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OK this is really out of left field but last week was the first time in my life that I didn't get sharp pains in my back when my airplane got into a bit of rumble and tumble and it's the first time I've flown since going gluten-free in Feb. I evenn the Pirate Ship ride when I was 10 and came of bawling b/c of the pain. It's gone now but I am just really curious how the gluten caused something so insane?

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The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

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The last three years of my undiagnosed days (18 years total) I developed sharp, shooting, shock-like pains in my back and hips. Any unexpected movement just killed me. No idea why that is, but I've heard other people mention it too. The only time I get it now is if I'm glutened.

If you know your genetic type, I'd be interested to know if you have DQ1, especially DQ1, subtype 6. Pain seems to be more common with DQ1.

Nancy

Hi.

I, too, get sharp often excruciating pain in my left hip and lower back (also joint pain) when glutened. Besides all the neat GI symptoms... I am double DQ1, subtypes 5 and 6... Tra la. Hope you feel better!

lisa

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Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

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Thanks for sharing everyone!!! I'll let you know when I get the genetic test what it says I am. So far I've just done the blood test and endoscopy. Which brings up another question...has anyone heard of anyone testing positive on both of those but neg on the gene thing?

I've never heard of anyone testing negative for at least gluten intolerant genes actually. They say that most people carry at least the gluten intolerant genes (it's just that not everyone develops the intolerance).

But then again, people don't go around investigating these symptoms if they're not having serious problems. You don't come across celiac disease on a whim. So someone with no issues wouldn't have a reason to get enterolab testing.

I'd love to see someone with no symptoms, GI or otherwise, get enterolab testing just to see if the genes show up for them. But I don't know a single person that doesn't have at least some type of possible symptoms.

Nancy

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