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Guest cassidy

Fresh Air On Npr

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Guest cassidy

I was flipping stations today and stopped at Fresh Air on NPR. I never listen to it but there was a doctor who had written a book about misdiagnosis. He was telling a story about a woman who at age 20 stopped liking food. She was having abdominal discomfort and really hated to eat. She was diagnosed with anorexia and after 15 years was down to 82lbs and had been institutionalized 4 times. She had also seen over 30 specialists. She claimed she was eating but her body was deterioriating and she kept losing weight. She eventually got D and went to see a GI doc who believed her and ran some tests. Guess what was wrong with her? She has celiac.

It is a horrible story but I knew as soon as they started describing her story that she probably had celiac. I'm sure many of us have horror stories about how long it took us to get diagnosed and how many doctors told us we were crazy.

Just thought I would share.

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Wow. Those years must have been scary and frustrating for her.


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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It sounds like they may have been interveiwing the author of the book "How doctors think".

There is thread about it:




Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats



daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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