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PeaceAngel22

Body Achyness

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That is a symptom that I had for years. At one point thought it was my mattress. It seems if I can sleep 8 hours I wake up in more pain. I can't take tylenol, so I take Mobic (prescription) or ibuprofen. I'm not sure if it's better to get sleep, now it seems hands and feet ache, or less sleep and less pain. I'm not sure if maybe I'm getting gluten and that is causing it. I need to start writing down everything and try and figure it out. I have only been on the gluten free diet since the beginning of the year. I have had many benefits from it, so I'm sticking with it.

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My whole body hurts. Some days more than others. I decided it was probably in part due to being generally inflamed from the gluten. For a while I was taking one or two ibuprofen every night before going to bed. My theory was that at least for a while I would have less inflammation while my body was at its peak healing time.

It did make a difference, and some doctors recommend taking an ibuprofen or aspirin at night for your vascular system so its not doing something bad to yourself.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Does anyone else deal with all over body achyness? I just would like to experience a day without feeling achy all over. What do you take or do to cope? Would taking Tylenol help me?

Yes, I too have that. I'm in my thirties and I feel like a ninety year old person. I have no strength sometimes and other times I'm brimming with energy. I think it mostly happens when gluten finds itself in my diet. YUCK!

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Guest jokamo

I was dx'd with lupus and fibromyalgia in 2001, and have been gluten free for about 2 weeks. I used to be in terrible pain everyday. Sometimes my body would ache all over so bad that it was like I had the flu everyday. I have noticed a difference in the amount of pain since going gluten free. I still have my pain days, but if I eat gluten the pain is soooo much worse. I definately think that my lupus and fibro are connected to gluten in my diet! I take ibuprofen to help with the inflamatory pain that causes the aching and it works well.

hope this helps!

Jodi

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First I want to add to this statement: some doctors recommend taking an ibuprofen or aspirin at night for your vascular system so its not doing something bad to yourself. Ibuprofen is ok occasionally, yet should not be taken regularly--it can cause stomach upset over time. The asprin doctors recommend is in a low dose and should always be enteric safety coated. I take a 81mg (low dose) enteric safety coated low strength adult aspirin, Walmart brand Equate. Always check with the manufacturer, at any time the ingredients can change. I think Bayer is safe too, but you should call and find out. I alternate my meds for pain, I use Tylenol Arthritis, Aleve, Excedrin Extra Strength (only during the day, I can't sleep when I use this one), and Advil.

Some of you may be experiencing neuropathy pain, which in some celiac's, the nerves tend to repair in time after going gluten-free--some of us have too much damage by the time we go gluten-free.

Sometimes, after being ill for a very long time, it can take the body a long time to heal. Most of us were sick for years before going gluten-free and we really can't expect all that damage to be repaired in just a few months of gluten-free. Our bodies were being terribly abused and it takes time to get over abuse. Not only are our intestines recovering, but the whole body has to recover. When nerves are included, they take more time and nerves healing, also cause pain. I know it doesn't make sense, yet many say there is pain in recovery too. Then you throw in all of the probems of our enviroment, working while in pain, trying to live as normal a life as possible--is there any wonder we hurt?

One day at a time and remember the words to this song:

Song: I Hope You Dance Lyrics

I hope you never lose your sense of wonder

You get your fill to eat

But always keep that hunger

May you never take one single breath for granted

God forbid love ever leave you empty handed

I hope you still feel small

When you stand by the ocean

Whenever one door closes, I hope one more opens

Promise me you'll give faith a fighting chance

And when you get the choice to sit it out or dance

I hope you dance

I hope you dance

I hope you never fear those mountains in the distance

Never settle for the path of least resistance

Living might mean taking chances

But they're worth taking

Lovin' might be a mistake

But it's worth making

Don't let some hell bent heart

Leave you bitter

When you come close to selling out

Reconsider

Give the heavens above

More than just a passing glance

And when you get the choice to sit it out or dance

I hope you dance

(Time is a real and constant motion always)

I hope you dance

(Rolling us along)

I hope you dance

(Tell me who)

I hope you dance

(Wants to look back on their youth and wonder)

(Where those years have gone)

I hope you still feel small

When you stand by the ocean

Whenever one door closes, I hope one more opens

Promise me you'll give faith a fighting chance

And when you get the choice to sit it out or dance

Dance

I hope you dance

I hope you dance

(Time is a real and constant motion always)

I hope you dance

(Rolling us along)

I hope you dance

(Tell me who)

(Wants to look back on their youth and wonder)

I hope you dance

(Where those years have gone)

(Tell me who)

I hope you dance

(Wants to look back on their youth and wonder)

(Where those years have gone)


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I too suffered a lot of body achiness, as well as hand tingling. I have been gluten free for 5 months, and it improved SO much.

Recently my arms and hands have started to get so sore again.

Deb, I loved your post. I never thought about healing, and how that might hurt. And, I am doing so much more than I did before, and my body is not used to it. It's been 4 and a half years since this all started, I guess it will take awhile to be as good as it will get.

Thanks!


Gluten free since Sept. 2006

Improved on gluten free diet

Enterolab results confirmed suspicions on Jan. 29th 2007

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