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"newbies" How Did You Find This Website?

par18

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par18 Apprentice
par18
Posted

Just curious how you found this site. Also did recent publicity on CBS, USA and CNN have anything to do with searching for it? Also welcome aboard!

Tom

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dlp252 Apprentice
dlp252
Posted

I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

par18 Apprentice
par18
Posted
  • Author
I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

No apology necessary. Actually anyone can answer. I myself found it by searching my symptoms shortly before my diagnosis last year. I just did not find it soon enough.

Tom

Sweetfudge Community Regular
Sweetfudge
Posted

I was told by my nutritionist. I actually think she referred me to the celiac.com site, and I found the forum from there :) Glad I did too!

Looking for answers Contributor
Looking for answers
Posted

Googled gluten intolerance and found the site! B)

gadgetgirl Newbie
gadgetgirl
Posted

After reading Brostoff's Food Allergies and Food Intolerances book, I was looking for tests to supplement what I was trying to accomplish with a food elimination diet. Found the Enterolab website and then was googling to find out what people had to say about their tests and that is what led me here!

i canary Rookie
i canary
Posted

I'm not a newbie either, but my doctor told me about the website. Her daughter had celiac disease.

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jerseyangel Proficient
jerseyangel
Posted

Well, since you don't have to be a newbie...

I stumbled onto the board about 4 months after I was diagnosed. I was researching an ingredient in my digestive enzymes, and came upon a discussion about it here. :)

Adelle Enthusiast
Adelle
Posted

I did an internet search for celiac support groups. This one looked cool and loaded on my sidekick (I don't have a computer) easily. Thank you google! Lol!

marciab Enthusiast
marciab
Posted

I was googling wheat free bread recipes, found the word gluten, googled gluten and wala ... I have been here ever since ... Love this board ... :) I would have never figured out this diet without this board ...

Marcia

super-sally888 Contributor
super-sally888
Posted

Hi,

Googled celiac. This site came up.

Sally

SchnauzerMom Rookie
SchnauzerMom
Posted

I was searching the Net for info on celiac disease and gluten free diets and this site came up. I am very glad that I found it. It has helped a lot.

mamazoocrew Newbie
mamazoocrew
Posted

My mom saw the CBS show and she called me. She told me it what she saw mimiced much of what my daughter and I have been going through for years! We have had bloodwork done and sent to promethius labs and are still waiting for results! I found your site via the web when I began my research.

Yenni Enthusiast
Yenni
Posted

I did a search about gluten intolerance on Google and this place came up. I started reading some and found a lot of good information and VERY friendly people. So I signed up. I think I wouldn't have done half as well without this place. :)

georgie Enthusiast
georgie
Posted

I found it talked about on a Thyroid yahoo list.

Peta Explorer
Peta
Posted

Was curious to know more about Celiac since my son was told their was a strong possibility he had it.

I "Googled" and found this site.

It's wonderful...and SOOOOO informative!!!

Peta

Guest nini
Guest nini
Posted

since you don't have to be a newbie to answer...

I found this site when I was ordering food from the Gluten Free Mall, I was looking around the web site and noticed Message Board links... and since I am a message board junkie I thought, hmmmmm I just HAVE to check THIS out!

I found the Gluten Free Mall through Google.

prinsessa Contributor
prinsessa
Posted

I found this site after googling "Celiac Disease". My mom mentioned I might have it since I was having chronic diarrhea. I think she might have it too, but she doesn't seem to want to get tested (not that testing always works).

CarlaB Enthusiast
CarlaB
Posted

I found celiac.com when I googled celiac disease.

I'm really wondering whether some of our current newbies are here as a result of any of the recent publicity on celiac disease.

kbtoyssni Contributor
kbtoyssni
Posted

I found the site by googling celiac.

Rebecca47 Contributor
Rebecca47
Posted

I found it by accident lookig on celiac.com and just go down and clicking on everything in the index. YAHOOO!

Now I can't get off of it.

rebecca :rolleyes:

AndreaB Contributor
AndreaB
Posted

If I remember correctly I was searching for gluten intolerance info. I found celiac.com and later clicked on the message board.

Can't get me off of here now. :)

linds Apprentice
linds
Posted

my nutritionist directed me to celiac.com and told me that I could finda message board there that would be a great deal of help.

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      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Headaches / Migraines and Hypoglycaemia

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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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