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Oddest Places That Have Gluten

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Ok lately i have been reading about things that have gluten that i would have never thought of. So I was hoping we could start an list of things that most people do not think about that would have gluten.

paula


gluten, casein and soy free

on low carb/low sugar diet

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All of us know, but newbies might not:

soy sauce

chicken/beef, etc. broth

chowder/soups

some nuts/seeds

spice mixes

rice mixes

Rice Krispies

Kellogs Corn Flakes

imitation crab

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Red licorice

Sour cream... not all but some do, I was surprised to find out.


luvs2eat

Living in the beautiful Ozark mountains in Arkansas

positive blood tests and later, positive biopsy

diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day

Dairy free since July 2010 and NOT happy about it!!

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Glue in Stamps and Envelopes

Corn Flakes

Shampoo/Conditioner

Art Supplies (paints, clay, play-dough)

Soups (used as a thickner)

Lotions


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

36_22_10[1].gif

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Ok lately i have been reading about things that have gluten that i would have never thought of. So I was hoping we could start an list of things that most people do not think about that would have gluten.

paula

Nivea and Pam (cooking spray) are not very gluten free friendly. I recently called both and they said:

1. Nivea - "we do not require our - oh dang the word is on the tip of my tongue - their suppliers to say where the ingredients come from ie. hydrolyzed protein...only food has to follow a law..." I told them Dove follows the International cosmetic_____ and require their suppliers to say what grain an ingredient is derived from. So I use Dove too.

***Dove sensitive skin has gluten! I sent my husband out hunting for it and after he got home and gave it to me I read the ingredients and it has I believe it is wheat germ in it. I was totally bummed but actually the Pro-Age and the rest are just fine.***

2. Pam - ConAgra foods said "...read the package and we use wheat in a lot of products!..."


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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Rice Dream milk substitute was a surprise to me!

Fortunately, their frozen vanilla "ice cream" substitute is okay, though.

This has always bothered me. How could the frozen stuff NOT have gluten? It would seem they would use the same "milk" and turn it into the frozen stuff. I don't let my daughter have it because I think it is suspect.

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Mentos

Some sorbets. I can't remember the brand but it contains glucose syrup derived from wheat.

Things at some fast food places such as tortilla strips and chicken breast.

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My (former) foot lotion, hair spray, and shampoo

Nacho cheese doritos (esp. when cool ranch is ok)

Twizzlers

self-tanning lotion

soy sauce!


Ev in Michigan

GFDF since 8/20/05

Negative Bloodwork ~

Dr. encourages me to trust my

"Gut Reaction"

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Glue on cardboard boxes (including cereal and other food boxes)

Glue on cardboard tubes (paper towel and toilet tissue rolls)

Stickers

Tape

Finger paints

Does anyone know about the soap in brillo pads?


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

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How about the glue that holds the toilet paper on the roll! :blink:

Well at least we wash our hands after we touch it!

(Chamin' and Cotonelle brands are gluten-free.)


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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Bird seed for the outside bird feeder. (So busy looking for nuts that I missed the gluten notice and got SICK!!!)

Dog food and dog bones

Minute Maid, Dole, and Tropicanna juices (Only 100% juice drinks are gluten-free. Pure OJ is fine, but Banana & Pineapple OJ is not gluten-free. Drives me crazy!)

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Tea. Had to toss a box of lemon tea once. Good thing I looked.

Other people's cosmetics. Men with an unsupportive wife/girlfriend who doesn't check her lipsticks, etc. probably have a lot of problems.

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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hiyas

over here in australia at least, m&ms, mars bars and snickers All contain wheat starch or Wheat Glucose Syrup! i thought i would mention it Becuz i have seen threads where ppl say m&ms and snickers are gluten free. i do realize things are made different in different countrys sometimes!

gluten free since 25th april 2007 (2 days so far ! yay lol)

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All of us know, but newbies might not:

soy sauce

chicken/beef, etc. broth

chowder/soups

some nuts/seeds

spice mixes

rice mixes

Rice Krispies

Kellogs Corn Flakes

imitation crab

CAN WE ALL PUT DOWN THE BRANDS WE ARE TALKING ABOUT? AND IF THERE IS A SAFE BRAND ie. paper towels/toilet paper...

I never thought about stickers or fingerpaints and am now totally stressed out b/c my 6 1/2 y/o has celiac disease and of course she uses all that in school and home. I feel like such an idiot!!! :o

So anyway if we could get a list of our own and share, of things that are foresaken or are safe for us. I have a 10+ page word doc of info that I have shared with new celiacs and have added some of the stuff I read today on this post...BUT not to beat a dead beat but lets so naming brands if that is possible.

Thank you and take care,

Jacqui and family


IBS 1994

Endometriosis

Hashimoto's auto immune disease

Diverticulosis

Celiac disease April 2006 - neuro symptoms I am assuming from celiac disease

HLA DQ 2 (celiac disease) and HLA DQ 6 (GS) either way my parents made sure I had something!

Insomnia

Hyperflexibility

Daughter 6 y/o (5 at diagnosis) celiac disease via labs (all >100) and flattened biopsy. NO symptoms!!

Daughter 8 y/o with BM ="C" since birth and breast fed, osteopenia, SEVERE eczema up to 5 y/o, now on and off (-) via labs and biopsy. HLA DQ 2 and HLA DQ 8! and possibly ADHD.

Son 3 y/o also HLADQ2 AND DQ 8! Negative panel

Husband MEXICAN and he has DQ 8! His family refuses all and anything with celiac disease, same with his PCP!

"What doesn't kill us makes us stronger..." Right? I think that's the saying.

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Well, thanks for all the reminders of how rediculously unessesary gluten can be! I don't get why malt has to be used in EVERY CEREAL! <_< And many, many other things, sheetrock mud, jeez I never heard that one :lol:

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over here in australia at least, m&ms, mars bars and snickers All contain wheat starch or Wheat Glucose Syrup
!

as far as i know, there is no gluten in glucose syrup from wheat - have read this on numerous "safe foods" sites from coeliac assns around the world.

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Kissing. If your wife/husband/significant other eats gluten, they can gluten you.

Fake nails. I got a reaction from getting "pink and whites" (french style fake nails). Never did figure out if it was the acrylic powder or the nail polish that was causing the reaction because of the language barrier.

:(

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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some nuts/seeds are "dusted" with wheat flour or barley flour (like sunflower seeds) - I think the purpose is to keep them dry and from sticking together.

Grill charcoal with gluten surprised me (would that be Kingsford brand?).

Hot dogs (unsure of brands as we don't eat them anyway)

tomato and spaghetti sauces (my Italian grandmother never used thickener of any sort in her home-made sauce)


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Hot dogs (unsure of brands as we don't eat them anyway)

Wouldn't the all meat hot dogs be ok?

Ed


banana baby

epilepsy dx'ed at 15

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CAN WE ALL PUT DOWN THE BRANDS WE ARE TALKING ABOUT? AND IF THERE IS A SAFE BRAND ie. paper towels/toilet paper...

I never thought about stickers or fingerpaints and am now totally stressed out b/c my 6 1/2 y/o has celiac disease and of course she uses all that in school and home. I feel like such an idiot!!! :o

So anyway if we could get a list of our own and share, of things that are foresaken or are safe for us. I have a 10+ page word doc of info that I have shared with new celiacs and have added some of the stuff I read today on this post...BUT not to beat a dead beat but lets so naming brands if that is possible.

Thank you and take care,

Jacqui and family

TOILET PAPER AND PAPER TOWELS ARE OF NO GLUTEN CONCERN. This has been discussed at great length in the past.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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