Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiacs In Alabama

Guest lorlyn

By Guest lorlyn
in Meet Up Room

Recommended Posts

Guest lorlyn
Guest lorlyn
Posted

Hi,

Looking for anyone in Alabama? Like to start a support group in Birmingham.

Link to comment
Share on other sites
  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


steffie Newbie
steffie
Posted

Hi!

I am in Tuscaloosa, Alabama and would welcome a support group. I have been diagnosed for six years and have been alone all of this time. I have had so many health problems as a result of this disease. I was sick over 10 years before my diagnosis. I feel much better now but would welcome talking to someone in person with the same disease.

Link to comment
Share on other sites
Guest lorlyn
Guest lorlyn
Posted

Hi Steffie,

I have heard through my Church of a couple of people with Celiac and their friends told me they may be interested in a support group. Someone on this forum told me that there Whole food store lets them meet at the store. I think that would be cool. I am also willing to drive to t-town and have dinner somewhere to meet there also. I am sorry that you went so long alone. My husband has had symtoms for a long time but i never had heard of Celiac until i took my daughter to the doctor and found out a week later after she had a biopsy. We have only been gluten free since November so I am still overwhelmed trying to learn. I think it would do my daughter good to meet someone else with celiac because i think she gets depressed some time. Feel free to email me of group so we can chat.

Take care

Lynn

Link to comment
Share on other sites
  • 4 months later...
sherryGF Newbie
sherryGF
Posted

Hi, my name is Sherry, and I live in Hoover, AL. I'd LOVE to see a Celiac support group started soon! I've been gluten-free for 7 years now, but was sick with what was mis-diagnosed as Crohn's disease at least 10 years prior to that! I am very used to the diet, but now can't "do" dairy or soy anymore without getting sick! Please feel free to contact me about getting a group started!

Link to comment
Share on other sites
tiffjake Enthusiast
tiffjake
Posted

I am from AL but I don't live there now. But I have a couple of Celiac friends in Birmingham, so when you do get a meeting together, I would love to share the info with them (they are not on celiac.com, I don't think....). Good Luck!!

Link to comment
Share on other sites
  • 4 weeks later...
Guest lorlyn
Guest lorlyn
Posted

There is a Celiac support group in Birmingham. Their e-mail is Birminghamceliac.com. If this not right it may be listed as Bham celiac support group. They have monthly meetings. I have been to one and they are having another one on July 30th in Hoover. Let me know if you need more info.

Lynn

Link to comment
Share on other sites
  • 4 weeks later...
Guest lorlyn
Guest lorlyn
Posted

Just wanted to know if the Alabama Celiac were still out there? <_<

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sherryGF Newbie
sherryGF
Posted

Lorlyn, I still haven't found a Celiac Support Group, although a sign was posted at Organic Harvest last year asking if any of their patrons were interested in starting a group, but nothing seemed to come of it. Have you been to the new Whole Foods store yet? Please let me know if I can be of any help! Sherry

Link to comment
Share on other sites
Guest lorlyn
Guest lorlyn
Posted

Hey Sherry,

I go to the new Whole Foods a couple times a month to get certain things. They had a sign up for a support group in Birmingham(Hoover). I went to the July meeting and it was nice for our family to meet other people in the same boat as us. I was out of town for the August meeting there will be another one in September. If you would like the info they have a web page at Birmingham Celiac.com I think if you are interested. If you cannot find the info just let me know. Nice to hear from another Alabamian :rolleyes:

Link to comment
Share on other sites
Khat Newbie
Khat
Posted

If you would like the info they have a web page at Birmingham Celiac.com I think if you are interested.

Lorlyn and Sherry, I'm glad y'all had this conversation! :)

Am heading off to that Website now because I sure could use some support and advice from other folks in the area. I live in Inverness so the Hoover meeting will be convenient. Not that it would matter. I've never been a support-group kind of girl, but this situation is changing all kinds of things.

Thanks!

Link to comment
Share on other sites
Guest lorlyn
Guest lorlyn
Posted

Hey Khat, Just wanted to say hello and welcome to this forum. Just to let you know the B'ham(Hoover) group will be meeting at Organic Harvest on September 14 at 6:00 pm. I have been to one meeting and there were about 20-30 people. The one meeting I went to was a get together and everyone brought a dish. It was nice to meet other people with the same problem. The last meeting they had a speaker come in so it seems like it varies. Please try to come.

Have a great weekend and let us know if there is any thing we can do for you. :)

Link to comment
Share on other sites
  • 2 weeks later...
Guest lorlyn
Guest lorlyn
Posted

Hey to all of our Alabama Celiac. The Birrmingham chapter is still having there monthly meeting on September 14, 2007 at Organic Harvest for any one interested. It is located in Hoover Alabama.

hope to see you there

Link to comment
Share on other sites
  • 1 month later...
rebkin Newbie
rebkin
Posted

Hello Gluten Free Friends!

We do indeed have a great support group here in Birmingham, Alabama. The group is still relatively new - just over a year old - but growing all the time! Our next meeting is on October 29th, 6:00 p.m. at Kid One Transport in Hoover (Lorna Road/I459 area - easy to get to).

Everyone is welcome. A pediatrician specializing in children with Celiac is going to be speaking at this meeting.

I personally have found the group to be a great source of information, support, and friendship!

Hope you can join us!

Rebecca

You can get info from:

birminghamceliac@hotmail.com

Link to comment
Share on other sites
  • 1 month later...
rebkin Newbie
rebkin
Posted

Hello Friends!

I am looking forward to continuing the work with the Birmingham Celiac Disease Support group that Janet started here for all of us. I'm sure all of you felt 'alone' with your ailment as I did, before finding the group that she started. I have enjoyed the friendships that I have made, and greatly appreciate the wealth of knowledge that we have gained thanks to Janet's hard work. Thank you Janet!

I will work to continue to grow our group and our resources, knowing that through larger numbers our voices are better heard spreading the word about Celiac Disease. I'd like to give more people like us who have been previously diagnosed a new support system - and maybe inspire someone not yet diagnosed to ask the right questions of their doctors to save them the long diagnosis process that many of us had.

Please contact me by email at birminghamceliac@hotmail.com with any ideas, concerns, news, etc. - anytime.

I am happy to be able to be able to take on a lead role with our group, and will always welcome your help!

Have a very Happy and Healthy Thanksgiving!

Rebecca

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,060
    • Most Online (within 30 mins)
      7,748
    Demandcpm
    Newest Member
    Demandcpm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Zackery Brian
      Gluten and 30 other Items causing me Severe Muscle Inflamation Pain

      By Zackery Brian · Posted

      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      Still testing positive after being gluten free for one year ?!!

      By knitty kitty · Posted

      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...