Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Cancer And Celiac

confused

By confused
in Related Issues & Disorders

Recommended Posts

confused Community Regular
confused
Posted

Is there a link with the 2 diseases. My aunt who is 36, was just diagnosed with thyroid cancer this morning. They want her to go for radioactive iodine therapy ASAP. My aunt is the sister of my uncle that was just diagnosed with stomach cancer last month at age 39.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

There is a link between Celiac Disease and a certain type of thyroid cancer. I don't remember what the cancer is called. The average time of onset for the thyroid cancer is 6 years after the Celiac diagnosis. I forget the exact percentage of this type of cancer in a Celiac, but I think it was in the mid to high 20%'s. A Celiac should have their thyroid palpitated (sp) once a year. I had a thyroid problem show up when I had an MRI done. My second ultra sound of the thyroid is in mid April (3 months after the last one). I am not concerned. If it is cancer it could not have been there that long (because of all the prior tests I have had done). They will either remove it or zap it.

Hopefully someone will chime in with what this cancer is called.

I am sure your Aunt will do well. I think it is great that they are doing this ASAP. My thoughts and prayers are with you and your Aunt.

confused Community Regular
confused
Posted
  • Author
There is a link between Celiac Disease and a certain type of thyroid cancer. I don't remember what the cancer is called. The average time of onset for the thyroid cancer is 6 years after the Celiac diagnosis. I forget the exact percentage of this type of cancer in a Celiac, but I think it was in the mid to high 20%'s. A Celiac should have their thyroid palpitated (sp) once a year. I had a thyroid problem show up when I had an MRI done. My second ultra sound of the thyroid is in mid April (3 months after the last one). I am not concerned. If it is cancer it could not have been there that long (because of all the prior tests I have had done). They will either remove it or zap it.

Hopefully someone will chime in with what this cancer is called.

I am sure your Aunt will do well. I think it is great that they are doing this ASAP. My thoughts and prayers are with you and your Aunt.

Thank you for your response. Im thinking she said she has thyroid papillary carcinoma, but i could be wrong.

From what i get from my mom, she said she had an growth like mole on her throat from birth, but drs always said not to owrry about it, so while she was in for an physical the dr noticed it had grown and sent her to memorial hospital, were they did an u/s and drained it, and it came back with cancer. I know she thought it was the above type of cancer when she first went to the dr, but im not sure if that is what it came back as.

paula

georgie Enthusiast
georgie
Posted

This is a good link about Thyroid Cancer, its types and treatment.

Open Original Shared Link

Autoimmune diseases can run in families. Pernicious Anaemia is another autoimmune disease and leads to an increased risk of stomach cancer. It might be a good idea to check your B12 levels as well. In my family I have Hashimotos Thyroid, nodules ( luckily under control with Armour but watching them ), Pernicious Anaemia and Celiac. My auntie had Hashis and PA , and my cousins also. One has Gluten Intolerance dx but is in denial about Celiac as her blood test was 'normal'.

hez Enthusiast
hez
Posted

I had thyroid papillary cancer before my celiac. My mothers doc is convinced they are related.

For me thyroid cancer was not a huge deal. It has an extrememly high cure rate and little side effects to treatment. I had surgery to remove the thyroid and lymph nodes. The cancer had spread to the lymph nodes but again it is not a huge deal. For some reason in thyroid cancer it does not spread through out the body if it goes into a nodule, it just sits there. After surgery we did follow up radiation treatment. Again no side effects. Really the worst part was being in isolation after the radiation treatment. Now I take synthroid (pill) to replace the thyroid functions.

Fast forward 15 years later and I get my celiac dx. I am not sure if my surgery was my trigger or the birth of my son. I tend to think ds only because I was sick months after giving birth.

I will send prayers and good thoughts your way and for your Aunt.

Hez

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.