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Ozzy

Over Glutened, Harder To Recover?

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After years of being told I had IBS, with no hope but eating more fiber, I had a doctor try a blood work for celiac. The results we're mixed, but I tried a gluten free diet anyway and felt great relief after about 7 weeks. At this point I finnally saw the specialist and he insisted it was just stress and IBS and I needed fiber and exercise, but would do biopsy to be sure. But I had to go back on gluten diet to get correct diagnosis. Well I starting eating large portions of whole wheat and pasta. I still felt good for about 6 weeks and starting thinking I was not celiac, but the symtoms came back full force then. Well the results came back from lab, and biopsy showed celiac. Now 2.5 months later gluten free with only minor relief. I can't help but wonder if it was easier to heal from my normal amount of gluten diet, compared to my 3 times a day whole wheat diet because I wanted to be sure to get clear test results. I am very much regretting that.

Anyone else feel that certain foods are harder to heal from?

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After years of being told I had IBS, with no hope but eating more fiber, I had a doctor try a blood work for celiac. The results we're mixed, but I tried a gluten free diet anyway and felt great relief after about 7 weeks. At this point I finnally saw the specialist and he insisted it was just stress and IBS and I needed fiber and exercise, but would do biopsy to be sure. But I had to go back on gluten diet to get correct diagnosis. Well I starting eating large portions of whole wheat and pasta. I still felt good for about 6 weeks and starting thinking I was not celiac, but the symtoms came back full force then. Well the results came back from lab, and biopsy showed celiac. Now 2.5 months later gluten free with only minor relief. I can't help but wonder if it was easier to heal from my normal amount of gluten diet, compared to my 3 times a day whole wheat diet because I wanted to be sure to get clear test results. I am very much regretting that.

Anyone else feel that certain foods are harder to heal from?

Hi and welcome to the boards. Has your doctor told you of the need to check your toiletries and nonfood items? Are you sharing a kitchen with gluten eaters, eating out, consuming questionable alcohols? There is a lot to learn with celiac and you may be more sensitive now than you were when you were constantly consuming gluten. Also are you taking anything for tummy relief? Many OTC stomach meds, beano is a good example, are not safe. You may also find that you need to cut out dairy for a couple of months until you heal, the same villi that are damaged by gluten are needed to digest dairy and the large amount you consumed may have left you dairy intolerant also. That is not always a forever thing, folks can often reintroduce after they have healed.

I hope you get some relief soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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There may be a little more to this then just the gluten. You may be a little depressed about actually having celiac disease. It's one thing to know that eating gluten-free makes you feel better, yet it's a nother to know that you actually have a disease that is a lifetime change for you. It is also quite possible that some of the symptoms would have returned had you not started eating gluten again too. Sometimes as our bodies detox, they will be very stressed and make us ill. Give it time and stick with it. Talk to us and realize, you are never alone.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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