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TrillumHunter

No Need For Biopsy

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I am mainly concerned with checking him for diabetes annually and also testing his tTG levels.

Your regular doctor can do this. Most GI doctors don't think of or look for celiac in the US. If you find one who is not going to ask for a challenge and biopsy you have found a real needle in a haystack. If the above are the main concerns IMHO save your money and time, a GI doc isn't going to help you with those. He is proven by bloodwork and dietary exclusion that is enough, you don't need a doctors permission to keep him gluten-free. If the concern is school you regular ped, the one who had the positive blood test, will most likely give a doctors note. After a bit of time on the diet the changes in your child will be enough to confirm his diagnosis.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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