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Feels like a week ago but it's only been a couple of days since the Doctor told me that I dont have Crohns, Cancer, Lymphoma, etc...but..TA DA! Celiac Disease! The big wild goose chase was over. I felt happy to say "Ok. Now that your done messing with me and tons of antibiotics...what now?" Which...Im gonna be nice to the man...he only told me was to see a dietician and didn't really explain much beyond that. He made me feel horrible and told me that I probbably had this a lot longer but with all the stress from my miscarriage, my family, working full time while going to University full time started to make it symptomatic (with a vengance!!!!)...well..in between all that "blaming game" stuff..I did get some answers! LOL

But, now I got more questions..I was wondering...what now? I mean, where do u even begin to start this gluten free stuff if your last memory of the word gluten was in grade 10 cooking? I looked up some stuff on the net yet I still dont get it. There's just so much to take in. For example, vitamin supplements? immunity boosters (not like I need this by the way!)? Joint pain? Im still forbidden to take anything remotely close to aspirin and ibprophen so...what can I take?

Im confused hee hee hee. So basically...any good books you could recommend on this?

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Welcome, I know it is overwhelming at first. Take a deep breath and take it slow. It will get easier. The best way to start out is just eat basic at first. An example is chicken, vegetable, rice, corn. Many newly diagnosed also react to dairy. Again welcome.

Susan


Dairy/Cesain free Oct. 2005

Gluten free June 2006

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Don't worry, take one day at a time and each day it will get easier! We have all been at the beginning of the road you are now on, and we are here to answer as many questions as you can fire away at us! Our motto here is there is no such thing as a silly question, so just fire away!

Where in Canada are you? I might be able to steer you in the right direction regarding foods, etc....

Hugs and Welcome!

Karen


Karen

positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."

Unknown

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You are where I was three weeks ago and the response you got from your doctor is very similar to what I heard. It is SO overwhelming. Then I got it down for a week and now the past two weeks have been miserable. It's such a roller coaster. A good book to start with is "Celiac Disease: A Hidden Epidemic" by Dr. Peter Green. It's informational but easy to read. Another book I found to be okay to start out with easy recipes was "Beyond Rice Cakes: A Young Persons Guide to Cooking, Eating and Living Gluten Free" by Vanessa Maltin.

I would definitely recommend seeing a nutritionist. Don't just use the one your doc. recommended if you can find one locally that specializes in working with Celiac patients. I've been waiting for my appt. which is still two weeks away but I'm told she is one of the best where as the person my doc. recommened barely knew the definition. They will help you sort out the supplements stuff. For now, continue taking whatever you've been taking (if anything) but make sure it's gluten-free. It is so easy to get confused researching on the internet. One site says one thing, another site says another and you'll hear different opinions from just about every direction. The easiest thing I can say is do what works for you.

As for cooking- the first week I started feeling really good I had made a lot of easy on the stomach soups and chicken and rice casseroles with veggies. The only sweet snack I had was a bit of chocolate bar for dessert but I've since eliminated that. The best advice I got was to not go gung ho on the gluten-free products on the market at first. There will be plenty of time to try those!

Amy


Diagnosed with Celiac Disease February 2007

Finally feeling better than ever!

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Welcome to the forum - and welcome to the gluten-free life!

What others said - it gets easier. It's like learning a new skill, just takes some time to absorb all the informatino.

A good place to start is right here, reading threads. If you have to pay out of pocket for the nutritionist, you might want to save your money. After a couple weeks of reading information here on this forum you'll know more than they will.

Also, on the main section of Celiac.com is tons of information and recipes.

Celiac.com Site Index

And, of course, the website of Celiac Sprue Associatino

CeliaceSprueAssociation


Valda

Enterolab results: ...two genes for gluten intolerance ...casein intolerance

other sensitivities: corn, eggs, soy, potato, tapioca

Hypoglycemic

Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)

Living a healthier, happier life.

-------------------------------------------------------------------------------------------------------------------

If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

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"Living Gluten Free for Dummies" and "Wheat Free, Worry Free" by Danna Korn are excellent books for getting started.

Welcome to the board, you've found the best source for info right here. Lots of knowledge and helpful people here. Made my first month gluten free a heckuva lot easier.

Ask lots of questions, that's what we're here for. B)


John

positive blood tests 2/07

positive endoscopy 2/07

colonoscopy with benign polyps 2/07

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You are where I was three weeks ago and the response you got from your doctor is very similar to what I heard. It is SO overwhelming. Then I got it down for a week and now the past two weeks have been miserable. It's such a roller coaster. A good book to start with is "Celiac Disease: A Hidden Epidemic" by Dr. Peter Green.

I second the Peter Green book. I just bought it off Amazon and I can't put it down. Granted someone with Celiac would probably not find it so fascinating. But it's well written and easy to understand so far.

violet


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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your last memory of the word gluten was in grade 10 cooking?

at least you HAD heard about it! but of course they were probably taking about kneading the bread to build up that good gluten! :lol:

you get used to the restrictions, where gluten tends to hide, etc. Being on this forum has definately furthered my education - -who knew I had to worry about charcoal! :o

personnally I used the on-line gluten-free product lists and read a lot of labels and stayed away from anything questionable. But I'm a pragmatic, "just do it" kind of person. I researched for a couple of weeks before I committed, and then went for it.

This forum has a lot of helpful info and a search feature to check on past items. Good luck, and we're here when you need us for info or venting!

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:lol: I'm taking the biggest biggest "big breath in, slowly let it out" I got. It is overwhelming but yeah...I know I'll get there. I did have a good laugh though when I went out to get some chips (Wedesday is movie night). I was reading the back when my niece asked what I was doing and I explained it to her. Then she turned to me and said "Wow Iya...your one expensive person now huh?" She was looking at the prices for bread and stuff. It was cute!!!!

But thanks! I'll go grab those books. Books are always so much easier to understand (for me anyways). Its going to take some time and adjusting and I know that but...it still feels crazy. Not the coo coo crazy but the "ok...Im going over here now" crazy.

Thank you all for your wonderful advice. Someone said something about charcoal...I never knew that either! :lol: I'm def into the whole books for dummies things. Its nice not to feel as out of it as I felt a couple of days ago. I dont know if this is going to make sense but for me...its like I got a direction to go towards and a place I can ask questions of people who know and may have lived what the hang Im talkin about :lol: Its something tangible and not something I cant see type of deal anwyays ;)

And for Karen, I live in Northern Quebec on the Border with Ontario. :lol: Prolly why I speak english instead of french hee hee hee

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Hi, and welcome!

I live in Quebec too, in Chelsea, which is very close to the Ontario border at Ottawa. Feel free to email me if you want any 'Quebec-centric' resources/advice!

Cheers,

Kim

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