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instylemom

Help, Not Sure If Celiac Fits

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Hi, I am new to this discussion group. I have been gluten free for about eight months. I did the standard hospital blood test for celiac but it came back low. I think it was an 8 that I scored on the test, however I couldnt get through eating wheat everyday for more than 3 weeks. So my very kind and understanding doctor said there was too much going on and I should stay gluten free.

Well since then Ive wanted to challenge the test but I have symptom questions. Has anyone thats gone back on gluten noticed an empty stomach feeling after eating it? This seems to be the case everytime Ive tried to eat wheat. It doesnt matter how much of a food item I eat it never seems to register as full.

Besides this weird symptom I have experienced terrible constipation with or without gluten. Ive had low potassium, low blood pressure, candida albicans(yeast), very low energy drive and dairy intolerance usually resulting in eczema. I was alos on the SCD diet for the eight months that I was gluten free and I did much better. To complicate things even more im having my fourth baby in June, so im not even sure the test is applicable at this point.

Just wondering if I should re test, or if these symptoms match anyone else's experience. I really appreciate any opinions or help :)

Noelle

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Hi, I am new to this discussion group. I have been gluten free for about eight months. I did the standard hospital blood test for celiac but it came back low. I think it was an 8 that I scored on the test, however I couldnt get through eating wheat everyday for more than 3 weeks. So my very kind and understanding doctor said there was too much going on and I should stay gluten free.

Well since then Ive wanted to challenge the test but I have symptom questions. Has anyone thats gone back on gluten noticed an empty stomach feeling after eating it? This seems to be the case everytime Ive tried to eat wheat. It doesnt matter how much of a food item I eat it never seems to register as full.

Besides this weird symptom I have experienced terrible constipation with or without gluten. Ive had low potassium, low blood pressure, candida albicans(yeast), very low energy drive and dairy intolerance usually resulting in eczema. I was alos on the SCD diet for the eight months that I was gluten free and I did much better. To complicate things even more im having my fourth baby in June, so im not even sure the test is applicable at this point.

Just wondering if I should re test, or if these symptoms match anyone else's experience. I really appreciate any opinions or help :)

Noelle

Right before going gluten free I had terrible bouts of starvation. I mean I would eat an entire box of macaroni and cheese and then (I kid you not) 15 minutes later I was having massive hunger pains!! It was horrible. I am also very exhausted. I hear that dairy intolerances are common with celiac disease. I'm not sure about any of the other symptoms, but I'm sure someone else here will be able to give you some info on those.

I'm not sure what you should do but If you feel better when gluten free then It may be best to stay gluten free at least until after the baby is born. After all, you want to make sure that you are as healthy as you can be while you are carrying your little bundle of joy!!

Good Luck!!


~~Angie~~

DX'd With Narcolepsy In 1995

Dx'ed With Celiac On 12-18-06

Positive Biopsy On 2-1-07

DX'd With Pernicious Anemia 4-24-07

Daughter Has DH, so I suspect she also has Celiac!!

"If Alcoholism was Celiac Disease they would make us drink ourselves into kidney failure before they would admit we had the disease"

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Thank you so much for your reply. This really helps to know that someone else knows what Im talking about. I think I know the answer to my questions after typing them out on here. I think you are right about staying gluten free for at least the rest of my pregnancy.

Thank you for your sincerity and caring. I will take the advice seriously

Noelle

Right before going gluten free I had terrible bouts of starvation. I mean I would eat an entire box of macaroni and cheese and then (I kid you not) 15 minutes later I was having massive hunger pains!! It was horrible. I am also very exhausted. I hear that dairy intolerances are common with celiac disease. I'm not sure about any of the other symptoms, but I'm sure someone else here will be able to give you some info on those.

I'm not sure what you should do but If you feel better when gluten free then It may be best to stay gluten free at least until after the baby is born. After all, you want to make sure that you are as healthy as you can be while you are carrying your little bundle of joy!!

Good Luck!!

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Welcome, Noelle!

I also had gnawing hunger before my diagnosis. When I accidentally get glutened now, I'll have it again for up to a week. As for the other symptoms, many of yours sound like mine--the low BP, the candida, the dairy intolerance, low energy, anemia and other nutritional deficiencies, the list goes on....

I had some other symptoms that you haven't listed, like serious edema in my legs/ankles and lots of leg and foot cramps, but the symptoms of this disease are SO variable, which is one reason it often goes undiagnosed.

So....if you feel better off of gluten, I'd stay off of it, even without an "official" diagnosis.

Lisa


dx by blood test and biopsy April 2006.

gluten free since, and avoiding dairy.

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Hi Lisa,

Thank you for the nice welcome. I have already returned to a gluten free diet due to awful cramping and pain. At least I already know what to do and how to do it :) I cant beleive this was only one days worth of eating gluten and I got such a terrible result. Its nice to know there are others that understand.

Noelle

Welcome, Noelle!

I also had gnawing hunger before my diagnosis. When I accidentally get glutened now, I'll have it again for up to a week. As for the other symptoms, many of yours sound like mine--the low BP, the candida, the dairy intolerance, low energy, anemia and other nutritional deficiencies, the list goes on....

I had some other symptoms that you haven't listed, like serious edema in my legs/ankles and lots of leg and foot cramps, but the symptoms of this disease are SO variable, which is one reason it often goes undiagnosed.

So....if you feel better off of gluten, I'd stay off of it, even without an "official" diagnosis.

Lisa

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