Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining To Much Weight


sjc

Recommended Posts

sjc Newbie

I have been on the gluten free diet for 1 year and I have gained about 20 pounds. I was overweight before being diagnosed and now gaining more. I also have hashimotto thyroid and bad arthritis in knees and feet. I was thinking about trying one of the over the counter diet pills to help lose some weight.

Has anyone tried any of the over the counter diet pills and have they worked?

Has anyone gotten a prescription for diet pills that worked?

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dragonmom Apprentice

I have gained back all that I had lost when I was sick -pre diagnosis- I had a pill that I got from the doctor, it just made my mouth massively dry. I'm thinking about trying something else, but I'm not sure what. I keep trying to lose weight but nothing seems to be working. Good luck in your attempts. We'll all keep plugging along. Oh , my doctor also told me to eat more whole grains :blink: i think she forgot that I have celiac disease.

BRUMI1968 Collaborator

One diet to look into is the paleolithic diet. Lots of folks have had very good luck with it. It can be hard to get used to (especially for breakfast), but I think if you can keep up your energy, it's a healthy way to live.

Juanita Rookie

Hi,

I think that it is great that we have a place that we can go to talk about such important issues as weigt gain as a celiac.

I was diagnosed 9 months ago. Pre-diagnoses, I lost 15-20 pounds and since then I gained it all back and put on another 15-20 pounds. My gene pool is full of overweight people and those with diabetes. Now with Celiac, my chances of both just got greater.

Luckly for me, my Celiac support group has a nutritionalist speak at the last meeting about this subject. She represents a group called Transitions Lifestyle. I have been going to her house for meetings for the last 5 weeks and she is helping us learn how to eat healthy. Basically, no sugar (you can subsitute) and no carbs. Eat food low on the gylcemic index such as beans, carrots, cabage, aspargus, pears, peaches, apples, berries and lean meats, etc.

tarnalberry Community Regular
I have been on the gluten free diet for 1 year and I have gained about 20 pounds. I was overweight before being diagnosed and now gaining more. I also have hashimotto thyroid and bad arthritis in knees and feet. I was thinking about trying one of the over the counter diet pills to help lose some weight.

Has anyone tried any of the over the counter diet pills and have they worked?

Has anyone gotten a prescription for diet pills that worked?

Eeek! No diet pills. They're just not safe. Have you tracked your intake and expenditure (calorie wise) using something like Open Original Shared Link to find out if you're calorie intake is low enough to encourage weight loss but high enough to make sure you get the nutrition you need?

Are your thyroid meds adjusted as well as they can be?

Have you investigated what exercise options you have? I see you note that you have arthrits, but that should not keep you from exercising. Studies have shown that arthritis patients who regularly exercise (walking was the exercise under study) have less pain and joint damage over time than those who do not. (I know, I know, chicken and egg problem, but one to work on slowly.) Besides walking, however, there is biking, swimming, and weight lifting in the gym (which, no, will not cause you to bulk up unless you train for that specifically). Swimming is particuarly helpful for bad knees; my bad knees are what originally got me in the pool. ;)

Unfortunately, it's a slowwww process and one that you have to be vigilant about.

I have gained back all that I had lost when I was sick -pre diagnosis- I had a pill that I got from the doctor, it just made my mouth massively dry. I'm thinking about trying something else, but I'm not sure what. I keep trying to lose weight but nothing seems to be working. Good luck in your attempts. We'll all keep plugging along. Oh , my doctor also told me to eat more whole grains :blink: i think she forgot that I have celiac disease.

Her suggestion was probably aimed at encouraging you to lower the glycemic load of your diet - less refined starches, like white rice and most of the pre-processed gluten-free stuff, and more whole grains with fiber, protein, and fat. That reduces the blood sugar rush, which reduces the insulin response, which reduces the blood sugar crash - which is what can cause us to feel hungry before our body actually needs food. (It's an interesting signaling... the blood needs "food" (sugar), but that it doesn't have it is a quirk of the way our body processed all the food we gave it earlier. So the body as a whole has enough food, but it's in the wrong places.)

You can still get plenty of whole grains on a gluten free diet, as mentioned in Open Original Shared Link. But the same purpose can be obtained with non-grain items, simply by watching the carb/protein/fat/fiber ratio of your meals.

georgie Enthusiast
I have been on the gluten free diet for 1 year and I have gained about 20 pounds. I was overweight before being diagnosed and now gaining more. I also have hashimotto thyroid and bad arthritis in knees and feet. I was thinking about trying one of the over the counter diet pills to help lose some weight.

No diet pills ! They are horrible. Are your thyroid meds correct ? I have Hashimotos Thyroid and take Armour and keep hearing good weight loss stories with that. I have lost 5 kg so far but some lose really well.My cholesterol and BP have come down too.

