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GeoffCJ

How Strange My Life Has Become!

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I'm 31.

I have a disease.

It requires me to be VERY careful about what I eat. I have a hard time with it.

When I do a good job, the clearest, most immediate symptom of my doing a good job over the week is in the restroom.

Thus, when I do a good job, and it "shows" I'm quite proud of myself.

Meaning I derive satisfaction from my BMs.

Such an odd part of my life.

Only you guys could understand.

:P

Geoff


Celiac - Gluten Free since Late December 2006

Positive Dietary response, biopsy, Enterolab

Lactose intolerant - dietary response test only

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Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

I can so relate to you, Yesterday my hubby came home and i was like honey i went to the bathroom by myself and it was great, he was like i am so proud of you. I had been taking an laxative for one day, but that was on monday lol

paula


gluten, casein and soy free

on low carb/low sugar diet

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I understand completly. I feel that way too. You are right though, only we would be able to relate. All our nonceliac friends would look at us as if we were crazy.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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How refreshing to know that I'm not insane for gauging my life by the quality of my BM's. That's why I'm so happy to have found this forum, because you all ARE the only people who would understand.


John

positive blood tests 2/07

positive endoscopy 2/07

colonoscopy with benign polyps 2/07

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LOL. After I had kid, I had said to a friend I never thought I would enter a life where BM's would be normal conversation topics with other mothers. Now I'm the one who is excites when I "make good poopy". :ph34r: And this has become normal conversation with my hubby and mom. Who knew.


Stomach problems began November of 2005

Gall bladder removed April 2006

Positive Blood test October 2006

Refused endoscope

Gluten-free since January 21, 2007

Positive reaction to diet

The Lord gave, and the Lord has taken away; Blessed be the name of the Lord. Job 1:21b

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Pooh freaks! All of us! :P

lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula


gluten, casein and soy free

on low carb/low sugar diet

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lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

It gets even better when your hubby stops asking if the puppy went and instead asks if I did! :blink:


Best RX? Ice Cream!

Positive Blood Test 2000

Negative Biopsy 2000

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I was once asked in a job interview what I was most proud of. Now I think I have a good answer.... :ph34r: , at least for the jobs I don't really want :lol:


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Ah, yes! Pooh freaks! I thought I was the only person in the world that looked in the toilet after pooping to check the color, consistency, and amount. So glad to know that I am not alone!


Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

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My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!


John

positive blood tests 2/07

positive endoscopy 2/07

colonoscopy with benign polyps 2/07

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My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

LOL!!!

:lol:

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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We're a bunch of freaks, aren't we? :lol::lol::lol:

Naw, if we were freaks, we would have had a "Best Looking Poop Contest" where we submit digital photos to be voted on! No baby contests in the celiac world, we have poop contests instead!!!!! :lol:

Hugs.

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Ooooh this is just too bad! I am at the library and trying not to laugh too loudly at "potty humour" and hope that no one looks over my shoulder to see what I'm giggling about. Funny, but neither of my gastro docs (or even my GP whom I saw first) even asked me any of the all important, uh, quality questions.....or even how often a day I was "going".....and I am now happy to report to everyone that I have logs these days! Applause please? I'm so excited and only you folks could understand. Plus I can actually eat before going anywhere in my car.....amazing! :P

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What a classy condition this is :lol:

The first question out of my gastro's mouth is always "how are your bowels?" Every time...

:D Pooh freaks :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Eating before a car ride, now that's big. I know rest stop or gas station between Seattle and Portland, and from Portland to Boise. Now I don't care.

Once we were stuck in the passes, that was ugly. Complete standstill and no toliet..


Stomach problems began November of 2005

Gall bladder removed April 2006

Positive Blood test October 2006

Refused endoscope

Gluten-free since January 21, 2007

Positive reaction to diet

The Lord gave, and the Lord has taken away; Blessed be the name of the Lord. Job 1:21b

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Ah, I still need to know where all of the restrooms are.....just in case....I can still have an, uh, sense of urgency that others don't have but even the timing of that has improved and I can wait longer than say 15 seconds. People used to think that I was nuts when I would rate where the best restrooms were.... they just didn't know why it was such a big deal.

I have even considered becoming an inventor and devising a unit that we Celiacs could just attach to our bum or something....you know, just in case.....not very practical but kind of funny to think about when things have gotten bad. I guess the market for this type of product would be rather limited tho. Ah, so much for my get rich scheme, lol :P

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This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who


Diagnosed as an infant failing to thrive 40 years ago. Followed diet for 17 years more or less then quit. 20 odd years later after constant illnesses and reading this forum gone back to gluten-free with my tail between my legs.

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This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who

Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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Can I relate? LOL! You don't know the half of it!!!!!! <_<

Let's just say that certain positions are not an option for us, for fear of an accident! :o

How's that for TMI?????? LMAO!

If you know me, you know that this is mild compared to some stuff I put on here!

:lol::lol::lol:

Imagine having a husband who is here for a month and away for a month.

He has this romantic image of the one he left at home waiting.

I


Diagnosed as an infant failing to thrive 40 years ago. Followed diet for 17 years more or less then quit. 20 odd years later after constant illnesses and reading this forum gone back to gluten-free with my tail between my legs.

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I didn


Diagnosed as an infant failing to thrive 40 years ago. Followed diet for 17 years more or less then quit. 20 odd years later after constant illnesses and reading this forum gone back to gluten-free with my tail between my legs.

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It is nice to know I am not the only one...I thought I was strange! Well I probubly am, but at least I am not the only one....


"The only thing constant in life is change"

Celiac not confirmed, but positive results with diet change

Gluten free since 10/06

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