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Vent! I Hate This Disease!

ptkds

By ptkds
in Coping with Celiac Disease

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ptkds Community Regular
ptkds
Posted

I have a friend that needed some support the other night. I couldn't go see her when she called, but I went later and she wasn't home. So I went and got her some flowers and a card and left it on her doorstep. So today she brought me a pie. It was very nice of her, but it is FULL OF GLUTEN! I have told her a few times that my dd's and I have celiac disease and we can't have gluten. She is a nurse and she understands what this disease is (or so she says!). I didn't have the heart to tell her that I couldn't even touch it. I just thanked her and put it in my fridge for my oldest dd and dh to eat.

It is times like this that I REALLY hate this disease!

Sorry, just had to vent! Thanks for listening!

ptkds

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Debbie65 Apprentice
Debbie65
Posted

I take it you

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Gentleheart Enthusiast
Gentleheart
Posted

I miss out on a lot of fellowship and my social life has completely changed due to this diagnosis. It's just the way it is, I guess. Around here, socializing nearly always revolves around food. And with multiple intolerances, I can't eat most of what other people eat. But I figure it could always be SO much worse. I'm taking the hand God has dealt me and staying in the game. Don't let people frustrate you. Most of the time they aren't nearly as cruel as they appear. They just aren't thinking. Aren't we ALL a bit self-absorbed, after all?

Example: A very dear friend of mine, whom I KNOW cares deeply for me, just today invited us to their church valentine's dinner. She raved on and on about the wonderful menu, the fact that it was good homemade food and strongly encouraged us to go. The menu contained chicken and dumpling soup, chicken, mashed potatoes and gravy, stuffing, rolls and incredible desserts. I care about this person. And it is not my wish to make her feel utterly stupid by pointing out her gross error. I'd rather gently give my regrets and hope that people treat me as kindly as I plan to treat her when I make similarly huge mistakes. I also plan to keep on quietly educating everyone I encounter in the hopes that it will eventually stick.

Hang in there. It'll be OK.

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Debbie65 Apprentice
Debbie65
Posted

It will be OK but you have to make it that way.

Remember that gluten is hidden in lots of things that you don

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      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
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