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chocolatelover

In Limbo And Have No Willpower

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I'm completely in limbo right now--my first GI screwed up all my tests (including only taking one biopsy when he did my endo), so I'm waiting to see a new one, but can't get in until March 20th.

I am waiting for my enterolab results, but it will probably be at least another week (they received my sample a week ago yesterday), if not more before I get them. I did the full screen panel, including casein (think that may be part of my problem).

In the meantime, I'm completely in limbo about what to do. I don't know if the new GI will want to repeat any tests, so I don't know if I should keep eating gluten or not. For right now I just can't seem to control my cravings for all the things I shouldn't be eating. The more I eat, the more depressed I am about it and the worse I feel, but I can't seem to stop myself from eating all the things I shouldn't. Or maybe I should keep eating them so I can be re-tested by someone who so obviously isn't an idiot.

I'm definitely feeling like I'm wandering in no-man's land with very little guidance and no answers. I'm tired of this and very frustrated. Is anyone else feeling like this (or has felt like it in the past)? What are you doing/did do about it?


Dx'd with lymphocytic colitis 1/07

Dx'd by Enterolab 3/07--+IgA, +Ttg, DQ2 and DQ8

Dx'd celiac by Dr. Lewey 4/07--without +blood or biopsy

gluten-free 3/7/07

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I'm completely in limbo right now--my first GI screwed up all my tests (including only taking one biopsy when he did my endo), so I'm waiting to see a new one, but can't get in until March 20th.

I am waiting for my enterolab results, but it will probably be at least another week (they received my sample a week ago yesterday), if not more before I get them. I did the full screen panel, including casein (think that may be part of my problem).

In the meantime, I'm completely in limbo about what to do. I don't know if the new GI will want to repeat any tests, so I don't know if I should keep eating gluten or not. For right now I just can't seem to control my cravings for all the things I shouldn't be eating. The more I eat, the more depressed I am about it and the worse I feel, but I can't seem to stop myself from eating all the things I shouldn't. Or maybe I should keep eating them so I can be re-tested by someone who so obviously isn't an idiot.

I'm definitely feeling like I'm wandering in no-man's land with very little guidance and no answers. I'm tired of this and very frustrated. Is anyone else feeling like this (or has felt like it in the past)? What are you doing/did do about it?

Yes - on and off all the time for the past 7+ years of learning how to operate this new body - with no operators manual. Here's a short story (true) to help you get that glass half full again :)

It took me 3 years to break my chocolate cravings - knowing that if/when I ate chocolate I'd get a big zit on my nose that would stay at least 3 weeks. My mom's comment on the chocolate was "so what, you've already eaten a lifetime supply of chocolate anyway". Once I broke the craving - 99% of my cravings are gone, I hardly ever crave sugar anymore and I can eat small amounts of chocolate again (my esspresso beans and sometimes PB-Choc Chip cookies).

Here:

Baked Chocolate Pudding:

1 cube butter

2 eggs

1 Tbls Cocoa Powder-Heeping

1 Cup sugar

1/2 tps Vanilla

1/8 Cup Flour (1 Heeping TBLSP) I usually add about 1/3 cup rice flour (or baking mix - but no levening)

Melt butter in a suitable sized caserole, add cocoa/sugar/eggs/flour/vanilla and stir well (with our flours, I usually use a whisk to get rid of lumps). Bake in same pan, 350, 45 minutes. Until you are familiar with your oven/baking, I'd set the timer 5 minutes short - burned is not nearly as good. Makes an excellent breakfast when cold :) Yes I make it without chocolate and no it's not the same without the cocoa, but my kids still devour it.

Enjoy, Bob

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And it's dairy-free, too! Ok, when made with dairy free butter. :P

Thanks, Bob!!

BTW, how do you do the quote thing--haven't been able to figure that one out yet....


Dx'd with lymphocytic colitis 1/07

Dx'd by Enterolab 3/07--+IgA, +Ttg, DQ2 and DQ8

Dx'd celiac by Dr. Lewey 4/07--without +blood or biopsy

gluten-free 3/7/07

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Chocolatelover, what were the results of your blood test? Many people choose to use the blood work and dietary response for their diagnosis. It's not an entirely bad thing not having a "real" diagnosis ... you won't have future insurance problems that way. Some diagnosed celiacs get turned down for insurance.

Once you get off the foods you crave, which is hard, you will stop craving them.

Usually a chocolate craving indicates a magnesium deficiency, which is common in celiacs, because chocolate is high in magnesium. My daughter started taking magnesium and no longer craves chocolate.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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The question is: do you want the tests redone? If so, you need to keep eating gluten or they will most likely come out negative. If you don't want the tests redone, a combination of Enterolab and dietary response is sufficient for diagnosis.

When you do go gluten free, you need to keep in mind that gluten is like a poison/drug to your body. If you have celiac, you're probably addicted to gluten which makes it very hard to give up at first. Cold turkey is probably the best way to go if you want the withdrawal to be over quickly. You should identify what it is that is the most tempting to you. If it's having gluten food around your house, maybe you can get rid of that food. If it's missing a certain food, let us know and we'll help you find a good gluten-free alternative.


Gluten-Free since September 15, 2005.

Peanut-Free since July 2006.

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OK, here's a question for you.

Situation: You feel horrible all the time. You eliminate gluten (and maybe casein too) for a few weeks and feel wonderfully better as a result. Your body returns to normal. Then doc says "Sorry, nope, no sign of celiac disease. Go eat wheat." So would you go eat wheat even though it makes you feel sick?

Or would you say "Well, they didn't find proof, but the fact is, I feel "normal" again when I'm on a gluten free diet.

I don't know, it kind of comes down to how you want to feel and if eating the gluten is worth the punishment. Who cares what the doctors officially say....it comes down to how you feel.

What was that saying....."Let food be your medicine and your medicine be food." In some cases, that means don't poison yourself with gluten and/or casein and whatever else doesn't agree with you!!!!


CAROLE

-------------

Enterolab 1/2006

IgA & tTg Positive

DQ2-0201 (celiac) and DQ1-0604 (gluten)

Casein IgA positive

Mom has 2 celiac genes

Both kids have a celiac gene.

Lots of celiac disease in my family, both sides.

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