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Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.


28 yr old Male

Diagnosed Celiac in February 2007

Gluten-free/Casein Free

HLA DQ 2,3 Subtype (2,8) I have both celiac genes!

Married

1 child 9 months- Levi

Yeast/Bacteria overgrowth

" CHANGE THE WAY YOU LOOK AT THINGS AND THE THINGS YOU LOOK AT CHANGE"

Wayne Dyer

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Dear holdthe gluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan


Dairy/Cesain free Oct. 2005

Gluten free June 2006

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Dear holdthegluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan


Dairy/Cesain free Oct. 2005

Gluten free June 2006

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You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly. Google the words "coffee gut irritant" and you'll find heaps of proof.


Gluten intolerant - self diagnosed 2007 (not willing to do gluten challenge) and anemic

no dairy, soy, legumes, eggs, sugar, chocolate

no baked and processed foods (also gluten-free bakery) and high GI (due to hypoglycemia)

enjoy brown rice, buckwheat, quinoa and polenta instead

neurological symptoms flare up when glutened and in times of stress

following paleo diet, lots of raw fruit and veg, omega 3 oils, nuts

I feel heathy and able to function for the first time in my life. Thank God.

Organic food gives a great advantage.

Kefir rules!

On a mission to get rid of Candida overgrowth after a stressful event dropped my immune system. On a strict anti-candida diet using herbs and natural remedies. No meds or drugs to make it worse thanks.

http://www.gilbertssyndrome.com/candida.php

http://www.candidasupport.org/candida.html

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You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly

This is only true for some, not for all. Coffee has never bothered me, never. Tea has bothered me. I stopped drinking tea for a long time after going gluten free, I never stopped with my coffee. We are all different and no standard other than being completely gluten free is true for "all".

Some gluten intolerant have to give up dairy, but not all, I didn't. Some gluten intolerant can tolerate soy, some of us can't.

Coffee is bad for those who can't tolerate it, but it is fine for those of us who can.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Coffee has always given me the runs, but the real reason I don't drink it is the post-caffeine crash.

There seems to be a link between gluten and bipolar syndrome--and there is a very strong link between coffee/caffeine and bipolar syndrome. Like Deb says, we are all different--but if you have any tendencies toward neuro issues, I would steer clear of both gluten AND caffeine!

That said, because of coffee's acidity, I would agree that it is a likely irritant to a not-yet-recovered leaky gut.

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Coffee does terrible things to my stomach and sleep patterns. I drink green tea with soy milk!


gluten-free since March 07

Postive Dietary Results

blood test negative after month of gluten-free Diet

Many GI Problems

dental enamal problems

Weak bones prone to breakage

Depression/anxiety

Lactose Intolerant

Gallbladder Chronic Inflammation leading to removal Jan. 06

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I can drink coffee or tea without any problems.


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....

If you take a ristretto its half the water of a expresso and 1/5th of a "long" type coffee ....

Personally i like a good ristretto but if you prefer something "longer" then start with a ristretto and then add water instead of pushing more water through the beans... which at this point is mainly just leaching out more caffine and hardly any flavor...

The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

If you google there are quite a few analyses of different coffee's ... I seem to remember the McDo's was the highest in caffine ...

Anyway....its a different way to look at it I suppose.... its just one of those things that is at first counter intuitive.


Fere libenter homines id quod volunt credunt. (JC, De Bello Gallico Liber III/XVIII)

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The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

Do you mean coffee made in a French Press? The taste depends on the coffee you use. Also, I think the taste is a personal preference.


Tapioca intolerant

First cousin dx'd with Celiac Disease

Grandmother died of malnutrition b/c everything made her sick... sounds like celiac to me.

Gluten-free since June 2005

Dx with IBS February 2005

Blood tests both negative (or inconclusive?) for celiac (in 2002 and 2004)

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Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

I had to give up coffee... :(

And boy, did I fight it!!

I drink chai tea now, as it is spiced, so it has a bite to it, which is a little more interesting to me than plain tea. It has made a big difference with my acid reflux - which could be causing your nauseau. Sometimes when we get rid of the gluten, we start noticing all the other things that are sensitive, I think.

Sheryll

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Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

Yes - I stopped drinking about a week ago and have noticed a tremendous decrease in the pain in the left side of my gut. I started drinking tea in the morning and haven't missed the coffee a bit.

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I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.


