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JerryK

I Ordered My Enterolab Test....

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Howdy,

I hope at least some of you remember me. Thanksgiving pushed me over the edge. Three days of foamy D later, I placed my order for Enterolab testing. Anyone that's followed my posts knows this is a big step for me, as I've been very much in denial.

Anyone experienced with Enterolab testing know how long it takes to get the stuff which which you

mail off your "poo" to them? :blink:

I look forward to learning if my dental enamel desintegration and gastro problems are indeed caused by Celiac. Jerry


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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It takes 2 or 3 days to get the kit. You have to send off the results on a Mon, Tues, or Wed and then it is almost exactly 2 weeks later that you will hear.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Welcome to reality, Jerry. :D Pulling out of denial is a feat in itself!!! Now you're impatient :lol::lol::lol:

Sorry, but you deserved a bit of teasing here. ;)

Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Yes it's hard NOT to look forward to sending my poop off in a box ;) Wonder how I'll 'splain this to the

kids....

Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I did a bit of a freak out realizing I had to freeze my poop! Then I had to take it to work with me and put it in the freezer until I could get to a DHL drop off location. I was so freaked out that someone might open my container in the freezer. Of course it was wrapped up well and stuck into bag, inside a bag. But still! I was SO happy to get that stupid thing into the DHL drop box.

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Well, the whole thing is a lot easier than it sounds. No big deal. My 8 year old did it without any help from me! The important thing is to tell everyone that no, that's NOT ice cream in the freezer!! I don't know why it has to look like a sherbert container!!!

Is it hard to get it picked up? Do you have to keep it frozen?? yucky! I live out in the country and

I don't even know if the carrier will come out there to pick it up....

I am worried that I will find out I have it. I admit I don't want to cope with the lifestyle changes I will have to engage in. However testing and confirmation is what will force me into compliance. Jerry


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Good for you! If you do discover that you are gluten intolerant, which it sounds like, you'll be so happy by how well you feel that you won't mind the lifestyle change.


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

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Jerry,

I can't see a DHL truck now without thinking of it as loaded with poop. Cracks me up everytime.

lisa

And NOW neither will I :lol:


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Jerry, I lived out in the country at the time. I know they'd pick up because Fed Ex and everyone else came out there, but I was going to be in town, so I dropped it off so I didn't have to wait for them. I just walked in and handed it to the lady at the desk, we didn't even need to discuss it ... everything was clearly labeled, and she had no way of knowing what it was.

You mention being afraid of the lifestyle changes .... are you worried you won't know what to do with your time when you're not spending it all in the bathroom? You could always put a recliner in the bathroom if you'll miss all the time you're spending in there now!! :lol:

Just kidding. You'll do fine. It becomes second nature.

Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Thanks much, that makes me feel better about it:)

What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

:lol::lol::lol:

I know I've felt that way, but did you really do that???


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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:lol::lol::lol:

I know I've felt that way, but did you really do that???

Yes and it wasn't one my proudest moments.


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Yes and it wasn't one my proudest moments.

:lol::lol: I can see why you'll miss that invigorating and unpredictable lifestyle!!! :lol::lol:


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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What I will miss most is the sudden attacks of Diarrhea when I'm out running. Nothing like stomach cramps and a frantic scramble thru the underbrush by the side of the road, searching for some leaves(besides Poison Oak) and a secluded spot, to make you feel truly alive....

Ah, I know exactly how you feel. Unfortunately, I used to run on a path in the woods - but the path was very heavily traveled so I was always panicked that another runner or biker would come up upon me. I had MANY not so proud moments last summer - and more than one sweatband sacrified to the cause. :blink:

Thank YOU for reminding me of yet another BENEFIT that a gluten (and dairy, soy, yeast, almond, hazelnut) free lifestyle has brought me!

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Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Glad you've finally decided to get tested. You won't regret your decision. Keep us posted.


~Angie~

Gluten free since May 2004

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Hi Jerry :D

Of course I remember you! I'm glad you decided to get tested once and for all. We have to do things in our own time--and you knew when you were ready to know.

I've not had the pleasure of "going" in the bushes, but I know that very special feeling of--"if I don't get to the restroom NOW, it all over!" (literally :ph34r: )

Anyway, good luck with averything--let us know as soon as you hear!

Well, I was a boy scout and grew up out in the country. Bears go in the woods and so did we when we were out camping. However I don't like giving new meaning to the term "going for a run" :)


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Hey, it's been a week now and I still have not received my yogurt container and funnel. :blink:

Am I being impatient, or should I have received the packet by now? Their website does say it was

shipped on or about Nov 29th.

On the flip side, I've had very little symptoms since ordering my test :P Maybe there's nothing wrong with me after all??

I'm sure it'll be there in a day or two. I ordered the gene testing kit recently, and it came in the regular mail (just a large envelope) and took over a week.

As far as not having symptoms now that you've sent for the kit, sounds a lot like when your tooth stops hurting when you're on your way to the dentist :lol:


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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So my cool whip container and shipping stuff came yesterday evening. Yaay, I am so looking forwards to

using it. Just like those Cialis commercials, I'll have to wait until "the time is right". I'm certainly not going to do this at work;)

OK, so seriously, I'm a little leery of Enterolab. I know they are not mainstream medicine. I see a few

threads here that talk about Celiac and question the validity of a stool test diagnoses. So, if this guy tells me I'm positive, do I base my entire life style, for the rest of my life, on this one guy's opinion?

Just thinking out loud here...and I certainly want to hear opinions on this subject.


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Guest nini

no, you don't base your entire future lifestyle on "one guys opinion" base it on how you feel once you've gotten all gluten out of your system for a while and then accidentally or on purpose gluten yourself... (keeping in mind not everyone reacts all the time) but if you feel better gluten-free, then it is most likely the culprit, or at least part of it.

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Well, it's a hard call. I tested positive ... I feel better gluten-free, so I took that as evidence that gluten-free worked for me. I did not test positive in any of the traditional celiac tests. Originally, I thought maybe I just caught it early so didn't have the damage. Now, it's more than likely that the gluten intolerance is a result of the Lyme Disease I was just diagnosed with .... will it go away when I healed of the Lyme? That's a good question, and I will defianately "challenge" it once I'm better. For me, maybe the Lyme "triggered" it, or maybe the gluten intolerance is a symptom of the Lyme, much like my other sensitivities.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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I agree that you'll probably want to go with what your body tells you in the long run -- I spent a long time trying to think my way through whether I "believed" things or not, but I practically developed an anxiety disorder doing so. Now I'm certain I did the right thing because I honestly feel better than I ever have for most of my adult life -- and the marked contrast with my last known glutening sealed the deal for me.

I was afraid the DHL guy would see the Enterolab address and just know what was in the box.....

eleep


Erica

Inconclusive blood test results

Positive Enterolab results

Positive dietary results

gluten-free since 2/10/06

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