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ptkds

Vent! I Hate This Disease!

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I have a friend that needed some support the other night. I couldn't go see her when she called, but I went later and she wasn't home. So I went and got her some flowers and a card and left it on her doorstep. So today she brought me a pie. It was very nice of her, but it is FULL OF GLUTEN! I have told her a few times that my dd's and I have celiac disease and we can't have gluten. She is a nurse and she understands what this disease is (or so she says!). I didn't have the heart to tell her that I couldn't even touch it. I just thanked her and put it in my fridge for my oldest dd and dh to eat.

It is times like this that I REALLY hate this disease!

Sorry, just had to vent! Thanks for listening!

ptkds


ptkds

Mom of 4 beautiful girls (the 2 youngest are only 10 months apart!)
Diagnosed with Celiac disease on November 8, 2006; gluten-free as of 12-1-06.

DD#2 13 years old; diagnosed on November 28, 2006. gluten-free as of 12-7-06.
DD#3 9 years old; diagnosed through blood work in October 2006. Gluten-free as of mid-November and doing GREAT!!
DD#4 8 years old; had a scope done on 6-22-07 (at 14 months old) and the dr saw stomach ulcers, but all test results were negative. GI dr told us to put her on the gluten free diet anyway. She is gluten free as of 6-22-07.

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I take it you


Diagnosed as an infant failing to thrive 40 years ago. Followed diet for 17 years more or less then quit. 20 odd years later after constant illnesses and reading this forum gone back to gluten-free with my tail between my legs.

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I miss out on a lot of fellowship and my social life has completely changed due to this diagnosis. It's just the way it is, I guess. Around here, socializing nearly always revolves around food. And with multiple intolerances, I can't eat most of what other people eat. But I figure it could always be SO much worse. I'm taking the hand God has dealt me and staying in the game. Don't let people frustrate you. Most of the time they aren't nearly as cruel as they appear. They just aren't thinking. Aren't we ALL a bit self-absorbed, after all?

Example: A very dear friend of mine, whom I KNOW cares deeply for me, just today invited us to their church valentine's dinner. She raved on and on about the wonderful menu, the fact that it was good homemade food and strongly encouraged us to go. The menu contained chicken and dumpling soup, chicken, mashed potatoes and gravy, stuffing, rolls and incredible desserts. I care about this person. And it is not my wish to make her feel utterly stupid by pointing out her gross error. I'd rather gently give my regrets and hope that people treat me as kindly as I plan to treat her when I make similarly huge mistakes. I also plan to keep on quietly educating everyone I encounter in the hopes that it will eventually stick.

Hang in there. It'll be OK.

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It will be OK but you have to make it that way.

Remember that gluten is hidden in lots of things that you don


Diagnosed as an infant failing to thrive 40 years ago. Followed diet for 17 years more or less then quit. 20 odd years later after constant illnesses and reading this forum gone back to gluten-free with my tail between my legs.

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