Dx 3/23/07

Gluten free 3/27/07

Intolerant:

Gluten

MSG

Allergies:

Ragweed

Honeydew

Cantalope

Nickel (jewelry)

Dx'd Lymphocytic Colitis 6/16/08

I am a bad silly-yak!

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I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.

sdr,

May I ask why you had to give up sweet & low (sacchharin) ? I've never used it (it's very bitter to my taste buds), but my wife uses lots of it (not celiac). I have read that of the main three sugar substitutes, it is the least objectionable (health nut wise, and I say that with all due respect as I may be one myownself), with equal (apertame) next and then splenda (sucralose).

Did you have actual reactions to it, or just gave it up on general principals?

best regards, lm


gluten-free 12-18-06

colonoscopy, upper GI
blood, urine, stool tests, prometheus panel
positive endoscopy/positive duodenal biopsies (severe villous atrophy, high intraepithelial lympocytes)
diagnosed celiac disease by Gastroenterologist Andrew R. Gottesman, 12-18-06

"Sobriety sucks. That's why they invented booze in the first place." Denis Leary - Rescue Me

Beware the chocolate of Chiapa

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Hi ya'll Donna here

I can drink coffee with my sugar and cream (Coffee Mate Cream) is Gluten Free ya!(International Creamers) are not that i know of. But I can not drink the dark blends they tend to really hurt my tummy. Soft drinks have to be diet (I know aspertame is not good for me as well), regular hurt my tummy. I mistakely on Friday morning (I work nights I drank it at 3AM for everybody else that would be 3 in the afternoon you have to look at it that way) a regular Cherry Pepsi and my stomach burned for a while, and I think that contributed to my Migrane that I had on Sunday that started on Saturday night, My system is slow so my reaction time is about 1 to 2 days, sometime sooner. But I saw somewhere that flavored coffees are a no no for people who suffer from celiac disease or might suffer from celiac disease. So I stopped drinking flavored did not miss it too much. I do go to 7-11 for coffee and sometime choose to put the flavor syrup but i have to put sugar free flavor because the reg has high fructose corn syrup.


Fecal Antigliadin IgA 21 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 13 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 12 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

You can teach an old dog new tricks!!!

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Oh well poop. Just burst my bubble why don't you? I buy the really good stuff and drink only espresso. So that dark dark brew actually contains LESS caffine? Uggggg. Well, I still prefer the taste, particularly since 2/3 of what I drink it decaf. Only way I've ever found to make decaf drinkable.

Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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heya

i must say for myself my tummy has never been able to handle much caffine. i have been a 3 cup a day coffee drinker for 5+ years now and recently gave it up about 1 month ago (also briefly gave up 1 year ago but only for 1 month) I like the 'high' caffine gives me' but most ppl i know think i am depressed whenever coming down from the high. i tell them my brain is just having a rest! lol i am very sensative to all sorts be it caffine, alcohol or drugs (over the counter/prescibed ones. havent done any illegal ones apart from trying pot twice when i was 18, just didnt interest me)

but since i gave up coffee i have noticed a 'calm' within myself when i was always tense on coffee and of course it added to my tummy probs i think. and now whenever i have a high caffine cola drink or just too much cola, i get Horrible pains (last time i had some unknowingly. wasnt till my BF checked the label as he thought it Smelled like coffee, turned out to be coffee flavoured cola and higher caffine content in it)

and on the other hand, caffineated tea tends to Help me go to the toilet often, if i am a bit 'stuck' (thought some of u may like that info lol)

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Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

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Pure coffee is highly unlikely to have gluten in it. Coffee beans live in the company of other coffee beans when they're harvested roasted and ground. The roasting equipment and processes are unique to coffee beans so they would not be sharing equipment with anything else. The exception would be some flavored coffees. Added flavorings can have gluten in them. The flavoring is not in the bean but added to the coffee as or after it's ground. I personally carefully check for those few companies that think chicory belongs in coffee. I'm allergic to chicory. But pure ground coffee beans are going to be gluten free unless someone deliberatly adds gluten to them, cross contaminates them in the process of brewing your cup of coffee, or perhaps uses the coffee grinder for grinding something other than coffee beans.

There is also the matter of what creamers and sweetners are used. I'm highly allergic to that Stevia crap. My reaction to Stevia is horrendous, much worse than to gluten. Others have allergic reactions to other sweetners. Some people, particually those newly diagnosed have issues with concentrated amounts of sugar and or milk products. Not all non dairy creamers are gluten free.

Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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