Celiac.com Sponsor (A1):

Join eNewsletter

Celiac.com Sponsor (A1-m):

Join eNewsletter


This topic is now archived and is closed to further replies.


Interesing Series Of Events...

Recommended Posts

that led me here! Hi! I'm brand new, I do not know if I have celiac disease or not, and i don't even know if I am posting in the correct forum but here goes!

I am 33 years old and for about 10 years now, not every time but just about, I show as anemic on blood tests. Never really thought anything of it. 4 or 5 years ago, I try to donate plasma, only to be told I cannot because my liver enzymes are elevated. I've had numerous blood tests over the last several years and most of them show elevated liver enzymes. Doctor sends blood off for more tests (the usual, hepatitis and so on), all normal. He doesn't seem concerned, not even after 4 years. I start seeing his PA (because he was booked) about weight loss (needing to lose it), a mysteriously fractured foot (nothing unusual, just riding a bike and it fractured) and so on, and after a hernia surgery PA becomes concerned that my liver function tests show elevated enzmyes. Again, I think nothing of it because I had asked the other doctor why that occurs, and he tells me that "sometimes it just does". PA sends me to the lab for a repeated blood test a month ago (and a month after the last) and the results are the same (though I do not know how elevated). He's concerned enough to send me to a GI on the 16th of this month.

I was doing research about this, because i want to know what it is, and I ran across a lot of information about celiac disease. I'm a little shocked because I do have symptoms that grab my attention. I have had strange sores on the top of my head for the longest time: I had them as a kid but they went away and then returned 4 or 5 years ago after the birth of one of my sons (don't remember which, lol, but they are 4 and 5 years old). As a baby, I had eczema. I still get it on occassion but not as bad. My sister has elevated liver enzymes but was never sent to a specialist for it. My mother and sister both have IBS and while I was never diadnosed as having it, I think I do too.

And now...the crazy part. Both of my sons are autistic. My older is high functioning, my younger is mild and only now beginning to echo words. Both have bad eczema. Their doctor always sent them off to the dermatologist and they have medication for that but I always wondered if dairy and wheat played a part in their skin problems. The older I get, the more i cannot tolerate dairy myself.

Who knows...perhaps I am reading more into this than I need to, but it is a strange series of events. Do I mention all of this to the GI, including my son's problems? A lot of people seem to agree that leaky gut and autism are related, and I am not so sure I don't believe that, you know? I bet it does play a role (kids father has autism too, so it's not totally that).

Anyway, thanks for reading this and any information or suggestions you can give I'd be greatful for. In case it matters either, I am over weight, and only became overweight while i was pregnant with my first child. I used to be very thin and nothing really seems to work in taking the weight off.



Share this post

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

There are cookbooks developed specifically for autism - gluten free/casein free. That's how strong the connection is between autism and diet. I am not saying it causes autism but people with autism seem to do better behaviorally and academically on a gluten-free/CF diet.

You are correct to pursue the possibility of celiac. Trying gluten free at the very least with your children may be a wonderful thing. My daughter has Aspergers - and when she was diagnosed celiac and we went gluten free- I cant tell you how marvelous the transformation was ! Teachers stopped me in the hallway to comment on her improved coping skills, her attention and co-operation. Her energy levels soared.

Welcome to the board - there are several families here on the autistic spectrum themselves or have children within the autistic spectrum.



Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats



daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

Share this post

Link to post
Share on other sites

He Jen, and welcome to this board. I am one of the people Sandy is referring to, I have Asperger Syndrome and Tourette Syndrome (I finally found out at the age of 50, four years ago!)

Your symptoms all sound a lot like celiac disease. I was as skinny as a stick as a child and teenager. The more my mother tried to fatten me up (with dairy and flour products), the skinnier I got! And I was depressed from a very young age (being abused didn't help), I had no coping skills, and other kids hated me for being different.

When I was pregnant with my first child I started gaining weight. No matter what I tried, I couldn't lose it again. I had four more children and eight miscarriages, meaning I was pregnant or nursing for a long time, and gaining and gaining.

The weight gain finally stopped (and I lost some) after going gluten-free in October of 2005. Now we (my naturopathic doctor and I) are working on getting my adrenal fatigue and thyroid problems under control, which will hopefully result in losing more weight. But, more importantly, in getting some energy back.

I've always had skin problems, too. And angry outbursts (in which I sometimes did things to hurt myself), which have pretty much gone away completely. I used to be severely anemic, too. A lot of people with celiac disease have osteoporosis, because of a deficiency in vitamin D, and as a result, calcium and magnesium (you can't absorb those minerals without vitamin D, and if your villi are damaged, you won't have enough of that).

You have an ignorant doctor! Something should have been done about your elevated liver enzymes and anemia long ago.

For some people, gluten and dairy will cause symptoms that mimic autism. When, on the other hand, the autism is genetic, a gluten-free and dairy free diet often helps, because autistic people have a higher likelihood of being intolerant to those for some reason. And while the diet won't take away the autism, it helps them to function much better. That is what I find.

So, I suggest you get tested for celiac disease. But even if the tests come back negative (which they might if you have a gluten intolerance/sensitivity, but your villi aren't damaged), you should still try the gluten-free diet to see if it helps. And the same goes for your sons and your husband.

I have found that eczema is ALWAYS caused by food intolerances. My oldest daughter has five kids, four of whom get terrible eczema from dairy, soy, and the twins from nightshades (potatoes, tomatoes, peppers, eggplant) as well.

My oldest granddaughter (who will be seven next week) was covered from head to toe in eczema as a baby and toddler. It was so bad that her skin looked and felt like she had scales! Not a pretty sight. And the poor thing would scratch herself bloody (and so did her younger sister, who along with her twin brother is intolerant to nightshades as well as dairy). After she was finally tested for intolerances, and my daughter stopped giving her dairy, soy and the combinations of eggs and grain, and tomato and grain, her skin cleared up within weeks. She has the most gorgeous, clear skin now. And so do the other four.

So, in order to get rid of the eczema, you need to find out what your boys are intolerant to. Dairy and wheat are usually main culprits, but nightshades and soy are suspects as well, and there could be others. An elimination diet is best.

I hope you will finally figure out your problems, and will be able to help your sons as a result as well.

I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma


Share this post

Link to post
Share on other sites