Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Need Feedback- 2 Yo W/ + Anti-ttg, Diarrhea


tobi

Recommended Posts

tobi Newbie

Hi- this is my first time posting and I am hoping some of you may be able to give me some insight on my son's situation.

He is a 24-month-old who has had 4-5 loose stools per day for about the last 10 months. Additionally he wakes several times a night with abdominal discomfort and has periods of irritability. He also is always hungry. GI dr diagnosed him with "toddlers diarrhea". But after my persistence, the dr agreed to do some further testing. My husband is a Type 1 diabetic and so we wanted to rule out celiac.

The bloodwork revealed a positive anti-tTG. GI doc did an endoscopy 10 days ago and came straight from the procedure room to tell us there was notable flattening of the circumferential folds and some mild gastritis. He instructed us to start a gluten-free diet immediately as he said he was almost 100% sure this was celiac. He took 3 biopsy samples. While we were waiting for results, we began the diet. Within just a few days, the stools decreased to 2 per day!

We received the results and the biopsies looked normal. So now the dr is saying it probably is not celiac?? Although he did admit that the damage can be patchy and therefore not always picked up on the small section selected for biopsy. He said we could stay on the diet for a few more months and see if he continues to improve.

I feel like we have been on a rollercoaster. Has anyone else been in this situation where symptoms, endoscopy and blood test indicate celiac and then have a normal biopsy? I appreciate any information anyone can offer. THANKS!!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Welcome.

Both my blood work and my endoscopy were negative for celiac. I do much better on the gluten-free diet, however, and find that I'm just as sensitive to gluten as a celiac is. Once a supplement I was taking had barley listed as the 20th ingredient ... it couldn't have been much considering it was a small pill, but it WAS enough to make me sick.

So, I'd heavily consider your son's dietary response. Sounds like you have a good GI.

Link to comment
Share on other sites
happygirl Collaborator

I had positive bloodwork, but a normal biopsy (biopsy was taken shortly into the gluten-free diet).

A biopsy can rule IN Celiac, but it cannot rule it OUT.

I think that trying the gluten free diet will be a strong dietary indicator. If he responds positively, the positive blood test, the diet change, and the inconclusive biopsy will still point to gluten being a problem.

Best of luck, and I hope that you find this site helpful in navigating the diet. Let us know what we can do to help. Welcome!

Link to comment
Share on other sites
rez Apprentice

I totally feel for you. We have had a similar experience. I would do the diet for 6 months and then re-do the bloodwork. If the tTG drops, you will know it's Celiac. Genetic testing would also help. DQ2 and DQ8 are the recognized Celiac genes.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,460
    • Most Online (within 30 mins)
      7,748

    BrittanyH
    Newest Member
    BrittanyH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • B1rdL0ver
    • shadycharacter
      Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better.
    • LimpToeTheTimeless
      I am M 21 and I diagnosed myself after a week of fasting and slowly reintroducing stuff in my diet except gluten, I had terrible eczema scars ,dandruff and brain fog, now I am free after 6 years of just pain, I am 6'2, will I grow taller? And since I am a gymnast will my muscles grow like quicker, cause before no matter how effort I put in I just couldn't. 
    • trents
      And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. 
    • AlyO
      Thank you, Trents.  I appreciate your helpful and friendly reply. It seems more likely to be a bug.  It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. 
×
×
  • Create New...