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familyfirst

Do Symptoms Come And Go?

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My DS's GI has ruled out Celiac disease(however, we see him on Monday and I'm going to probe him for more answers). He is still having minor syptoms after 3 weeks straight of D and stomach pain. He still has major stomach pain, but the D has disappeared even to the point of constipation. He also is now having major headaches with a heat feeling inside his entire body! He is on Nulev for D and stomach pain. He is having such extreme symptoms, I just don't know what to think...

Like I said, if the dr. doesn't give us more definate answers on Monday, I'm going to try the gluten-free diet and forget the medical dr. It won't hurt anything.

My question to the forum is...

Can you have symptoms that go away and start again? Or change over time?

Has anyone have a hot feeling inside their whole body and headaches?

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Absolutely! I started having stomcah issues at the age of 1-1/2 or 2 years of age. My sysmptoms came and went for years, I never knew when I would get sick. I was finally diagnosed at 13 years of age due to the symptoms being a daily occurence.

I was always a D sufferer but some people get C, or both C and D. I put out tremendous amounts of heat when I eat gluten. I also suffered from migraines rather frequently prior to going gluten-free.

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Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

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Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.

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Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.

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Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

You have definitely earned the right to rant. I feel bad for the medical community's ignorance of celiac disease then and still now. At least ONE doctor of yours could figure it out. I am so sorry.

If we were 100% symptomatic 100% of the time.....it'd be a lot easier to figure out and I guess we'd all be diagnosed by the time we were out of diapers. So the answer to familyfirst's question is YES.

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I'm new here and just began eating gluten-free 8 days ago after suspecting a wheat problem for many years, but not realizing I needed to give up all glutens in order to avoid the problem. I'm learning now, and have just had the most productive week I've had at work in years - literally.

Anyway, the reason I'm replying to this topic is because when I read that someone said they have had stomach problems since childhood, a lightbulb went on for me. I had a peptic ulcer when I was 5 1/2, and I've always wondered why. I think at the time, the doctor said I was born with a weak stomach lining or something. I'm 43 now, so that was a long time ago. But I was wondering if that ulcer was related to this. Has anyone else had ulcers, especially at a young age?

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Can you have symptoms that go away and start again? Or change over time?

Has anyone have a hot feeling inside their whole body and headaches?

I don't think everyone has the same symptoms either. I know I don't have the abdominal pain most have, though I do go from D to C and back again, have nice smelly stools, and have have the remains of red pimples on my back and sides (and I haven't even heard of DH until I began researching celiac disease on the net).

I'm in a venting mood, so forgive me if I'm grousing a bit much.

Ed in MD

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