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JerryK

I Laid It All Out There For My Mom

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I


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Good for you Jerry. You're converting the world, one personal at a time.!!

How's your brother doing? Is he still trying the gluten free diet.

Lisa


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Good for you Jerry. You're converting the world, one personal at a time.!!

How's your brother doing? Is he still trying the gluten free diet.

Lisa

As of yesterday he was...AND he was telling my mom how much it has helped his gastro symptoms.

He's lucky, since he's my genetic clone, he doesn't need to pay for testing...he can just sponge off of

my results;)


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Hey, you can send him a bill for 50% of the cost. Don't let him get off that easy <_<:)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Whew....I got worried about you! Hadn't seen ya around for a few days and was thinking of your postings last week.

Glad you talked with your mom and she was receptive.

Keep on keepin on...

:)

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The gene test will be interesting.

Hope I don't show up as being missing a bunch of chromosome's, or worse

have the genetic makeup of a farm animal...

"We're sorry sir, but we're unable to complete the test as your DNA seems similar

to that of a bovine". :lol:


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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The gene test will be interesting.

Hope I don't show up as being missing a bunch of chromosome's, or worse

have the genetic makeup of a farm animal...

"We're sorry sir, but we're unable to complete the test as your DNA seems similar

to that of a bovine". :lol:

:lol::lol: Wouldn't that be a shocker!

I agree, charge your brother half, it's for his benifit too :rolleyes:


Shirley

[save the Earth, It's the only planet with chocolate and wine.

It isn't about waiting for the storm to pass...

It's about learning to dance in the rain.

Gluten free since 1989

West Kootenay.... British Columbia

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jerry----even if you are genetic clones, it still doesn't mean you BOTH have celiac.(though it does sound most likely) that being said, i have identical twin daughters and they both have celiac disease. it sure is nice that your mom was so receptive to the idea of celiac disease rather than blowing you off. my family was pretty good about it, too. when my girls were diagnosed, 2 of my sisters and my mother all got tested for celiac.(all negative) one sister has not tested, and my DIABETIC brother and WHEAT ALLERGIC father have not been tested. i think that when we get our gene tests back i might be able to convince them to test if it is me that carries the gene, in fact, the testing might even be paid for by the university of california.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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Jerry, I thought you were on the gluten free diet at the moment? And you are having the Celiac bloodwork done?

The two options are:

positive: means you are definitely a Celiac

negative: doesn't mean you are or aren't a Celiac, since gluten isn't being consumed at test time

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That's great that your mom is understanding Jerry, it doesn't always happen that way. My mom already had one child with this disease, so me saying I do too, wasn't a surprise. Yet she does question my other intolerance's only because my sister doesn't have them, which I find aggravating at times. I also have neuropathy and I am guessing she is questioning that too. She sent me a letter last week telling me that too much Vit B6 can cause neuropathy, so I am guessing she doesn't think I know what I am doing. I only get normal amounts of B6, I take more B12. Yet, my neuropathy is doctor diagnosed and she still thinks I'm nuts. Well, as soon as my sister realizes she has neuropathy too, then mine will be validated. I know she has it, just in what she is saying.

I think it is great that your family is listening to you, good work!


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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The gene test will be interesting.

Hope I don't show up as being missing a bunch of chromosome's, or worse

have the genetic makeup of a farm animal...

"We're sorry sir, but we're unable to complete the test as your DNA seems similar

to that of a bovine". :lol:

LOL, when I got a blood test on haemoglobin effiency I was told it was like a Llama....


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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Jerry, I thought you were on the gluten free diet at the moment? And you are having the Celiac bloodwork done?

The two options are:

positive: means you are definitely a Celiac

negative: doesn't mean you are or aren't a Celiac, since gluten isn't being consumed at test time

No, I haven't been Gluten Free for about a month now I think. I abandoned gluten-free when I decided to get the blood test. My body is certainly still reacting strongly to gluten, whether or not I have positive

bloodwork...I dunno. I ordered the gene test from Enterolab also. Between these two additional tests, I should have a better idea. Both positive....Celiac. Both negative..just gluten sensitive....

Gene test only positive....perhaps Celiac....


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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jerry----even if you are genetic clones, it still doesn't mean you BOTH have celiac.(though it does sound most likely) that being said, i have identical twin daughters and they both have celiac disease. it sure is nice that your mom was so receptive to the idea of celiac disease rather than blowing you off. my family was pretty good about it, too. when my girls were diagnosed, 2 of my sisters and my mother all got tested for celiac.(all negative) one sister has not tested, and my DIABETIC brother and WHEAT ALLERGIC father have not been tested. i think that when we get our gene tests back i might be able to convince them to test if it is me that carries the gene, in fact, the testing might even be paid for by the university of california.

I suspect, as my mom heard me talk about it, she saw a lot of herself in my description. Mom lost all

her teeth in her early 20s...as she called it "just bad teeth, and back then you couldn't afford to have them fixed". Well, mom was 4'11" at her maximum, lost her teeth and now ON her 70th birthday has

the classic rash(In my non doctorly opinion). I just think she realizes it makes sense.


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Jerry, you need to compile your posts here into a book about the journey to celiac diagnosis! You have a great talent for writing, you know.

Thanks, actually I didn't really realize that. I just type what's in my head(well some of it).

Is there an easy way to see and/or print all of your posts, chronologically?


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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Do you think your Mom would try the diet? I found my elderly parents just didn't have any interest in changing their diets, even if it would prolong their lives. But their mental faculties weren't what they once were too, it was probably too confusing for them.

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Do you think your Mom would try the diet? I found my elderly parents just didn't have any interest in changing their diets, even if it would prolong their lives. But their mental faculties weren't what they once were too, it was probably too confusing for them.

My doctor told my Mom that he had no doubt what so ever that she had Celiac (4ft. 8in. and all the symptoms) but at over 80 she has no intention on changing her diet. Right now she is on a kidney diet as well, and doesn't stick to that. However, she isn't eating much of anything right now and spends most of her time sleeping. So, she's not in good shape :(

How ever, I suggested she try the diet years ago and she wouldn't even then. I'm not sure it's confusion, so much as hating change of any kind.


Shirley

[save the Earth, It's the only planet with chocolate and wine.

It isn't about waiting for the storm to pass...

It's about learning to dance in the rain.

Gluten free since 1989

West Kootenay.... British Columbia

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Do you think your Mom would try the diet? I found my elderly parents just didn't have any interest in changing their diets, even if it would prolong their lives. But their mental faculties weren't what they once were too, it was probably too confusing for them.

Mom is quite a vibrant 70, so I think she might try it, just to get rid of the rash. She's now waiting on the results of my genetic test, with interest.


Dental Enamel Defects

Gastro symptoms

Positive Dietary Response

Enterolab Antigliadin IgA positive 12/06

Transglutaminase IgA Positive

Blood TG IgA Negative 2/07

HLA-DQ 3,1 (Subtype 7,5)

Gluten Intolerant...Likely non Celiac

Western Oregon (Or-ee-gun) US

Why Worry?...YOU are a sentient being on a habitable world in a cosmos largely filled with nothing.

You

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