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rez

Anyone W/ Canker Sores?

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I'm really struggling and doubting myself again. My 8 year old son had a terrible history of multiple, painful, recurrent canker sores. This along w/ acid reflux, stomach pain, and vomitting were his main symptoms. We started the diet Sept. 4 and he got his first canker on the 27th. Then, not another until Nov 3. Now, he's got another one!!! UGG!!! I'm going crazy trying to figure this out. I read somewhere that dairy and processed foods like hot dogs can also be a culprit. Anyone with any insight or experience? I asked him if we should try gluten again, because maybe that's not really the problem. He replied, NO WAY!!!! "I'm never going back to that stuff!" I just don't want to be missing something. We got frustrated ourselves after numerous doctors, wrong test, etc. He never did have an actual test run. They ran the wrong test, and by then it was too late since we had already started the diet. This is so hard, not knowing for sure. I would love any helpful advice on the canker sore topic. He seems to do the best when we're really strict with his diet, but unfortunately w/ all the holidays coming up that is going to get harder. Any help would be appreciated. thanks. :)

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Recurrent canker sores can be caused by vitamin deficiencies (iron, folic acid, vitamin B12.) Has your son had his levels tested? Is he taking any supplements?

Michelle

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Recurrent canker sores can be caused by vitamin deficiencies (iron, folic acid, vitamin B12.) Has your son had his levels tested? Is he taking any supplements?

Michelle

He has not taken any supplements and has not had his levels tested. My doctor's here are not very informed/knowledgeable about gluten intolerance. Could celiac cause the malabsorbtion of these levels or is it an entirely different problem. I'm so confused. What specific tests could I ask for and what type of doctor would do them? Thanks

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He has not taken any supplements and has not had his levels tested. My doctor's here are not very informed/knowledgeable about gluten intolerance. Could celiac cause the malabsorbtion of these levels or is it an entirely different problem. I'm so confused. What specific tests could I ask for and what type of doctor would do them? Thanks

Yes, celiac can cause malabsorption of vitamins and minerals, and recurring canker sores are one of the many symptoms associated with celiac (but can be associated with other health issues too.) Testing for iron and B12 should be pretty standard even for a regular yearly blood workup. Personally, I'd get blood testing done for the celiac panel, thyroid function, vitamin levels, CBC & differential, etc.

Michelle

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I also get canker sores from acidic foods -- I LOVE fresh pineapple and strawberries, but if I eat them, I get canker sores. I gotten them less since going gluten-free, but I still sometimes get them.

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I also get canker sores from acidic foods -- I LOVE fresh pineapple and strawberries, but if I eat them, I get canker sores. I gotten them less since going gluten-free, but I still sometimes get them.

Thanks. It's so easy to get down. Strawberries could definitely be a possibility. I just bought them this past week and now a new canker. :( Hot dogs may also be the culprit. Thanks for the replies. I just tried baking a gluten free chocolate cake for Thanksgiving and it totally flopped. Half of it was stuck in the pan when I tried to flip it. Trifle anyone????????

Thanks for the advice. I don't think the Celiac panel would show anything since he's been gluten free for three months. It's so hard. I hate the not knowing. Just the second I think I have it all figured out, another glitch happens. Thanks again. :)

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Aren't mouth sores a symptom of celiac? I have read that numerous times. I am sorry you're stuggling so much. I wish there was a magic wand someone could wave to make you feel like you're doing the right thing 100% of the time. I know how you feel and it is hard and frustrating. If Thomas is feeling better off gluten I think you have your answer. If HE chooses to give gluten a try again someday, then it will be up to him and he can see how he feels.

Good luck. I know how hard this has been on you. You are a wonderful mother and I know you're only trying to do the best for him. I hope that you realize that you ARE doing what you know to be best for him.

Take care,

Shannon

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Thanks Shannon. It's just all such a mystery as you know. Too bad it couldn't all be black and white. Haley's home sick w/ the stomach flu today. :( Calgon!!!!!!!!!!!!!!!! AND my poor cake, or crumbs, I should say. I must make lemonade out of lemons. I will not fail!!!!! I'm going to find a delicious chocolate trifle and layer away!!!!!!!!! Kandi

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My allergist said that cancer sores can come from an allergy to molds.


Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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Thanks for the reply. What would I do if they were being caused by mold? How would I treat it? Thanks! :)

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Kandi, you really, really need to get your son's levels of calcium, magnesium, vitamin D, ferretin, B12, vitamin K tested. As well as a bone density scan. Because, even though it's hard to believe, celiac disease can cause osteoporosis in children already, due to malabsorption of calcium.

And even before you do the testing (or are waiting for results), you ought to put him on a good, gluten-free, multivitamin. Others here will know brands for kids that are gluten-free.

