Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Paulr

Feeling Fed Up With Celiac

Recommended Posts

PLEASE GIVE ME ADVICE FOUND OUT IN DEC/07 BLOOD POSITIVE FOR CELIAC GLUTEN FREE SINCE JAN/07 BLOOD NO BIOPSY DONE YET.SICK AS HELL FOR A YEAR NOW, DOCTOR SAY'S IT WAS ALWAY'S THERE BUT STRESS BROUGHT IT RIGHT OUT. MY SYMPTOMS ARE LOOSE WATERY STOOLS,DRY SKIN ON MY BELLY & FACE ,THE SHAKES WHEN I GO TO THE BATHROOM,MY FACE IS RED ON & OFF AND MAJOR DEPRESSION MY QUESTIONS ARE - WHEN DO YOU START TO FEEL BETTER?IAM DOWN ALL THE TIME AND IS IT NORMAL TO QUESTION WHETHER YOU HAVE CELIAC OR SOMETHING WORSE ,ALSO ARE BLOOD TEST'S 100% EFFECTIVE I BURN UP JUST WORRING ABOUT THIS PLEASE BE HONEST AND TELL ME WHAT YOU KNOW THANKS

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


It depends on the person as to how fast they react to the diet. It is normal to question the results. You can never have a false positive on the blood test, but you can have a false negative. You did not say if you were having the endoscope or not. If you are, then you must eat gluten for 3 to months prior to the biopsies. The endoscope can not rule out Celiac as it can only confirm it. They have to take about 8 biopsies from the right places to get a positive diagnosis.

Good luck and know most of us have been where you are. Time heals.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

Share this post


Link to post
Share on other sites

Paulr:

Being diagnosed with Celiac is not as drastic as it may appear. A lot of it is a mind game. You need to know that what you put in you mouth can cause you serious problems. If you eat gluten you will be sick, if you don't you will feel better. That is the bottom line.

Celiac has over 200 symptoms. I too have the shakes after a year on the diet. It may take some time for you to remove gluten.

The learning curve may be steep but not do able. And you have a lot of very informed people here to answer you questions.

You can have success.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

Share this post


Link to post
Share on other sites
PLEASE GIVE ME ADVICE FOUND OUT IN DEC/07 BLOOD POSITIVE FOR CELIAC GLUTEN FREE SINCE JAN/07 BLOOD NO BIOPSY DONE YET.SICK AS HELL FOR A YEAR NOW, DOCTOR SAY'S IT WAS ALWAY'S THERE BUT STRESS BROUGHT IT RIGHT OUT. MY SYMPTOMS ARE LOOSE WATERY STOOLS,DRY SKIN ON MY BELLY & FACE ,THE SHAKES WHEN I GO TO THE BATHROOM,MY FACE IS RED ON & OFF AND MAJOR DEPRESSION MY QUESTIONS ARE - WHEN DO YOU START TO FEEL BETTER?IAM DOWN ALL THE TIME AND IS IT NORMAL TO QUESTION WHETHER YOU HAVE CELIAC OR SOMETHING WORSE ,ALSO ARE BLOOD TEST'S 100% EFFECTIVE I BURN UP JUST WORRING ABOUT THIS PLEASE BE HONEST AND TELL ME WHAT YOU KNOW THANKS

You haven't been gluten free for very long and it is easy to 'mess up' and let a little in without knowing it at first. The blood tests when they are positive are definate. You most likely are still getting gluten somewhere as well as going through a gluten withdrawl.

Are you living in a house with other gluten eaters? If so you need to be have your own cooking space and utensils and you need to have your own toaster and cutting board. When you cook imagine that everyone else had a real bad case of the flu and clean all surfaces before using them.

How much mainstream 'gluten free' food are you eating? For many we need to shop the outside of the store for a few months while we heal. Fresh or frozen veggies and fruits, fresh meats, organic unfortified rice, eggs, nuts and later on dairy are what you should eat for a while.

If you have not cut out dairy and alcohol do so for a bit. If you must have alcohol make it gluten free beer or wine. Later on when you are feeling better you can add them back in (challenge) and see if you tolerate them well. You also need to make sure there is no gluten derived ingredients in your toiletries and in hobby or craft stuff.

It takes a while to heal, and there is a big adjustment but it does get better.

Don't give up sometimes it takes a long time.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

i was fine up unit my mom died then the pains came back along with the D, which i havnt had when i was 1 Dx with it it could of been the bolw inf i had that caused the D but the stomach pains after i eat are still there went for a endscopy and colonscopy and both showed that my celiac disease is casing me so much pain, im on s sendative for the stomach pains so hopeful that will help and after all this time for being pain free for 10 or so years it can cause as much pain as it did when i 1st Dx with it grrrrrrr damn flar up lol

Share this post


Link to post
Share on other sites