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Lipoma Or Angiolipomas? Or Lypomas?

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I was just diagnosed with celiac disease. Last week I had bad pain that I thought was gall bladder pain...NOT. The pain was sudden, something I've never had before.

Doctor said I have "several" angiolipomas on my liver and kidney! OMG, I'm worried. (Lipoma is spelled lypoma in Europe.) Lipomas are fatty lumps, bumps and tumors.

Anyway, while surfing a lipoma site (some people have 200 or more of these lumps, it's a nasty disease too) I found two references to gluten-free diets and celiac. These two people mentioned that following a gluten-free diet or a Paleo diet got rid of their lipomas. It's a metabolic disease so now I'm thinking that there is some connection.

I was somewhat depressed with my celiac disease diagnosis but lipomas are really an "orphan disease" and there is NO help, unlike the "easy" gluten-free fix for celiac disease.

If anyone has any information, please help.

~Laura


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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I was just diagnosed with celiac disease. Last week I had bad pain that I thought was gall bladder pain...NOT. The pain was sudden, something I've never had before.

Doctor said I have "several" angiolipomas on my liver and kidney! OMG, I'm worried. (Lipoma is spelled lypoma in Europe.) Lipomas are fatty lumps, bumps and tumors.

Anyway, while surfing a lipoma site (some people have 200 or more of these lumps, it's a nasty disease too) I found two references to gluten-free diets and celiac. These two people mentioned that following a gluten-free diet or a Paleo diet got rid of their lipomas. It's a metabolic disease so now I'm thinking that there is some connection.

I was somewhat depressed with my celiac disease diagnosis but lipomas are really an "orphan disease" and there is NO help, unlike the "easy" gluten-free fix for celiac disease.

If anyone has any information, please help.

~Laura

Anyone? Ideas? Thanks!


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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my husband has a ton of lipomas on his legs. he recently had several large ones removed. where is the info about lipomas being caused by a metabolic disease? or is that only internal ones?


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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my husband has a ton of lipomas on his legs. he recently had several large ones removed. where is the info about lipomas being caused by a metabolic disease? or is that only internal ones?

There isn't much info on lipomas, but I got that from the lipomaforum.com

Chrissy, does your husband have celiac disease?


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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no, my husband doesn't have celiac----we don't know yet which one of us carries the gene, either.


Christine

15 year old twins with celiac, diagnosed dec. 2005

11 year old daughter with celiac diagnosed dec 2005

17 year old son with celiac gene

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I was just diagnosed with celiac disease. Last week I had bad pain that I thought was gall bladder pain...NOT. The pain was sudden, something I've never had before.

Doctor said I have "several" angiolipomas on my liver and kidney! OMG, I'm worried. (Lipoma is spelled lypoma in Europe.) Lipomas are fatty lumps, bumps and tumors.

Anyway, while surfing a lipoma site (some people have 200 or more of these lumps, it's a nasty disease too) I found two references to gluten-free diets and celiac. These two people mentioned that following a gluten-free diet or a Paleo diet got rid of their lipomas. It's a metabolic disease so now I'm thinking that there is some connection.

I was somewhat depressed with my celiac disease diagnosis but lipomas are really an "orphan disease" and there is NO help, unlike the "easy" gluten-free fix for celiac disease.

If anyone has any information, please help.

~Laura

I had no idea. I just thought it was from eating poorly - too much fats or something.

I just had a lipoma removed from each flank. They thought possible cancer so they removed them, but they are benign. So I haven't thought about them since. I guess I'll do a little more research, when my brain feels like working. I have a lot of neuro prob's with celiac disease, so that is all I have been thinking about.

Jacqui


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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I was just diagnosed with celiac disease. Last week I had bad pain that I thought was gall bladder pain...NOT. The pain was sudden, something I've never had before.

Doctor said I have "several" angiolipomas on my liver and kidney! OMG, I'm worried. (Lipoma is spelled lypoma in Europe.) Lipomas are fatty lumps, bumps and tumors.

Anyway, while surfing a lipoma site (some people have 200 or more of these lumps, it's a nasty disease too) I found two references to gluten-free diets and celiac. These two people mentioned that following a gluten-free diet or a Paleo diet got rid of their lipomas. It's a metabolic disease so now I'm thinking that there is some connection.

I was somewhat depressed with my celiac disease diagnosis but lipomas are really an "orphan disease" and there is NO help, unlike the "easy" gluten-free fix for celiac disease.

If anyone has any information, please help.

~Laura

I did a search after and I found a doc forum who said the pt. who has TONS of lipomas needs a Derm. Surgeon to consult. Then I went to the site below and then I came back here with the address before I forgot, so I haven't really checked it out, but it looked good.

www.dermnetnz.org agiolipomas or Dercum (sp?) disease.

Jacqui


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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Guest maybe I have celiac
I was just diagnosed with celiac disease. Last week I had bad pain that I thought was gall bladder pain...NOT. The pain was sudden, something I've never had before.

Doctor said I have "several" angiolipomas on my liver and kidney! OMG, I'm worried. (Lipoma is spelled lypoma in Europe.) Lipomas are fatty lumps, bumps and tumors.

Anyway, while surfing a lipoma site (some people have 200 or more of these lumps, it's a nasty disease too) I found two references to gluten-free diets and celiac. These two people mentioned that following a gluten-free diet or a Paleo diet got rid of their lipomas. It's a metabolic disease so now I'm thinking that there is some connection.

I was somewhat depressed with my celiac disease diagnosis but lipomas are really an "orphan disease" and there is NO help, unlike the "easy" gluten-free fix for celiac disease.

If anyone has any information, please help.

~Laura

Interesting, I have like 4 of them. Hopefully gluten free will get rid of them.