I am impressed by your son saying that, no way will he ever eat gluten again. For a kid to be so adamant shows how terrible he felt with gluten, and what an improvement the gluten-free diet must be.


I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

------------------------------------------------------------------------------------------------------------------

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Thanks so much for your wonderful replies and support. I am going to make an appointment w/ my doctor tomorrow. I had a great talk w/ my mom too. She's so supportive and reassuring. I'm so glad to have her support as well as all of yours. She also said that Thomas must have felt really, really awful. What 8 year old wouldn't want to dive into a pizza or donut. He refuses!!!!! He is a bright boy. I have him taking a multi-vitamin, but I feel I will never find out what is causing these sores. There are so many things it could be, but this tells me he is still having some sort of auto-immune reaction. The severity, number, and frequency have definitely decreased since going gluten free, but I wish they would ALL go away. I'm affraid my doctor will think I'm more crazy than he already does. He told me I should have been a doctor. He said we could have been partners. I think he's being sarcastic. :( How would they check all these levels and could it be done from one blood draw? Thanks again! Kandi

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Hi Kandi,

I have suffered with canker sores my entire life - some lasting up to two weeks and me not able to talk, smile, eat or drink anything so I know the agony that your son must be feeling. I have learned a few things about canker sores and I'd love to share what I have found out from trial and error.

- make sure your son is not using a toothpaste that contains sodium laurel sulfate (I'll have to look that up to make sure I have the words and spelling correct) There are only a few toothpastes on the market that do not contain this ingredient. I have to use Biotene and I can find it at my regular grocery store - Publix - but I imagine most stores will carry it. There are a couple of other toothpastes available that are sodium laurel sulfate free. I would need to do a google search.

- as soon as your son starts to feel the very beginning of a canker sore, you can start giving him Lysine - which is a supplement. It should stop the canker sore from fully developing or, if it has already started, it will go away very quickly

- canker sores can be caused from mouth trauma as well as foods. Something as simple as accidentally poking the inside of his mouth with his toothbrush can get one started, especially if he is now prone to them. Also, biting the inside of his mouth while chewing. Strong acidic foods and/or too much Vitamin C are also culprits.

I hope this helps him out in some way. Oh - and once he has the beginning of a canker sore, no acidic foods at all until it is healed.

Lori

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Regarding sodium laurel sulfate, I use Jason Supersmile Toothpaste. It's SLS free. I also never get canker sores anymore. :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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How would they check all these levels and could it be done from one blood draw? Thanks again! Kandi

Yes, all the tests can be done with one blood draw (fills a few test tubes,) provided the doctor asks for them all on the requisition. If your son is concerned about pain, you can use an EMLA patch on the blood test site. You can get it from a pharmacy...you simply apply the patch 1 hour prior to testing...totally numbs the area.

Michelle

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I always got canker sores in the winter, around holiday time. My Mom always blamed sugar. Now I'm thinking it was probably the wheat. I haven't had any since going gluten free.

Another thing to suspect... because of the timing (winter, shorter days, inside, etc) maybe a vitamin D deficiency?

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Regarding sodium laurel sulfate, I use Jason Supersmile Toothpaste. It's SLS free. I also never get canker sores anymore. :)

Thanks Patti! :) Where do you buy Jason Supersmile Toothpaste? I've never heard of it.

Lori

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Thanks Patti! :) Where do you buy Jason Supersmile Toothpaste? I've never heard of it.

Lori

I get mine at Wegman's--a large grocery store here. I've also seen it at my local health food store, and at Whole Foods. :) I really like it--it has a nice fresh, but not artifical, taste and I swear my teeth look brighter!


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I get mine at Wegman's--a large grocery store here. I've also seen it at my local health food store, and at Whole Foods. :) I really like it--it has a nice fresh, but not artifical, taste and I swear my teeth look brighter!

I looked on drugstore.com and find a Jason Powersmile - looks like cinnamon flavor. Is that the correct one? It says it won the "flavor award" a few years in a row. If this is the one, I'm going to get some. I'm tired of Biotene's flavor and would love a change.

Kandi - this may be a great tasting toothpaste for your son too! :)

Lori

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I looked on drugstore.com and find a Jason Powersmile - looks like cinnamon flavor. Is that the correct one? It says it won the "flavor award" a few years in a row. If this is the one, I'm going to get some. I'm tired of Biotene's flavor and would love a change.

Kandi - this may be a great tasting toothpaste for your son too! :)

Lori

Oh shoot! I said "Supersmile"--I meant "Powersmile" :ph34r: Mine is the peppermint flavor, but I know they have several varities. I think you'll like it--the cinnamon sounds good, too :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks again for all the great support and help!!! :):):)

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