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ravenwoodglass

Double Scope Next Wk Lots Of Biopsies

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As some may know I had a severe episode of D and V with a lot of bleeding last week. I saw the doctor today and he agrees it was most likely food poisoning as I have none of the problems I would usually have with gluten poisoning.

He is doing a endo and colonoscopy together next week. This will be my first endo and my second colonoscopy. I was diagnosed 5 years ago but didn't have an endo at that time as the gluten challenge almost killed me. When I saw the doctor today he decided to do both. I recieved a packet of materials with instructions before the test. In the packet was a sheet saying to avoid wheat, fiber, oats, unpeeled fruits and nuts and seeds for 4 days before the testing. Nuts and seeds will be hard as they are a primary protein source but I'll get through it. I didn't get anything like this before though. He also ordered a celiac panel that the nurse forgot last week which better be negative.

He said he was going to do a lot of biopsies, he was almost rubbing his hands together in glee, and that he was very interested in what they might show. I told him if they show anything I will be shocked and dismayed because I am pretty much symptomless now.

My big concern is discomfort levels after he takes all those biopsies on both ends. For those of you that have had biopsies done is there much discomfort afterwards? Does it last for very long?

My biggest concern of all though is the Big C, I have had a swelling that has continued to grow for over 2 years now. They did some tests last year and just said my intestines have moved out of where they should be but my internest just let it go at that since I am not usually in pain. I know no one can help with that concern but just 'talking about it' sometimes helps. I went misdiagnosed for so long it is hard for me to not think about the possibity.

Anyway back to the original query, are these biopsies going to cause pain after they are done?


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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When I had my endo and biopsy, almost two years ago, I felt no pain from the biopsy whatsoever. I did have a raw throat for a day or two. I felt no internal discomfort at all. Don't worry about that at all. Many others don't even have a soar throat. The internal nerves are not the same, as in hemoroids, you can't feel them and only know when some blood is pass in the rectum.

The endo proceedure is nothing to worry about. I got a shot, went to sleep, woke up and they were feeding me juice and CRACKERS, after he just viewed the villi blunting.

And, as you know, the worst part of the colonoscopy is the prep, that was yucky.

If you doctor is correct with the potenial food poisoning, every thing else should be fine. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Hi Ravenwood :) ,

I had the colo and endo done the same day almost 2 years ago (June). As you know, the roughest part of the colo is the prep :angry: . The actual day of my procedures went fine--I was incredibly nervous because I didn't know what to expect.

I remember nothing from shortly after the IV went in until I woke up in recovery. I had no pain at all--not even the sore throat! He took biopsies from both my small and large intestine, because at the time, he was ruling other things out. I had absolutely no pain or even a feeling that anything had been done.

I don't recommend this, but on the way home from the surgical center, my husband and I stopped at Whole Foods :ph34r: . I can honestly tell you I had no problems at all.

I'll be anxious to hear how you do--please let us know :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks guys, he didn't do biopsies with the first colonoscopy and my DH was the one who brought up the idea of possible pain. I am glad to hear that the biopsies didn't cause problems that is a big relief.

Does anyone know for sure if Dulcolax is gluten-free? I'm supposed to take a few with the Nylightly the night before. I'm assuming the liquid prep though nasty is gluten-free but the other stuff is OTC and I have never heard of it. I am not looking forward to the prep, I'll get it as cold as I can I know that helped with the Golightly (what a misnomer that is) and hope it will with this stuff too. I didn't get any cramps last time but boy it took a long time to clean out all those diverticuli.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Hi,

if I remember right from Physiology, the gut (stomach, etc) doesn't have pain receptors. The pain or sensations that we feel come from stretching / movement.

I also had no pain from biopsies (I did mine with no anaesthetic (for top and bottom)) and although i could feel them taking the biopsies (a little tugging sensation), there was no pain associated.


Sally

Aussie living in Philippines, Manager, Triathlete, Mum to 2 dogs, 2 cats & fish

___________________________________________________________________________________

Hypothyroid, diag. 2000, desicated thryoid 3 grains + T4 50 mcg.

Pituitary adenoma, 2002 - no treatment (no followup yet)

Polycystic, 2000 - no treatment

IBD by biopsy - end 2006 (cause not investigated)

Suspected Gluten intolerant/celiac - not diagnosed

Gluten Free - start Dec 06 (big improvement in tummy troubles, though still not 100%..)

Allergies suspected to Rice, Mango, Chicken, some fish (though testing)... still trying to work it all out.

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As some may know I had a severe episode of D and V with a lot of bleeding last week. I saw the doctor today and he agrees it was most likely food poisoning as I have none of the problems I would usually have with gluten poisoning.

He is doing a endo and colonoscopy together next week. This will be my first endo and my second colonoscopy. I was diagnosed 5 years ago but didn't have an endo at that time as the gluten challenge almost killed me. When I saw the doctor today he decided to do both. I recieved a packet of materials with instructions before the test. In the packet was a sheet saying to avoid wheat, rye, oats, unpeeled fruits and nuts and seeds for 4 days before the testing. Nuts and seeds will be hard as they are a primary protein source but I'll get through it. I didn't get anything like this before though. He also ordered a celiac panel that the nurse forgot last week which better be negative.

He said he was going to do a lot of biopsies, he was almost rubbing his hands together in glee, and that he was very interested in what they might show. I told him if they show anything I will be shocked and dismayed because I am pretty much symptomless now.

My big concern is discomfort levels after he takes all those biopsies on both ends. For those of you that have had biopsies done is there much discomfort afterwards? Does it last for very long?

My biggest concern of all though is the Big C, I have had a swelling that has continued to grow for over 2 years now. They did some tests last year and just said my intestines have moved out of where they should be but my internest just let it go at that since I am not usually in pain. I know no one can help with that concern but just 'talking about it' sometimes helps. I went misdiagnosed for so long it is hard for me to not think about the possibity.

Anyway back to the original query, are these biopsies going to cause pain after they are done?

My 8 1/2 y/o just had a biopsy and a bowel biopsy and she did not complain of any pain. (which she complains over everything!) I had a sore throat after the egd and no pain after the colonoscopy. They weren't done at the same time. The EGD was done after an ER visit for sever abd./flank pain and major vomitous (only once but at least 24 hours worth of undigested food ---->celiac disease).

Good luck!

Jacqui


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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You have all set my mind at ease a lot. Still not looking forward to the prep but as you all know it is doable, just not pleasant. Thanks again everyone.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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RWG---Best of luck. I hope that it provides some much needed answers for you.

I've had multiple endos and colonoscopies...two of them were joint like yours. My last one was done at Johns Hopkins and he biopsied everything, in multiple sites: eosaphagus, stomach, small intestine, large intestine. I didn't have any pain from the biopsies.

Keep us updated, and I hope it goes smoothly for you.

Laura

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Anyway back to the original query, are these biopsies going to cause pain after they are done?

Just adding my encouragement. I had a combo endo/colonoscopy done last year. The doctor took biopsies of my esophagus, stomach and intestines and even removed a polyp from my stomach. I felt no pain afterwards at all...I had a slight sore throat and that was it.

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