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Nic

Need Some Help

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As I posted earlier this week, my son (6) is back in the throws of a very bad constipation. Since his diagnosis 2 years ago we have had plenty of bouts to constipation but this one strongly resembles what he was like pre-diagnosis. He has not really pooped in about 6 days. He will be fine for a while and then all of a sudden running to the bathroom screaming and holding his butt. The other day he sat for 3 hours without getting up and nothing happened. It is almost like it comes on in attacks. He complains that his butt hurts badly. Here is what I have done so far: he had 3 laxatives over a 3 day period, he is continuously on Miralax (stool softener), he is getting extra fiber through Yummi Bear Fiber, and I have reintroduced acidophilous. Since doing all this he managed to pass a little but he is still very uncomfortable and still not eating. It seems as if the stool is actually right there, he just can't get it out. Not to be gross but is seems soft as well because even if nothing comes out in the toilet, he is still messy. I spoke with the doctor (ped.) and he said give an enima. The ped. GI said give a supository (sp?). I tried the supository and it just pops back out and he screams that it hurts. I won't do the enima. Back when he was like this before, it never worked. During one hospital visit they gave him 4 enimas and nothing happened. We have no success with either one ever and I do not want to put him through it. Does anyone have any other ideas on how to help him?

Nicole

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You probably need to see a pediatric colon specialist.....maybe his spincter muscle is not expanding properly to "let out" waste.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Does anyone have any other ideas on how to help him?

Nicole

Try maximizing the foods on these lists (depending on which ones your son is not allergic/intolerant to).

Foods to treat constipation

Foods that lubricate the intestines:

Alfalfa sprouts, Almond, Apple, Apricot, Banana, Beets, Carrots, Cauliflower, Honey, Okra, Peach, Pear, Pinenut, Prunes (stewed), Seaweed, Sesame oil, Spinach, Walnut

Foods that promote bowel movement

Asparagus, Black sesame seed, Bran from rice, Cabbage, Castor oil, Coconut, Fig, Papaya, Peas, Sweet potato

Flora-Enhancing foods (probiotics)

Acidophilus, Chlorophyll-rich foods: Dark green veggies, Micro-algae (wild blue-green and spirulina);

Dairy yogurt with


Vicky

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I'm sorry your son is having an awful time. I hope things are better now. Have you ever tried using Epson Salt in his bath? You can research that on Google. They sell it at Walmart. Maybe just a long playtime in a tub full of warm water where the salts have already disolved would relax him enough. It's not just the relaxation, the magnesium will actually help resolve the constipation. Poor little guy. I hope things are better now. Best of luck.


Zachary 16yrs diag. 7/2006 after two and a half years of gastro symptoms.

Emma 5.5yrs diagnosed on 2nd birthday after 15 months of failure to thrive.

Joshua 5.5yrs undiagnosed but greatly improved autistic like symptoms on gluten-free,sf,yf diet.

myself -tested negative but improved general health since going gluten-free 7/2006.

husband -tested negative but supportive cheerleader for our adventure.

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I'm sorry your son is having an awful time. I hope things are better now. Have you ever tried using Epson Salt in his bath? You can research that on Google. They sell it at Walmart. Maybe just a long playtime in a tub full of warm water where the salts have already disolved would relax him enough. It's not just the relaxation, the magnesium will actually help resolve the constipation. Poor little guy. I hope things are better now. Best of luck.

Hi, I never heard of using epsom salt for this purpose but am willing to try anything. He did eventually poop yesterday which was day 8 of this cycle. But this morning felt he needed to go after breakfast and sat twice but could not go again. I don't understand this at all. It does not make sense that we are always going around with this. I understand that some people are chronically constipated and he does have times where I call it "normal" constipation. That is when he gets backed up and all I need to do is increase his stool softener or try some Senecot and he gets going. This is different. This does not happen as often but it is terrible. He is almost in an attack. The pain comes and goes, he is walking funny, and always holding his butt. He is in and out of the bathroom for hours or sitting on the toilet for hours. He stops eaying and becomes miserable. We go back to the GI on Monday the 12th so I am hoping someone will be able to help him eventually.

Nicole

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