-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- lizzie42 posted a topic in Coping with Celiac Disease0New diagnosis for 3 year old. Help!
My 3yo was just diagnosed after months of iron supplements barely bringing up her ferritin. I say diagnosed but it's not official yet. Her tTG was 109, her ema was positive. Also she has a vitamin d deficiency in addition to the anemia. She also has the rash. It's been a rough road the last year and a half with her behavior and health and I'm relieved to... -
- ShariW commented on Scott Adams's article in Additional Concerns12Is McDonald's Gluten-Free? A Complete Guide to Safe Menu Options (+Video)
Sounds good!- burgers
- celiac disease
- (and 8 more)
-
- Kagemusha commented on Scott Adams's article in Additional Concerns1Hard Rock Cafe Customer Feels Mocked Over Celiac Disease
I would say the server was in the wrong I'm this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.- celiac disease
- cross-contamination
- (and 8 more)
-
- trents replied to Sarah Grace's topic in Related Issues & Disorders12Headaches / Migraines and Hypoglycaemia
If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it... -
- Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders12Headaches / Migraines and Hypoglycaemia
Hello Knitty Kitty, Many thanks for asking about my progress. Its mixed.... I've been taking Benfotiamine since November. I started on 300mg, but I didn't notice any change. Increased to 900mb in 300mg tablets throughout the day and initially it seemed to be a cure. But then the Hypoglycaemia and migraines started to return...it's really very difficult...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.1k
-
Total Posts70.9k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
My 3yo was just diagnosed after months of iron supplements barely bringing up her ferritin. I say diagnosed but it's not official yet. Her tTG was 109, her ema was positive. Also she has a vitamin d deficiency in addition to the anemia. She also has the rash. It's been a rough road the last year and a half with her behavior and health and I'm relieved to have an answer. Is she going to have to have a biopsy with numbers like that? I want to just start gluten-free immediately but waiting to try and schedule with a pediatric GI doctor. It will have to be remote because there isn't one here. I hate having an answer but still feeding her gluten. Also, how can I help her rash? We've used aquaphor her whole life thinking it was eczema. It helps a bit but not as much as it should for eczema. I am a sourdough lover and make all our bread. Is there a such thing as gluten-free sourdough? At home I think the gluten-free will be no big deal. I make everything and the kids aren't really picky. I'm worried about when she starts school, eating at friends, etc. It's a little overwhelming! -
If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it for a longer stretch than you are used to. Those who suffer from migraines may likely be more sensitive to the effects of caffeine or the withdrawal of it I'm thinking. And then there is the potential negative impact caffeine can have on sleep patterns for many people. Disruption of sleep patterns is also a migraine trigger for some. I speak as a migraine sufferer myself.
-
By Sarah Grace · Posted
Hello Knitty Kitty, Many thanks for asking about my progress. Its mixed.... I've been taking Benfotiamine since November. I started on 300mg, but I didn't notice any change. Increased to 900mb in 300mg tablets throughout the day and initially it seemed to be a cure. But then the Hypoglycaemia and migraines started to return...it's really very difficult for me to control my diet. I'm still taking the Benfotiamine but I now take the Benfotiamine in the evening and usually about 600mg after my early evening meal. I'm still very sensitive to carbs and especially alcohol and sugar, which makes any social activity really difficult especially in the evenings and having to avoid all gluten as well....anyway I guess most members of this forum are very familiar with this. However, I do think the Benfotiamine is very helpful. I still get significant vertigo (very wobbly at random moments) but I think my brain fog and insomnia have improved. I'm quite active physically (gardening and dog walking etc), so need carbs for this. I am a bit of a coffee addict and wonder what impact that might have? Any suggestions that you have that might further improve my diet and management of the hypoglycaemia would be much appreciated, as I definitely have failed to conquer the problem. -
By Liquid lunch · Posted
Thanks kitty, I needed reminding about thiamine. I ran out of magnesium so stopped taking it and that was ages ago, it definitely helps with my energy levels and general function. I just took some now and I’ll get some more magnesium. Although I don’t really understand the gundry list it does seem to correlate with foods I can/cannot eat, lectins are not all made equal and it seems to be personal which we react to but some are generally more problematic than others, I think he’s based the list on avoiding lectins that people are often reacting to on an igg test. I think it’s fructose I’m reacting to in fruit rather than histamine because I’m fine with coffee, not sure of the quantity of tannins but for me green tea is worse than black and coffee is fine. Interesting about wet beriberi as I nearly died from pneumonia when young so I wonder if it was related. I react differently to the different foods, lectins cause bloating bleeding and severe pain, sugar I feel wiped out but don’t get the bleeding, tea it’s just nausea. I’ve wondered about lectins being sugar binding proteins and my intolerance of sugars but the bleeding does seem to be a specific response to lectin consumption which I think is an autoimmune response because it improves when I take immune modulating mushrooms (reishi and cordyceps). I really do appreciate you being here to help whenever I log in, than you 🙏 -
hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but at my age and as a recovering heart patient can not take risk. Anyway, been strictly gluten-free since we last talked. I did add 200 mg of vit b1 in addition to the b complex. Not as much b1 as you suggested because of my conservative nature but at least an attempt. I still have substantial bloating which unfortunately is probably not caused by gluten, as I was hoping that gluten-free would clear it up a bit. I wish that I could report a major benefit from going gluten-free but I can't. But I never got desperately ill as many have reported here and my poor brother who was completely overcome til diagnosed. Take care
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.