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Elizabeth Haselbeck Said She Has Celiac!

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I'm sure it's not coincidental that she was promoting the new AB beer but if that is what it took for her to 'come out' so to speak I'm thrilled that AB approached her. Maybe she had them donate money to Celiac research or something. AB is a huge ABC sponsor and having anyone on The View drink Redbridge on air is priceless advertising. Either way it works and at least she mentioned infertility in addition to IBS. Hopefully they will do a proper health segment on Celiac next week. We should all send Elisabeth TY e-mails today and ask they do so.

Why would you need to advertise gluten free beer. It'll spread like wild fire among celiacs the minute its mentioned that their even thinking about brewing it. I think Elisabeth mentioned to Rosie during make-up she can finally drink beer since Rosie is a big beer fan. Rosie probably pushed her to say something about the disease since Elisabeth wouldn't come out with it. I could never understand why she wouldn't either. Anyway I'm glad she did and it was very light and funny.

Gail


Gluten Free since Jan. 06

Gluten intolerant. DQ 0301 DQ 0602

Lactose intolerant.

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I didn't get to watch the episode but I taped it so I'm looking forward to checking it out tonight.

Random side note about the guy on the show who was decorating cakes - I happened to meet him at an event at the Baltimore Zoo last summer. I explained that I couldn't try his cake b/c I'm gluten-free. Not only did he know a TON about being gluten-free, he has a friend who is a baker who has a gluten-free bakery in Baltimore. The website for the bakery is www.glutenfreedesserts.com. The baker is named Renee and she is gluten-free so you know she's not cooking with any funny stuff if she's one of us :P The items are a little on the pricey side, but I would certainly splurge for a special occasion. He mentioned that she is known for making great wedding cakes and sells her products at a number of retailers in the MD/DE area. I think I have a price list/order form saved on my computer - if anyone is interested let me know!

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Geoff :D

It was on within the first 10? 15? minutes or so. They usually sit around a table and "talk" to start the show, and it was while they were still in that segment, rather than when they have guests, etc.

thanks. It was short, but good. I thought it was a shame she never really said what any of the normal symptoms are. I know they aren't pretty, but she could have at least mentioned "intestinal distress"

Geoff


Celiac - Gluten Free since Late December 2006

Positive Dietary response, biopsy, Enterolab

Lactose intolerant - dietary response test only

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Not trying to be negative but.........My mom emailed me and was so disappointed. It's funny, she shares my passion for awareness. Was that the SEGMENT? Or is there more to come next week? That was a blip!!! I hope they do a real segment next week. It's great to get publicity, but she should get some SERIOUS air time for this. I like the one poster's idea. Thank her for getting the word out, but ask for a "Health Segment" and maybe an interview with a Celiac Expert. My mom said Barbara Walters didn't even know how to pronounce the disease. That's pretty pathetic. Again, I'm happy for the publicity, but I think they definitely need to do a "SEGMENT" on it.

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email her. Tell her how fabulous it is that she's started to make the public more aware of Celiac and you can't wait for more.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Not trying to be negative but.........My mom emailed me and was so disappointed. It's funny, she shares my passion for awareness. Was that the SEGMENT? Or is there more to come next week? That was a blip!!! I hope they do a real segment next week. It's great to get publicity, but she should get some SERIOUS air time for this. I like the one poster's idea. Thank her for getting the word out, but ask for a "Health Segment" and maybe an interview with a Celiac Expert. My mom said Barbara Walters didn't even know how to pronounce the disease. That's pretty pathetic. Again, I'm happy for the publicity, but I think they definitely need to do a "SEGMENT" on it.

I was also disappointed that the celiac disease discussion was so short. I timed it at 5 minutes total. HOWEVER Elizabeth did a great job pointing out how many people suffer from celiac disease, that's it's often misdiagnosed and that abstaining from gluten helps celiacs heal. 5 minutes doesn't seem like much, but 5 minutes about celiac disease on a national, popular tv show seems like a LOT! I also suspect Elizabeth did NOT want to talk about symptoms. She seemed a little embarrassed about that aspect. So I'm uncertain how much more she would want to discuss on 'the View'. Nevertheless I emailed her a thank you before the show.

BURDEE


Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.

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I heard from my mom that next week will be an actual segment on the show. Today was just a mentioning. I dont know where she got the info from or if its accurate. dont throw anything at me if i am wrong!! :ph34r:


Stephanie

Gluten free since October 05

son born severly premature due to

celiac

"True love stories never end" Richard Bach

"Did you ever stop thinking and forget to start again?" AA Milne

If you live to be a hundred, I want to live to be a hundred minus one day so I never have to live without you" AA Milne

Swimming Instructor #2 and Town Crier of Rachelville

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I missed it.. Sounds like she did a really good job of explaining.


Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

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I am sad that I never got to see it but as I work Fridays they pciked the wrong day.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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I can't imagine - with all the symptoms, all the manifestations, all the methods of testing, and all the approaches of dealing with it that are really out there - that there is *any* way to do this in the media and make everyone happy. As for the beer - any advertising is good advertising... spreading like widefire amongst 1% of the population probably won't be enough for AB, and I'm sure they'll want more publicity than that. Anyway, I'm glad it was something. Maybe they'll do more.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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I wrote a very brief note (before the show aired) to Ms. Hasselbeck expressing my gratefulness for her willingness to discuss the disease, with a very polite suggestion that she mention the major and systemic symptoms of Celiac that aren't usually covered....particularly the mental/neurological issues... which nearly ruined my life. I don't think there was enough time to cover this - hopefully in another show :)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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hi ALL

Jess in carmel told me how to link ot listserv and found a link today from a guy's blog that gave a indept report with pictures up on his site.

here is a link.

http://tinyurl.com/2pkucn

judy


Judy in Southern CA

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I'm sorry, I was disappointed in the segment. Kev and I watched it together and I feel the same as him--it was just an advertisement for beer and a undiagnosed celiac or family member would not have gotten enough from the tiny little segment to even realize what was bring talked about or that the beer was different. They spent more time slopping beer all over than really talking.

To be honest, I used to love Rosie O'Donnell, but I think she has had too much bad publicity as of late and I do not appreciate the nasty language from her, I had almost decided to shut the show off just before the segment came on. It went from Rosie's loud ranting to quiet little Elisabeth and immediately into Rosie and Elisabeth drinking. I kind of felt insulted and almost like celiac is a joke. I do hope they do give it a decent segment, without the beer.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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hi ALL

Jess in carmel told me how to link ot listserv and found a link today from a guy's blog that gave a indept report with pictures up on his site.

here is a link.

http://tinyurl.com/2pkucn

judy

Thanks for posting that, Judy. For anyone who missed the show, it's a great recap :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I'm sorry, I was disappointed in the segment. Kev and I watched it together and I feel the same as him--it was just an advertisement for beer and a undiagnosed celiac or family member would not have gotten enough from the tiny little segment to even realize what was bring talked about or that the beer was different. They spent more time slopping beer all over than really talking.

To be honest, I used to love Rosie O'Donnell, but I think she has had too much bad publicity as of late and I do not appreciate the nasty language from her, I had almost decided to shut the show off just before the segment came on. It went from Rosie's loud ranting to quiet little Elisabeth and immediately into Rosie and Elisabeth drinking. I kind of felt insulted and almost like celiac is a joke. I do hope they do give it a decent segment, without the beer.

I'm so glad you wrote this. I felt the same. I can't stand Rosie so it was hard to sit thru the show before the segment came on. I was disappointed that Elizabeth didn't describe symptoms or how you should be tested or anything else. It was nice to have it mentioned but I felt it was done in a glossed over way, not enough to stress the importance of it or how it truly can affect your lifestyle and long term health. I was kind of disgusted by the beer antics. I think that gave a very shallow look at celiacs and what is important to us.

Sorry for the rant but I was very disappointed by the way it was handled.

Ann


hypothyroid

hypoglycemic (diagnosed 1997 but symptomatic since grade school)

fibromyalgia

rheumatoid arthritis (diagnosed January 2005)

peanut allergy

restarting gluten-free January 20, 2013

elevated liver enzymes + symptoms indicated celiac January 31, 2013. Dr. didn't want to run further tests due to other health complications

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Exactly Ann and we are not alone--I am reading the same opinions in other forums too.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I really think you need to cut her some slack. <_<

It seems we beg and beg for exposure, but every single time something brings celiac into mainstream media, there are a flood of complaints that it wasn't good enough. I for one think that considering she had to deal with time constraints by a producer that said "Okay, you can have X number of minutes to do you stuff", that she did a fantastic job, in my opinion. How about us showing her our support, instead of critisizing that it wasn't good enough, or informative enough, or long enough, or detailed enough. Considering there are over 200 symptoms of celiac, it certainly doesn't surprise me that SOMETHING has to be left out! <_<

I for one am incredibly thankful to her for "coming out", and pushing the producers to get permission to use up "The View"'s valuable air time to discuss it and bring it to America's attention, no matter how brief it may be......

Besides, perhaps that first show was just a teaser, and there's more to come..... ;)


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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It was a little haphazardly done. But that seems to be the nature of the show; they're all talking at the same time and nobody will shup up for 5 seconds (especially rosie). Topics seem to last about one minute and they're off to something else. I tivo'd it and replayed it numerous times to ensure the accuracy of the following.

A few mismanaged moments (or dumb attacks):

~ elizabeth states that "gluten is a protein found in barley, some oats, wheat and definately rye".

~ rosie asks how do you know you've got it and elizabeth says "because it's not pretty (down there)", not mentioning blood tests and biopsies.

~ she talks about being on survivor and feeling good for the first time in a long time because she wasn't eating anything, only fish & rice, "thought maybe I was either allergic to the united states or...

