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ravenwoodglass

Severe Intestinal Bleeding Warning Tmi

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I haven't had a good glutening in a long time. I started getting ill at around 1 am night before last and within a couple of hours was passing startling amounts of blood and then started throwing up coffee grounds. This has happened before but never this bad. The bleeding D and vomitting finally stopped around 8 last night. I'm still real weak but feel better than I did.

I wasn't able to go to the ER, they think of me as a frequent flyer even though I have hardly been in there in the last 5 years. When this happened before I caught some of the blood, about a cup, and brought it in only to hear the doctor tell a nurse to throw the chiken blood out. Meanwhile I just layed there no tests, no meds, no care for over 5 hours then they told me to go home. I wasn't going to go through that again.

I will be calling my GI guy today at my DH insistence, and I know he's right. But I am terrified. I have no doubt about needing an upper and lower scoping but am afraid of what they might find.

I know I am grasping at straws here but does anyone else bleed badly when glutened? I'd feel much better if I knew this happened to others. Meanwhile I guess I will be on rice and applesauce for a few days. Like I need it I lost almost 7 pounds yesterday.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Really, not so bad... but yes I get bleeding...just obviously not as bad as yours... hopefully that helps and you feel less like a freak :D

I know you had a much roughewr time pre-diag than me and stuff...Gosh I feel kinda selfish...sorta thinking glad its you not me...

Is that bad or is it just my "honest Aspie" side coming out???

Stop the coffee immediately though.... I would have thought or anything else thinning the blood!

<<<----CYBER HUGS---->>>


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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Ravenwood,

I haven't had the bleeding--just a little from the internal hemmorhoids.

I just want to say that I know you're scared, and I agree that you need to be seen by your doctor. It's always better to know what (if anything) you're dealing with.

I'll keep you in my thoughts, please keep in touch. :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks guys. I called my GI guy and he is in 'surgery' today so I am waiting for a call back. I hope it's soon but am sure it will be today. Still pretty out of it and scared to eat anything but hopefully we'll have things figured out soon. Of course the biggest worry is the big C with my being misdiagnosed for so long but I believe I would bleed all the time if it was that. It is reasurring that it happens to others, hopefully you'll never have a day like I had though.

His office just called back and I am on my way in for scripts, blood work, stool samples and appointment.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I'm betting you just passed so much D it messed your insides up (like abrasion) but you should definately have it checked out...

I doubt your big worry is it... but it always pays to be safe! (Im no MD but the vomiting etc doesn't fit...) that said any internal bleeding is always best checked out...

What I'm trying to say is don't worry yourself into more D.... and vomiting... Get it checked out because its the right thing to do... and because its important your GI knows this but don't worry so much you give yourself extra D and a huge knot in your stomach...

This is much more conventional medicine than diagnosising celiac disease... I know you went through hell to be diagnosed but this is the bread and butter stuff of GI's...


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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I'm betting you just passed so much D it messed your insides up (like abrasion) but you should definately have it checked out...

I doubt your big worry is it... but it always pays to be safe! (Im no MD but the vomiting etc doesn't fit...) that said any internal bleeding is always best checked out...

What I'm trying to say is don't worry yourself into more D.... and vomiting... Get it checked out because its the right thing to do... and because its important your GI knows this but don't worry so much you give yourself extra D and a huge knot in your stomach...

This is much more conventional medicine than diagnosising celiac disease... I know you went through hell to be diagnosed but this is the bread and butter stuff of GI's...

Thanks, yea I think this is going to be much easier for them to figure out. Oddly enough since my diagnosis I can be stressed as hell and not have my tummy act up, so much for the years of 'nervous stomach' diagnosis. My worry of course is C but my logical brain tells me it most likely has more to do with the diverticulosis. It could also have been food poisoning as my stomach stopped emptying the day before it started. I won't go into the particulars of how I know that but you have a good imagination. I am just glad the worst is over. I see the doc in a week and they drew lots of blood and sent me home with my little sample bottles to bring back so we'll see.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Ravenwood,

Glad they got you in so fast. I tend to think that because this was an isolated thing (as opposed to persistant bleeding over time), it's most likely not C but like you said, diverticulosis or some sort of erosive damage from the gluten and/or food poisoning.

I concur with the stress not causing stomach problems--that's how it works with me, too. All my life, people tried to label me the "sensitive" one. Yea, sensitive to gluten :D --not life!

I hope that you're feeling better soon--take good care, and I'll be anxious to hear about your appt. next week. :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Good luck with all of your tests. I hope it goes well. I'm sure it's not a worst case scenario. I go through periods of severe rectal bleeding--to the point where I become anemic and sometimes all that comes out is blood. In the past, they attributed it to ulcerative colitis. But I was just hospitalized for a week in February, and after scoping me they said that I wasn't having an active outbreak and that I did not have internal hemorroids, so despite the fact that they found large amounts of blood in the samples, they have no idea what's causing it. I'm doing much better now, but I still have an occasional bloody day. I hope that they are able to come up with definitive answers for you and quick.


Diagnosed July 2004

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