  • 3 weeks later...
sjc Newbie

I turned 50 this month and have decided to start the new year with a better diet to lose my weight. When I asked about diet pills before, I know they are bad but couldn't think of anything else. I am not trying to be a "skinny minnie" but a size that I don't have to by "PLUS SIZE" clothes. Does anyone know of a weight loss plan that works with people with celiac disease? (ex: Jenny Craig, Weight Watchers, etc) I am not good at putting one together myself. I have Hasimotto's thyroid disease and yes my levels are fine. I also have Narcolepsy which seems to be getting worse. I have bad arthritis in my knees (currently awaiting knee replacements) and my right foot needs a bone graft. I can not walk far due to the foot and knees. As for swimming - PLEASE....................... I would not subject anyone to that.

I have purchased an excersise ball to start doing some floor exercises etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

How about looking into E-diets? I think they might have a gluten-free diet plan. I've had excellent luck using an online support forum for support on my diet. I've lost 35 pounds and kept it off for 4 years using a diet similar to the Paleo diet. But you really have to realize that diets are forever. I used to think I could diet it off then go back to how I was eating before. Nope. Doesn't work. Doh! My philosophy now is the be as healthy as I can be, eating the best foods I can. And the weight loss follows along.

If e-diets.com isn't your cup of tea perhaps buying a diet book can get you started? I'd advise a low-glycemic diet. I really respect the 2 doctors that wrote Protein Power, and I think The Paleo Diet is good.

Next project for me is to get into Open Original Shared Link. I've heard good things about it.

Best of luck to you!

MomandDadtoOGS Newbie

I just wanted to say that I thought I was the only person gaining on this diet. I do not have Celiac but my husband and 3 year old daughter do so I am trying extremely hard to stick to their diet and I only prepare gluten-free food now. I have gained about 5lbs in the past month. The extra sugar and butter plus the assorted flours are killing me. I just spent the past 3 years losing a considerable amount of weight. I am going to need to try to perfect some recipes using the fat-free butter type products and maybe splenda or something. Even my 3 year old has gained 3lbs in the last 7 weeks since her diagnosis!

georgie Enthusiast
I have Hasimotto's thyroid disease and yes my levels are fine.
But do you take Synthroid ? Synthroid does that - gets your blood tests looking normal but keeps a lot of the Hypo symptoms. A good Dr treats Thyroid by symptoms as well as labs. Lots of people on the thyroid lists have weight problems on Synthroid.
Michi8 Contributor
As for swimming - PLEASE....................... I would not subject anyone to that.

? :unsure: I'm curious as to why you're so adamant about not swimming? It's the number one suggestion I would have for exercise for anyone who had joint or mobility issues. You don't necessarily have to do laps...you can do water walking/jogging and/or aerobics too.

I have purchased an excersise ball to start doing some floor exercises etc.

Have you tried pilates before? It's great too...you can modify it to your ability level, and, while it's good for building core strength and flexibility, it's very gentle on your joints.

Michelle

Looking for answers Contributor

I would suggest pilates as well. It's a great way to get started with exercising, especially for those with injuries or arthritis. Also, do your best to drop or eliminate as much as possible the processed foods--they're a killer on the waistline, especially if you can't exercise vigoriously.

Also, I would recommend that you read "French Women Don't Get Fat." Although the author has no real dietary restrictions, the book is a great motivator to reduce the amount of food one eats. I lost 10 pounds after reading the book because I never realized how much I over eat!

Best of luck!

Ursa Major Collaborator
I just wanted to say that I thought I was the only person gaining on this diet. I do not have Celiac but my husband and 3 year old daughter do so I am trying extremely hard to stick to their diet and I only prepare gluten-free food now. I have gained about 5lbs in the past month. The extra sugar and butter plus the assorted flours are killing me. I just spent the past 3 years losing a considerable amount of weight. I am going to need to try to perfect some recipes using the fat-free butter type products and maybe splenda or something. Even my 3 year old has gained 3lbs in the last 7 weeks since her diagnosis!

It is not the butter that is making you gain weight. It's the sugar and the starches. Butter is healthy, and the replacements are not. Splenda is a terrible choice for replacing sugar. Try agave nectar, stevia or maple syrup instead.

Gluten free replacement foods are very high in starches and sugars. In order to lose weight, you will just need to try limiting those. Make them a treat instead of a staple.

Guest Kathy Ann
How about looking into E-diets? I think they might have a gluten-free diet plan. I've had excellent luck using an online support forum for support on my diet. I've lost 35 pounds and kept it off for 4 years using a diet similar to the Paleo diet. But you really have to realize that diets are forever. I used to think I could diet it off then go back to how I was eating before. Nope. Doesn't work. Doh! My philosophy now is the be as healthy as I can be, eating the best foods I can. And the weight loss follows along.

If e-diets.com isn't your cup of tea perhaps buying a diet book can get you started? I'd advise a low-glycemic diet. I really respect the 2 doctors that wrote Protein Power, and I think The Paleo Diet is good.

Next project for me is to get into <a href="Open Original Shared Link .com/Slow-Burn-Fitness-Revolution-Exercise/dp/0767913868" target="external ugc nofollow">The Slow Burn</a>. I've heard good things about it.

Best of luck to you!

e-diets has a wheat free plan but not a gluten free one. You can also eliminate eggs and dairy. Have you tried using the wheat free plan in a modified way like that? Do you feel it is useful enough done that way to be worth the money? Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.