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Suzysliw

Newbie-43 With Osteoporosis

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Hi, (Great forum!)

I'm hoping and searching for some answers. I was diagnosed with osteoporosis. I'm a healthy active 43 yr old that has a T-score of -2.5 (hips). Other than being a caucasian female of short stature I do not have any other risk factors. I do believe the Osteo is a secondary condition. I'm on a mission to search out the hidden culprit of this disease. Though I do not have any gastrointestinal problems there are a few risk factors that might apply to me. I have an occasional skin rash(for 15 years) that has never been diagnosed but looks exactly like DH. I have had some slight tooth enamel problems and have been dx with depression and anxiety. I insisited my GP order a celiac panel but he assured me that the first step is to have a Vit D test,PTH test first. He said that I would definetly need to be Vit D deficient if he were to consider the Celiac test. I haven't come across and evidence that this is true. Any info.advice or suggestions would be greatly appreciated.

Thanks Susan

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No, you dont need to be viatamin deficient to be a Celiac. Many are, but its not a requirement. Your doctor is misinformed and giving you incorrect medical advice. 97% of Celiacs are undiagnosed and 1 in 133 Americans have Celiac. NIH realized that the medical profession here knows little to nothing about Celiac, and launched an awareness campaign last year for DOCTORS, in the hopes of providing more accurate information.

Insist that he order it, or find another doctor. Many doctors don't know anything about Celiac, so if this is the case with yours, it might be worth finding a better GP.

Ensure that the FULL panel is run. You can find it at:

http://www.celiacdiseasecenter.columbia.ed...C05-Testing.htm

Print the test list out and bring it with you.

Also, you probably want to have your rash biopsied. You'll want to find a doctor that knows about it, so that they correctly biopsy it (the site around the rash, not the rash itself).

For more information, I suggest you check out the book listed in my signature. Its a wealth of information and will help you greatly.

Best of luck!

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Thanks for taking the time out to respond to my inquiry. I'm on my way over to my Dr.s office and will hand him the Celiac test printout and insist on it. He does claim to be informed and currently is treating several celiac patients. He is adament about the vitamin D test specifically showing defifiency. I'd really like to prove him wrong but I cannot seem to locate any info that supports this. Might you know where I can obtain this? I've looked on all of the main sites.

Thanks for your time-Susan

No, you dont need to be viatamin deficient to be a Celiac. Many are, but its not a requirement. Your doctor is misinformed and giving you incorrect medical advice. 97% of Celiacs are undiagnosed and 1 in 133 Americans have Celiac. NIH realized that the medical profession here knows little to nothing about Celiac, and launched an awareness campaign last year for DOCTORS, in the hopes of providing more accurate information.

Insist that he order it, or find another doctor. Many doctors don't know anything about Celiac, so if this is the case with yours, it might be worth finding a better GP.

Ensure that the FULL panel is run. You can find it at:

http://www.celiacdiseasecenter.columbia.ed...C05-Testing.htm

Print the test list out and bring it with you.

Also, you probably want to have your rash biopsied. You'll want to find a doctor that knows about it, so that they correctly biopsy it (the site around the rash, not the rash itself).

For more information, I suggest you check out the book listed in my signature. Its a wealth of information and will help you greatly.

Best of luck!

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a search on pubmed will show that, for celiacs, magnesium is a bigger player in osteoporosis than Vit D or calcium.


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Hi, (Great forum!)

I'm hoping and searching for some answers. I was diagnosed with osteoporosis. I'm a healthy active 43 yr old that has a T-score of -2.5 (hips). Other than being a caucasian female of short stature I do not have any other risk factors. I do believe the Osteo is a secondary condition. I'm on a mission to search out the hidden culprit of this disease. Though I do not have any gastrointestinal problems there are a few risk factors that might apply to me. I have an occasional skin rash(for 15 years) that has never been diagnosed but looks exactly like DH. I have had some slight tooth enamel problems and have been dx with depression and anxiety. I insisited my GP order a celiac panel but he assured me that the first step is to have a Vit D test,PTH test first. He said that I would definetly need to be Vit D deficient if he were to consider the Celiac test. I haven't come across and evidence that this is true. Any info.advice or suggestions would be greatly appreciated.

Thanks Susan

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Hi, (Great forum!)

I'm hoping and searching for some answers. I was diagnosed with osteoporosis. I'm a healthy active 43 yr old that has a T-score of -2.5 (hips). Other than being a caucasian female of short stature I do not have any other risk factors. I do believe the Osteo is a secondary condition. I'm on a mission to search out the hidden culprit of this disease. Though I do not have any gastrointestinal problems there are a few risk factors that might apply to me. I have an occasional skin rash(for 15 years) that has never been diagnosed but looks exactly like DH. I have had some slight tooth enamel problems and have been dx with depression and anxiety. I insisited my GP order a celiac panel but he assured me that the first step is to have a Vit D test,PTH test first. He said that I would definetly need to be Vit D deficient if he were to consider the Celiac test. I haven't come across and evidence that this is true. Any info.advice or suggestions would be greatly appreciated.

Thanks Susan

I'm not sure your Dr has the whole story. I am in a similar situation. Long story short..same age as you, short stature, thin, and osteopenia and had four teeth fixed due to enamel defects. I have no stomach symtoms but have been very tired, and bloated after eating certain foods. Until recently, my past endo drs. did a lot of tests but never figured celiac for my deficiencies. I have been low in calcium, Vit D, and iron in spite of taking supplements, vitamins, etc.

My dr finally decided something was to blame for malabsorption so ordered the transglutanimase test and then the endomysial test. Both were positive. He has also been doing the PTH tests and that does fluctuate depending on how my calcium absorption is. There is a connection but the Vit D test is not the marker for celiac, and the PTH relates to your calcium levels.

I have not seen a gastro dr yet, but have been trying to eat gluten free for about 3 weeks and have seen and felt a huge difference. No bloating at the end of the night, so much more energy, "brain fog" has pretty much greatly improved, and the mood is a "who cares" attitude now instead of impending doom.

I think you need to pursue your own research like I have, make the connections, find out the correct tests to ask for and then go in to your doctor and make him listen.

Good Luck!

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