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Mamato2boys

Look What I Found !

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I was struggling with what to tell the daycare about Ryan's diet. I found this wonderful, short information packet that is geared specifically to schools, and thought I'd share this in case anyone else needs it:

http://www.gluten.net/downloads/infopacket...YourStudent.pdf


Ryan 10/13/03 - milk allergy diagnosed at five months after receiving first bottle of milk-based formula, reacted instantly with facial hives/swelling...later diagnosed with egg, cat, dog allergies as well. Also allergic to soy despite allergist denying. Recurrent diarrhea/chronic soft stools undiagnosed until 9/19/06 - GI doctor said recurrent diarrhea not a problem. Tested through EnteroLabs:

Fecal Antigliadin IgA 15 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 352 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 11 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0503

HLA-DQB1 Molecular analysis, Allele 2 0503

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

Aiden - 7/29/06 No known allergies thus far, but will be raised on gluten-free/CF/soy-free diet since both DH and I carry GS gene.

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That is excellent. And because it is an official document, rather than a note from a parent, I bet a lot of teachers would pay more attention when seeing this.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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That is excellent. And because it is an official document, rather than a note from a parent, I bet a lot of teachers would pay more attention when seeing this.

Yes, that's exactly what I was hoping for. :) It's one thing for me to tell them, and another altogether for them to have something in hand that "looks" official.


Ryan 10/13/03 - milk allergy diagnosed at five months after receiving first bottle of milk-based formula, reacted instantly with facial hives/swelling...later diagnosed with egg, cat, dog allergies as well. Also allergic to soy despite allergist denying. Recurrent diarrhea/chronic soft stools undiagnosed until 9/19/06 - GI doctor said recurrent diarrhea not a problem. Tested through EnteroLabs:

Fecal Antigliadin IgA 15 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 10 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 352 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 11 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0503

HLA-DQB1 Molecular analysis, Allele 2 0503

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

Aiden - 7/29/06 No known allergies thus far, but will be raised on gluten-free/CF/soy-free diet since both DH and I carry GS gene.

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