~ appropos of nothing, poor joey then declares "that's why the japenese are so skinny, fish & rice"! (what?)

~ rosie then says " because she wan't getting the toxic poisoning from barley".

(~ barbs then asks about the family thing and elizabeth mentions the genetic testing for her daughter.)

~ we then have the big beer spill and it's over.

Never once was BREAD and everything related to it ever mentioned! Not donuts, pizza, hamburgers or the million other things that are so all-encompassing to this disease. All the emphasis was placed on barley & rye. So to me, I think many viewers may be thinking "well I don't eat barley or rye (who does?)".

There was some good info, but not much, and basically, I feel it was a wasted opportunity!


gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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:rolleyes:

I'm sorry, I was disappointed in the segment. Kev and I watched it together and I feel the same as him--it was just an advertisement for beer and a undiagnosed celiac or family member would not have gotten enough from the tiny little segment to even realize what was bring talked about or that the beer was different. They spent more time slopping beer all over than really talking.

To be honest, I used to love Rosie O'Donnell, but I think she has had too much bad publicity as of late and I do not appreciate the nasty language from her, I had almost decided to shut the show off just before the segment came on. It went from Rosie's loud ranting to quiet little Elisabeth and immediately into Rosie and Elisabeth drinking. I kind of felt insulted and almost like celiac is a joke. I do hope they do give it a decent segment, without the beer.

[/quote

My husband watched the show and thought soooo much more should have been said. This is a first post and I am not sure what I'm doing, but thanks for the help I've gotten by reading this board.

Joanie

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Dear CK,

I wasn't replying to your post. Its seems we both posted at exactly the same time and yours went on first. Sorry about that, I guess I didn't give them much "slack", did I? Bad timing on my part.

best regards, lm


gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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I don't watch the show much anymore, but when I did I remember most of Elisabeth's segments being something that is pertinent in her life. Usually light topics ... like how to shop on the cheap, baby items, didn't she do a segment on maternity clothes ? , new mom info, etc.

Elisabeth is like any other NEWBIE to celiac. Just happy to be able to drink beer and looking for foods like so many of us ... Some way to be "normal" again ...

I say we cut her and the show some slack. Hopefully, they will read our emails and follow it up with some in depth information. It is probably a good idea to email Barbara since she is the only Journalist in the group .... Journalist like to get to the bottom of things ...

IMHO .... Marcia


Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

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It was a little haphazardly done. But that seems to be the nature of the show; they're all talking at the same time and nobody will shup up for 5 seconds (especially rosie). Topics seem to last about one minute and they're off to something else. I tivo'd it and replayed it numerous times to ensure the accuracy of the following.

A few mismanaged moments (or dumb attacks):

~ elizabeth states that "gluten is a protein found in barley, some oats, wheat and definately rye".

~ rosie asks how do you know you've got it and elizabeth says "because it's not pretty (down there)", not mentioning blood tests and biopsies.

~ she talks about being on survivor and feeling good for the first time in a long time because she wasn't eating anything, only fish & rice, "thought maybe I was either allergic to the united states or...

~ appropos of nothing, poor joey then declares "that's why the japenese are so skinny, fish & rice"! (what?)

~ rosie then says " because she wan't getting the toxic poisoning from barley".

(~ barbs then asks about the family thing and elizabeth mentions the genetic testing for her daughter.)

~ we then have the big beer spill and it's over.

Never once was BREAD and everything related to it ever mentioned! Not donuts, pizza, hamburgers or the million other things that are so all-encompassing to this disease. All the emphasis was placed on barley & rye. So to me, I think many viewers may be thinking "well I don't eat barley or rye (who does?)".

There was some good info, but not much, and basically, I feel it was a wasted opportunity!

No problem, larry mac, I wasn't thinking it was at me.... ;)


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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I think why we don't get a lot of air time on anything and this included when it was Celiac awareness week here is because we are not "big name" yet. Meaning if it was cancer, heart attacks or three-headed whatevers then we would get a great deal of exposure. I think that would render us more notice is making the fact that it can unfortunately cause other very serious illnesses. A little exposure is better than none.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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I think we all need to remember that we are on the same side. Everyone is saying, the publicity is great, BUT we all want to help others. I liked how the one poster made mention that someone out with symptoms probably wouldn't be running to their doctor's office. We all have such a passion and many have suffered sooooooooo much that all we WANT to do is help others not have to go through what we did. It's just that you get your hopes up, and then are kind of let down. Again, it's AWESOME that they mentioned it, but I think it could have been done it a more serious, heart felt manner. Many stories, including my own, are stories of struggles and months if not years of frustration. Again, please, don't think I'm putting them totally down, but I think the Celiac community deserves at least a segment. Portray a sweet family and show what they've gone through, and then have the healthy little child run out. Oprah is what we need! Kudos to Elisabeth for mentioning it. A thank you email would be great, and ask for a more in-depth follow up.

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