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Well, I've been battling lipomas for about 17 years (I have multiple familial lipomatis (sp?)) and am definately gluten intolerent. A gluten free diet has done wonders for me (eliminated years of diarrhea, gas, bloating, stomach cramps that have ended up in the emergency room, life long eczema as well a painful periods). I doubt they will make my lipomas go away but it would be interesting if it kept me from getting more (I've had 9 or 10 removed and have about 20 more that I know of).

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Hi,

I have around 200 lipomas which have developed over the last 20 years or so. most are tiny and only I know they are there, but I have 5 or 6 that probably will need removing soon. I have had some removed, but most don't bother me.

I'm convinced that these is a genetic link between my celiacs and my lipomas.


Toitu he whenua, whatungarongaro he tangata

The land is permanent, man disappears

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Please contact me. I have the exact same problem. I sure hope you are still out there...

Jeannette

Hi Jeanette,

I haven't visited this site for a while! I've been trying to research my condition and experimenting with the paleo diet. I can't say that my new diet has cured my lipomas, they don't seem to have got too much worse than they were a couple of years ago. My coeliacs and all the other associated problems (headaches, feeling run down, joint aches) is certainly better on my new diet.

As for the lipomas, I'm just plucking up courage to go through the surgery route again and get some removed from my chest and stomach. Those are a little bit bothersome, but also I'm getting fed up with people asking if I have an hernia when I go swimming!


Toitu he whenua, whatungarongaro he tangata

The land is permanent, man disappears

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I have quite a few lipomas- mainly on my left arm and left leg- I've had a couple removed for vanity reasons. I just tested positive for celiac last week, waiting on endoscopy for final confirmation.


Positive TTG IGA blood test 8/13/10

Endoscopy confirmed 8/31/10

Started gluten-free diet 9/1/10

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I have a painful lump around my hip and intestine. 3 inches long at least. I am celiac and the doctor said it was likely just fat. So would this be a lipoma then? They didn't see anything on an ultrasound. It's a painful lump, or has lots of pressure.

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Its good they found nothing on ultrasound.  I was going to suggest that maybe it might be a hernia but I think an unltrasound would detect a hernia?

When I was firs diagnosed I had lost a lot of weight very rapidly (about 10Ibs) and I was very bloated but also aware of lumps rather like you describe on either side, just above the hip/groin area.  I asked my doctor about it and she laughed and said it was just fat.  Now I have put weight on again I can't really find them unless I really press hard on the area.

I don't know how long you have been diagnosed and on a gluten-free diet but I think if you have bloating that might make them more noticeable.  

Have you had any other tests? Pelvic u/s? Sigmoidoscopy/colonoscopy?


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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I have a theory about my lipomas. I have just recently been diagnosed with hashimotos which is an auto immune disorder. Apparently having one auto immune disorder puts you at greater risk for other immune disorders. I believe cancerous tumors come from the immune system trying to contain and fight the cancer. And my theory is that lipomas come from the immune system targeting fat cells thinking they are bad invaders so they get contained just as a malignant tumor would. I have several lipomas on my lower arms and thighs. I have just been put on a gluten free diet by my doctor for my hashimotos as well as having to take selenium, probiotics and L glutamine daily. Anyways, I believe lipomas are just another auto immune disorder that just might also be fixed by diet and fixing gut issues since the immune system is tightly connected to gut health. Just my two cents.

Edited by SunnyDT
Typo

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12 hours ago, SunnyDT said:

I have a theory about my lipomas. I have just recently been diagnosed with hashimotos which is an auto immune disorder. Apparently having one auto immune disorder puts you at greater risk for other immune disorders. I believe cancerous tumors come from the immune system trying to contain and fight the cancer. And my theory is that lipomas come from the immune system targeting fat cells thinking they are bad invaders so they get contained just as a malignant tumor would. I have several lipomas on my lower arms and thighs. I have just been put on a gluten free diet by my doctor for my hashimotos as well as having to take selenium, probiotics and L glutamine daily. Anyways, I believe lipomas are just another auto immune disorder that just might also be fixed by diet and fixing gut issues since the immune system is tightly connected to gut health. Just my two cents.

Did your doctor test you for celiac disease before advising a gluten free diet?  Celiac disease can be asymptomatic and it is commonly linked to Hashimoto’s and/or Type 1 Diabetes (same genes — just a “heads up”).  If clear of celiac disease the diet might be helpful, or consider the autoimmune Paleo diet which is also gluten free.  Scripps in San Diego did a study on Crohn’s and Ulcerative Colitis patients.  Small study but they achieved a 78% remission.  They are now testing Hashimoto’s patients.

The gluten-free diet did eliminate my nodules and enlarged thyroid, but I still must take thyroid hormone replacement (have had Hashimoto’s for 20 years).  Not sure if it was the diet or because I treated my celiac disease.  Calm down one autoimmune disorder and the others calm down.  That is one of my theories.  Be on the look out for autoimmune gastritis as it is also linked to Hashimoto’s and I have that too.  

So, please consider going back on gluten, get tested and then treat your Hashimoto’s with a diet.  

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Thank you for responding. No I have not been tested for celiac disease. My ths free t3 free t4 were all normal. My reverse t3 was a bit high and my tg antibodies were high. Also I have low blood pressure and low testosterone. The whole reason I went to see the doctor in the first place was because I had nausea and acid reflux for no apparent reason which I hve recently discovered is connected to hashimotos. I have just been to a dentist because I have untreated periodontal disease which we suspect may be causing everything. We are in the process of fixing that as well. So far the gluten free diet along with probiotics and L glutamine are helping a lot with the stomach issues.

Edited by SunnyDT
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