becomes the body & blood of Christ, it still remains chemically wheat and grape wine. There is no chemical alteration of the chemicals, and therefore, no representations from the Church that the gluten is safe for a celiac. How you come to your conclusion then that it is safe for you, I don't know. The traditions of the church do not make any reprentations or warranties of that nature.

Again, Catholic celiacs who can tolerate the low gluten hosts should help their celiac brothers and sisters in Christ by challenging the Church to be sympathetic, empathetic and humble in this matter.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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;) my 2 cents turn again here---i firmly believe that god wants all of his children in his arms no matter the consequince--i am a people watcher and i have found that many of the people who believe they are so very reglious are the very ones who do not practice what they preach--i have a very good friend, she is divorced now, but her ex used to believe he was a preacher, he would tell her that she was not allowed to talk to me until i joined "his" church, granted, it never stopped her from being my friend, but REALLY, who does he think he is :angry: before my son and daughter in law married, she was living with a minster and his family--the 2 went off to the same college in a co-ed dorm and soon i was told i was gonna be a grandma--well, not the way i expected it to happen, but never the less, it did---that same minister told them that my beautiful grandaughter is the product of evil---excuse me :angry: , that baby had nothing to do with what happened and she was born totally innocent, just as he was--she is every bit as precious to god as he is, more so in my eyes (she is the child pictured with me)--we are all precious to god---i know, i know, just my opinion ;) it is the way i feel and always will--deb ps--i am a protestant

Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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@ celiac3270: Sorry, I read this too late or missed it somehow, when I read it first. But there already has been a case with a priest in the catholic church. He had celiac and complained about feeling sick all the time he went to get communion. The end of the story was, that he left the catholic church and I don


Stef

Next goals:

Results for 2011:

1x PA State Champ (I defended my title in pointfighting) and also again Grand Champion in pointfighting

August 20-27: Karate and Kickboxing World Championships in Germany (my homecountry)

gluten-free since 07/21/2004

Shermans Dale, PA

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