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janelyb

Igg + But All Others Negative?

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I am so confused.....I don't know the exact #'s for all the tests run but I do know that the anti glidian IgG was + (36 was the # and I was told less than 11 is negative). This test was done on a 3.5 yr old who has had atleast 1 or more wheat food items daily for the past several months.

I requested a re-test of the celiac panel and the NP said oh it's too soon it's only been 2 weeks, so I am waiting to hear back from the doctor. I told her then what's the next step the biopsy then yes I want to go there.

So what does it mean if the IgG was + but all others negative????

Janel


Janel (me): gluten-free since 4/10/07; casien free 5/1/07;soy light 10/07

**LOST 35 lbs since April 2007(much needed weight loss)**

ds(6 yrs)- gluten-free since 3/19/07; casein free 5/2/07;soy free 10/07

HLA-DQ 3,3 (Subtype 7,7)

new dx= Hirschsprungs Disease w/cecostomy

the non believers, only allergen free eatting at home because they have to be:

Hubby: refuses to eat Gluten-free Casein-free except for dinner

dd(14 yrs)- refuses to go along with any special dietary retrictions *I suspect dairy/wheat intollerant*

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could mean celiac or it could mean another condition.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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could mean celiac or it could mean another condition.

what other condition could it be??? I also forgot to add this thyroid level was 6.7


Janel (me): gluten-free since 4/10/07; casien free 5/1/07;soy light 10/07

**LOST 35 lbs since April 2007(much needed weight loss)**

ds(6 yrs)- gluten-free since 3/19/07; casein free 5/2/07;soy free 10/07

HLA-DQ 3,3 (Subtype 7,7)

new dx= Hirschsprungs Disease w/cecostomy

the non believers, only allergen free eatting at home because they have to be:

Hubby: refuses to eat Gluten-free Casein-free except for dinner

dd(14 yrs)- refuses to go along with any special dietary retrictions *I suspect dairy/wheat intollerant*

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i think it is chrons disease that can also cause raised IgG levels----possible some other autoimmune conditions.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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I think the high IgG means that at some time, the immune system got triggered against gluten. The IgA is the most recent response. If that is incorrect, somebody please jump in and correct me!

At any rate, I had exactly the same blood test results--all normal, and an IgG of 64.

I went off gluten--and felt so much better, it was ridiculous.

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Same thing with my daughter and I.

Both our other numbers were high within normal ranges (under 11 was normal)... but we both had elevated IgG. Her's was 72 - mine was 69. When I put her on a gluten free diet, she gained 5 lbs and grew 3 inches within 5 months. And, that was after she hadn't grown or gained ANY weight in 2 years!!!

My older son had slightly elevated IgG, but his IgA was very high.


Jayhawkmom -

Mom of three....

Jay - 11

Bean - 8

Ian - 3

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My son also had elevated IGg. I was told it couldn't be celiac, but he kept getting sicker. We tried the diet and he's doing great now. We haven't repeated the bloodwork, but might should to see where he stands now. Testing is so inaccurate on kids under 5. My son also had 2 negative biopsies. I'm not telling you not to do it, but if the ttg wasn't elevated, the biopsy probably won't show anything. If I knew then what I know now, I wouldn't do the biopsies. They weren't too hard on him, though, just useless. We started the diet just after his 3rd bday and he's done awesome ever since. Good luck!


If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.

Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)

Husband - Type 1 diabetic, Negative bloodwork

Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06

Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05

"All things happen for good for those who love God..." Romans 8:28

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THe diagnoses in kids with blood work isn't accurate. My GI doctor even said this. THey of course didn't tell me that when my son had his blood work. The IGg was the only thing positive on my son, but he was only 1 year old at the time. Anyway, he kept getting sicker and we made him gluten free and he started growing and got better. The biopsy would be your next step.

Monica

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My son also had elevated IGg. I was told it couldn't be celiac, but he kept getting sicker. We tried the diet and he's doing great now. We haven't repeated the bloodwork, but might should to see where he stands now. Testing is so inaccurate on kids under 5. My son also had 2 negative biopsies. I'm not telling you not to do it, but if the ttg wasn't elevated, the biopsy probably won't show anything. If I knew then what I know now, I wouldn't do the biopsies. They weren't too hard on him, though, just useless. We started the diet just after his 3rd bday and he's done awesome ever since. Good luck!

Wow I didn't realize that??? I know the nurse mentioned to me with my son's age it's pretty common to get false negatives. We just re-did the blood work yesterday and have an apt in 2 weeks with GI to discuss our plans. I kinda want to do the biopsy but if it's negative then yes I will wonder if it was true or not. I guess I will see what doc thinks about it.

thank you.

And thanks Key for your response as well.


Janel (me): gluten-free since 4/10/07; casien free 5/1/07;soy light 10/07

**LOST 35 lbs since April 2007(much needed weight loss)**

ds(6 yrs)- gluten-free since 3/19/07; casein free 5/2/07;soy free 10/07

HLA-DQ 3,3 (Subtype 7,7)

new dx= Hirschsprungs Disease w/cecostomy

the non believers, only allergen free eatting at home because they have to be:

Hubby: refuses to eat Gluten-free Casein-free except for dinner

dd(14 yrs)- refuses to go along with any special dietary retrictions *I suspect dairy/wheat intollerant*

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Try not to stress too much about the biopsy. If you feel you should do it, then go ahead, but if you don't, then that's ok too. Each family has to make their own decisions. It was much harder on me than my son. He was asking for french fries as soon as we left the hospital. The IV was the most traumatic part. Some hospitals put them to sleep before starting the IV, which we did with my daughter. After you get through all of this, you learn what to do! ;)


If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.

Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)

Husband - Type 1 diabetic, Negative bloodwork

Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06

Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05

"All things happen for good for those who love God..." Romans 8:28

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