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Electra

Oh Yah They Tell Me My Daughter Is Negative And They Didn't Even Do All The Tests!

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Ok they called me a couple on Monday and told me that my daughters blood tests came back negative, so I call up today to find out exactly which tests she had and what their numbers were. Well they only did an IgA anti-endomysium antibody test and they claim under 7 is negative and she was a 4.4!! Well I explained to her that they had listed a Celiac Panel on the results and that that includes at least 2 more tests and she said that they don't have any other results as of yet. GRRRRRRRRRR she doesn't have an appt with the gastroentologist until the end of January, and I can't continue to have her eat Gluten that whole time if she's positive, but I can't have her go negative incase they decide to do more tests!! Man this sucks!!


~~Angie~~

DX'd With Narcolepsy In 1995

Dx'ed With Celiac On 12-18-06

Positive Biopsy On 2-1-07

DX'd With Pernicious Anemia 4-24-07

Daughter Has DH, so I suspect she also has Celiac!!

"If Alcoholism was Celiac Disease they would make us drink ourselves into kidney failure before they would admit we had the disease"

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Celiac.com Sponsor (A8):

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Find a new doctor...you can even get the tests run by a pediatrician. it is more than three.

full panel: http://www.celiaccenter.org/faq.asp

There is a particular series of blood tests called the ‘Celiac Panel”. These tests measure your immune system’s response to gluten in the food you eat.

tTG-IgA or tissue transglutaminase-IgA

AGA-IgG or Antigliadin IgG

AGA-IgA or Antigliadin IGA

Total IGA

good luck.

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The lab orders said Celiac Panel on them and that's all they asked for, so I don't know if the hospital lab's only does one test for the panel or if the other blood tests have just not come back yet UG!!


~~Angie~~

DX'd With Narcolepsy In 1995

Dx'ed With Celiac On 12-18-06

Positive Biopsy On 2-1-07

DX'd With Pernicious Anemia 4-24-07

Daughter Has DH, so I suspect she also has Celiac!!

"If Alcoholism was Celiac Disease they would make us drink ourselves into kidney failure before they would admit we had the disease"

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