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bigapplekathleen

Extreme Fatigue After Ingesting Gluten?

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Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

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Kat:

Gluten give me the fatigue, dry mouth and irritability in addition to brain fog. I am curious though, why take charcoal pills?


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Hey Kat--long time no see--how are you doing other than being glutened?

Charcoal tablets are suppose to absorb stomach acid, I think anyways! I know I was told to try them once, yet never did.


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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Hey everyone, well 3.5 years and I haven't had too many 'mistakes'...but oh! I had one today. I took some charcoal tablets the instant I started having symptoms (about 3 hours after lunch) and made it through a concert I was singing. However, I am totally wiped out and feel the need to sleep immediately. I remember this happening when my doctor had me do a gluten challenge (which I failed miserably and had to stop)...I literally fell asleep after eating and couldn't be awoken by anyone. This happened several times.

Does this happen to anyone else? It is so rare that I accidentally ingest gluten that I can't even think of the last time...maybe a year ago....maybe two!? ( I usually only eat at GFRAP restaurants or else I call the chef in advance, but I didn't do that today..)

Thanks,

Kat

non-celiac gluten intolerant (severe) - had positive bloodwork, but negative genetic test

multiple food allergies (all have subsided after using the gluten-free diet)

gluten-free Diet since Aug. 2003

"Chef extraordinaire" (now!) by necessity and love of food!

Yea, it is part of the neurotoxic effect. I up my sublingual B12 and try to sleep as much as I can. Not much else I have ever found to help. I hope you feel better soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I am very fatigued after a gluten incident. Of course, it also causes me problems with sleeping, making matters worse. My anxiety kicks in and I end up laying there worrying.

Kind of a viscious cycle....


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

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Hi Everyone,

I feel better today, but a little groggy. I am going to get out into the sunshine for a nice walk, since it's in the 80s today (finally!).

Someone asked about activated charcoal....it helps to absorb the 'mistake' and stops all of the grumblings, etc. My celiac nutritionist and my naturopath both recommended it, and it really does work. Without it, I am miserable for days. With it, I am miserable for less than 24 hours.

Thanks!

kathleen

How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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How cool is that! Thanks for sharing that with us. Do you find that it helps with other symptoms, or mostly just the GI ones (which is plenty)?

Nancy

I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

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One of the big reasons I have to stay home when I'm glutened is because of the awful gas I get (why should everyone else suffer? ;) ). I'll get some to keep on hand for those times when I HAVE to go somewhere.

Thanks.

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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I have found that activated charcoal capsules work extremely well when I'm doubled over with gas pains. Unfortunately, I don't always remember this right away and suffer longer than needed. I have no idea if charcoal is "recommended" for celiacs, but it certainly does work! :)

AQ

Yes, activated charcoal is recommended for celiacs. Both my nutritionist and my doctor recommended it to me, and it really does work. In fact, I have given some to others with severe GI symptoms and they thought I was a genius. ha ha ha I would NEVER EVER be without a bottle in my purse!

Kat

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Charcoal huh? I'll see if I can get hold of some of that, my wife my find it useful.

The tiredness hits her about 12 hours post-glutening. I've known her to sleep 16-18 hours before non stop and just keep going. Extreme fatigue is definitley a good description.


I'm really just here about my wife. Its all her fault!

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I had an incident yesterday.

I have recently been buying cinnamon and strawberry chex which are now gluten free. They have a big Gluten Free logo on the front. Well, my grocery store puts them with all of the other cereal, which is fine, but the box has the same exact graphics just without the big gluten-free logo.

I purchased 5 boxes and thought that I had checked them all.

Apparently one slipped by me and it was the old cinnamon chex.

It only takes about an hour for the brain fog/irritability/extreme fatigue/sleepiness to set it.

I fell asleep on the couch at 1pm, relocated to the bed at 2pm, and woke up at 7pm wondering what I possibly could have eating.

It didn't take long to find the non gluten-free chex that say "barley malt extract" on them.

I still feel a bit foggy but I'm much better than yesterday when I felt like I'd been hit by a truck.

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