Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Recently Glutened And Couldn't Believe I Used To Feel This Way All Of The Time.


Sarah8793

Recommended Posts

Sarah8793 Enthusiast

I 've been gluten free for about 6 months now and have slowly been forgetting how bad I used to feel. I was recently glutened and couldn't believe how terrible (mentally) I felt. I instantly recognized it as how I grew up feeling but now it seemed so much worse because I had lived without this. When I get gluten I get this funky sort of paranoid feeling and I don't feel good being in my own skin. When I was younger I chalked it up to insecurity. Since going gluten free I am gaining confidence! It is so amazing that food can affect us so much. Just wanted to share for those that suffer from a mental standpoint.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

I know! I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free. I used to sit up nights worrying about one thing I said earlier that day. It was very strange. I can't believe I used to live like that all the time. I was really stressed out. Now when people say "oh I'm so sorry you can't eat (whatever kind of food)" I actually don't feel bad for myself at all (well maybe a tiny bit). I'm just so glad that I figured out what was wrong with me. I don't really miss food that used to make me feel so sick.

Link to comment
Share on other sites
Nantzie Collaborator

Same here. It's not wanting to feel like that that most keeps me on the straight and narrow with gluten-free. I can handle the GI symptoms of getting glutened. I can even handle the pain and mobility issues. But I can't handle that dark cloud that settles over my mind.

I'm blown away too that I was able to live that way for so many years. It's definitely worse because I feel like I'm living totally free, and then get hit by a bus. For all that time before I was just used to getting dragged by the bus all the time. I have found that once I realize that I've been glutened, it makes it better because I can step outside of it. Before, I thought that those were MY thoughts. But now I realize that they aren't.

Nancy

Link to comment
Share on other sites
simmadownnow Newbie

I've glutened in a minor way from time to time and I can tell the difference but nothing like thanksgiving when I glutened in a MAJOR way. I was sick (like I used to be) for almost three days. At the time I thought it was worth it :P . pfft..Won't be doing that again!

And like you, I can't believe I used to feel like that all the time. I wasted 3 or 4 years trying to find out what's wrong with me and it took a casual friend to tell me about a program she heard on public radio about celiac disease. I don't have celiac disease but I'm certainly allergic to gluten because I went off it immediately and felt better immediately.

Link to comment
Share on other sites
jerseyangel Proficient
I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free. I used to sit up nights worrying about one thing I said earlier that day. It was very strange. I can't believe I used to live like that all the time.

I used to do this, too. I didn't realize, at the time, that it wasn't normal :blink: --I had been that way for so long.

Link to comment
Share on other sites
Sinenox Apprentice

This happened to me recently as well. I had my first attack and I could not imagine that I used to be in that much pain all of the time. It was downright scary. I just wanted to sympathize. The worst part for me is that I it seems so much worse now, and I'm always tempted to think that maybe just keeping up that constant low tolerance was a better idea, since now when I get sick it's like Kryptonite to me. I practically can't function. I worry that one day I may be won over to the idea of just having everything and not being as debilitated when I eat it at all.

Link to comment
Share on other sites
Sarah8793 Enthusiast
since now when I get sick it's like Kryptonite to me. I practically can't function. I worry that one day I may be won over to the idea of just having everything and not being as debilitated when I eat it at all.

Kryptonite is good way to explain it. That is exactly how it seems. I know what you mean about how it seems worse now when you are glutened. I had thoughts similar to yours this last time, except that I was deteriorating rapidly right before going off gluten and I know that for me I would end up with nerve damage or worse if I continued. My blood sugar levels were out of whack. Interestingly, I had my kids tested and they have been gluten and casein free for about 3 months now. They didn't have any digestive symptoms before but now since they are more sensitive, they get digestive symptoms upon being glutened or getting casein. Naturally, at first, I think what have I done to them. But then I quickly come back to the reality that ignoring their intolerances would only put them in the same boat as me when they became adults.

I know! I didn't know that all my anxiety could be caused by gluten. Most of it is gone as long as I stay gluten free.

Yes, me too. Everyone thougt I just needed to find relaxation techniques or medication. Thankfully I never went the med route and now I have no anxiety whatsoever. It really is amazing.

I can handle the GI symptoms of getting glutened. I can even handle the pain and mobility issues. But I can't handle that dark cloud that settles over my mind.

Yes, this is how I feel. I don't get debilitating digestive symptoms, but they are uncomfortable. They don't compare in any way to the mental symptoms. I think the mental is a very big motivator to stay gluten free.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maribeth Apprentice

I too feel so much better mentally and physically since going gluten-free about 6 weeks or so ago. I had a spell where I was very emotional but I think that was caused by stress at work and I just had to tell myself to slow down and speak up instead of keeping it inside and letting it explode. I'm sleeping a little better and have more energy and don't let things bother me like they used to. I think I have a bit more nself esteem now also. I speak up for myself now. Beth.

Link to comment
Share on other sites
sunshinen Apprentice
I used to do this, too. I didn't realize, at the time, that it wasn't normal :blink: --I had been that way for so long.

Exactly!

Link to comment
Share on other sites
jlinc Rookie

Josh.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...