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UR Groovy

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UR Groovy Explorer

Hi,

I thought I'd take a moment and introduce myself. I'm a 'middle aged' woman diagnosed with nephrotic syndrome a few years ago, but I really have to wonder if I'm not Celiac. I did a bunch of research and decided that I must investigate food intolerances a couple months ago. Since then, I've been making an attempt at being gluten-free/ dairy free/ soy free. I've noticed a few 'coincidences'. One really telling thing is 'DH'

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kbtoyssni Contributor

Welcome!

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lonewolf Collaborator

Welcome Fajitas! I'm so glad to see you introduce yourself. You've definitely found the right place. I hope we can all be of help to you!

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missy'smom Collaborator

Hi again and Welcome :)

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tarnalberry Community Regular

Welcome!

It is daunting at first, but isn't it great to be feeling better!

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UR Groovy Explorer

Yeah - it's nothing less than amazing. I'm going to be 40 soon, and I've never felt or looked better in my life. Thanks again, everyone.

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    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
    • trents
      Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
    • knitty kitty
      Hello, @Hannah24 Have you had a DNA test done?  Celiac Disease is genetic.  You must have at least one gene to develop celiac disease.  You don't have to be consuming gluten for a genetic test.   Anemia, diabetes and thiamine deficiency can cause false negatives.  Some lucky people are seronegative, but still have celiac disease.  Peripheral neuropathy, tingling in hands and feet are symptoms of vitamin deficiencies.  Vitamin C, Thiamine B1, Niacin B3, Pyridoxine B6, and Cobalamine B12 can each cause peripheral neuropathy.  These same vitamins are needed to produce blood cells.  Most undiagnosed Celiacs suffer from nutritional deficiencies. The DNA test would be helpful.
    • trents
      We do hear of cases of remission but they generally eventually revert back. I wouldn't push your luck.
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