Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Is This Just Wishful Thinking?


EVERYBODY'SAUNTIE

Recommended Posts

EVERYBODY'SAUNTIE Rookie

Hi , I just read an article in womans world magazine about gluten sensitivity and weight loss and it piqued my interest, so here I am. I am 34 years old. I developed alopecia (autoimmune disorder where your hair fall out in clumps) at age 13 and all my hair fell out by the time I was 20. Over the years my weight has gone steadily up. Lo carb worked for awhile but not anymore. I still try to eat that way tho because if I don't I feel pure wretched and have bad cravings. Also, I was diagnosed with fibromyalgia 6 years ago and continue to struggle with it in varying degrees of severity.

My question is: Have I maybe, finally found the missing piece? Is there anyone else out there with similar experiences who can attest to the validity of this way of eating? I have reached a point of desperation and am afraid to get my hopes up too high. Thanks

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor

Welcome! If you browse this web site for awhile, you'll learn lots about gluten intolerance/celiac disease.

The short answer is that yes, all the symptoms you mention can be signs of gluten intolerance/celiac disease, although they can certainly have other causes as well. You certainly would have nothing to lose by trying a gluten-free diet and seeing if it helps you feel better!

One word of caution, though: if you want any kind of official diagnosis, you have to be eating gluten - and lots of it - for the standard tests to turn up positive. So you might want to talk to your doctor about getting tested before you try the diet. That said, the tests have a high false negative rate, so regardless of the results of any testing, it's worth trying the diet to see if it helps.

I'm sure you'll get lots of advice here, but my top few tips about starting the diet would be:

1) There's a steep learning curve at first; gluten hides in all sorts of places that you'd never imagine. Hanging out here is probably the best way of learning the ropes!

2) You need to give the diet time - a few months, at least - before you can really judge whether or not it's helping. Some people see results right away, but many don't for awhile.

Good luck! :)

Jeanne

Link to comment
Share on other sites
Fiddle-Faddle Community Regular

Welcome!

I just wanted to add that if you check the list of symptoms for fibro and the list of symptoms for celiac disease--they are practically identical. Many people on this board have seen their fibro symptoms completely disappear when they stay on a gluten-free diet.

And I remember seeing posts from at least 2 women whose hair did grow back when they stayed off gluten, but it took a long time, as I remember. I do hope it works for you!

Link to comment
Share on other sites
Nantzie Collaborator

Welcome!

I had fibro-type pain symptoms for about three years before I figured out the gluten connection. Mine went away after I went gluten-free. Poof! Now the only time I have it is if I get "glutened".

Since you've already been eating low carb for a while I'd seriously doubt any tests would come back positive. They say you have to eat the equivalent of 3-4 slices of bread a day for 3-4 months. So at this point, you might want to just try the diet and see how it goes.

I also got really bad cravings, and one of the things I was able to look back on as an A-ha! was a diet I had been on that had cut out wheat.

Nancy

Link to comment
Share on other sites
kbtoyssni Contributor

I'm another one who was diagnosed with fibromyalgia whose symptoms have disappeared after going gluten-free. If you do have celiac, gluten is like an addictive drug to your system so going low carb can cause you to crave gluten and feel really awful withdrawal symptoms. They will go away if you stick with the diet for a bit. Autoimmune diseases also come in pairs (or triples, or quads...) so I'd say you're a perfect candidate for celaic. I think you should get tested, but remember there are a lot of false negatives. If you do get a negative from conventional testing, you might want to try the diet just in case.

Link to comment
Share on other sites
EVERYBODY'SAUNTIE Rookie

Thanks everyone, for your input. I dare say I feel just a little bit of hope for the first time in a long time. here goes nothin'..... :P:P:P

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,214
    • Most Online (within 30 mins)
      7,748

    Julez13
    Newest Member
    Julez13
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...